States Plan for Alzheimer’s

Alzheimer’s Advocates throughout the United States have worked with their home states to develop a plan to prepare for the silver tsunami made up of aging baby boomers. So far twelve states have completed their plans. Another eighteen states, including Missouri, are developing plans.

In addition to the expected elected officials and aging professionals, the nineteen member Missouri Task Force includes a person with memory loss and a caregiver. Community Forums were held throughout the state to address the challenges of families facing Alzheimer’s disease.

The 110,000 Missourians who have Alzheimer’s disease are cared for by 180,000 unpaid caregivers who provide 156 million hours of unpaid care. Most caregivers want to care for their loved one at home as long as possible. With the necessary support and services in place, this army of dedicated unpaid caregivers can save the state $1.7 billion.

The Missouri Community Forums helped the Task Force pinpoint the areas that needed attention. The concerns family members voiced at the Alzheimer’s Association Mid-Missouri Chapter’s forum were:

1. Access to early and accurate diagnosis by doctors and health care professionals.
2. Availability of affordable home health and respite care to keep loved ones at home longer.
3. Investment from the state of Missouri for Alzheimer’s research.

This short list of goals is reasonable, and any caregiver can attest to their validity. Early diagnosis is important. If dementia-like symptoms are caused by a treatable condition, it is important to take proper measures to address the underlying problem. If the diagnosis is Alzheimer’s, a proper treatment regimen can be started when it does the most good. Early diagnosis helps the family plan for the future.

Affordable home health and respite are basic needs when a loved one is cared for in the home. One person cannot be awake and alert twenty-four hours a day, seven days a week. Providing care for a person with Alzheimer’s is a huge undertaking! Not only do states need a plan, individuals need one to prevent burnout and illness. A care plan designed to provide relief for the primary caregiver with home health support and occasional respite care will keep people in the comfort of their own homes longer.

The state of Missouri annually spends $100 million in Medicaid for dementia long term care. By investing in Alzheimer’s Service Grants to support families caring for their loved ones at home, the state could save millions in Medicaid dollars.

The Missouri Alzheimer’s State Plan will be delivered to the governor in November as part of Alzheimer’s Awareness Month. It is a fiscal responsibility of our elected officials to tap into this valuable resource of dedicated caregivers.

Copyright © July 2010, L. S. Fisher
http://earlyonset.blogspot.com

To see which states have plans:
http://www.alz.org/national/documents/StatePlanMap.pdf

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Missouri Advocates at State Capitol for Memory Day

I am an Alzheimer’s Advocate and participate in Memory Day at the state capitol in Jefferson City. Wednesday, I made my annual trip to speak to my legislators. My sister-in-law, Ginger, went with me this year.

The biggest challenge of Memory Day is finding a place to park. How every parking space within miles of the state capitol can be full is a mystery to me. I looked for parking place close to the Truman Building. My first mistake was trying to go in the entrance that is now barricaded with pylons to discourage terrorists, I suppose. I went around the block only to discover the other side had only an exit. I shot across a bridge to nowhere, turned around in a parking lot, and drove back around the block.

I trolled the parking lot while Ginger kept a sharp eye out for an empty slot. After cruising all around, we exited that parking lot and entered the one across the street for a more realistic chance. Finally, in the second to last row, we found an empty parking place. With perfect positioning, we were able to exit the car without stepping into the lake-size mud puddle that surrounded the front half of the car.

My cell phone rang just as I hopped over the puddle. It was Ike Skelton’s office setting up a time for our visit during the Public Policy Forum in Washington, DC. I juggled my bag and wrote the time in my calendar.

A March wind gusted around us as we headed toward the capitol building. Ginger and I wore pictures of Jim over our hearts. In the photo, Jim wears his Stetson and looks like a movie star or country-western recording artist.

After a short training session, we found a seat in the rotunda for the ceremony. The ceremony opened with a “Hello” song and drummers. After the awards and recognition, we began our legislative visits. We made a statement by donning purple “Alzheimer’s Association” sashes. It’s really hard to ignore 240 people wearing “beauty queen” sashes!

During our visits, the senate debated and passed SB176 which calls for the creation of a Missouri Alzheimer’s State Plan Task Force. This Task Force will assess the current and future impact of Alzheimer’s disease and examine the resources available for families affected by dementia. After their assessment, the Task Force will develop and implement recommendations to help Missourians take a proactive approach to make life better for the 110,000 Missourians with dementia, their caregivers, and families.

Our other objective is to maintain funding for Alzheimer’s Service Grants. The grants help the four Missouri Chapters continue with their important mission to provide services and support to families who are on the Alzheimer’s journey.

I consider myself to be a poster child for these services. Respite funds provided by the Mid-Missouri Chapter were my only financial support while Jim lived at home. The Alzheimer’s support group and educational programs helped me be a better caregiver. As a person who’s been there and done that, I know the life-changing possibilities of the $539,000 service grants. These grants save Medicaid dollars by delaying admittance to expensive nursing homes. As advocates we asked our senators and representatives to support these two priorities.

We make a difference when we share our personal stories with our legislators. The heart of Memory Day isn’t about politics, it’s about the people we know and love who are living with dementia, and our living memories of the ones lost to the disease.

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