Showing posts with label caregiver. Show all posts
Showing posts with label caregiver. Show all posts

Saturday, May 31, 2008

Early Onset Project: Share Your Alzheimer's Stories

The Early Onset Book Project seeks submissions for a book devoted to young onset dementia. Many books have been written about Alzheimer’s, but Alzheimer’s Anthology of Unconditional Love: Early Onset Dementia will provide a rare opportunity to demonstrate how the disease affects families from different points of view. This book will bring to life the challenges of living with dementia and show the courage of persons with dementia and their families.

Writers do not need to be professionals. Stories written by the primary caregiver or the person with dementia are often the most compelling. I will edit stories, if necessary, before submitting them to the judges who will select approximately thirty stories for the collection.

The Early Onset Project is an exciting opportunity to educate our legislators that Alzheimer’s is a neurological brain disease and not a normal part of aging. The book will be formatted much like Alzheimer’s Anthology of Unconditional Love: The 110,000 Missourians, with slice-of-life stories, pictures of the person with dementia (if submitted), and informational articles. Missouri advocates distributed copies of Alzheimer’s Anthology of Unconditional Love: The 110,000 Missourians with Alzheimer’s to all Missouri legislators in Jefferson City and Washington, D.C.

During our legislative visits at the Alzheimer's Association Public Policy Forum, Sarah Wilson of the Mid-Missouri Chapter compared Alzheimer's to another disease that affects so many people. "When a family member has cancer, that person takes chemotherapy, and the rest of the family provides support for them. With Alzheimer's, it's like the whole family is taking chemotherapy."

Those of us who have lived with dementia understand that analogy. When my husband developed dementia at age 49, advocacy and writing helped me cope. He had aphasia and could not express his feelings, so I became his voice.

Writing our experiences has a cathartic effect and helps promote spiritual healing. Once we record the events and emotion, we realize we did our best and love makes us stronger than we ever thought we could be. I have a presentation on this subject and will publish a book, Writing as Therapy: Rocks and Pebbles, in 2008 or 2009.

Your personal stories give a voice to the 500,000 people with early onset dementia and their loved ones. No one can tell your story but you. Please share a slice-of-life moment with The Early Onset Project and let your voice be heard.

For more information about submissions for the Early Onset Project, visit http://www.lsfisher.com/, or www.alz.org/mid-missouri/


To download complete submissions guidelines: http://www.lsfisher.com/projectearly.html
The submissions deadline has been extended to October 31, 2008. If you have any questions, please email me at earlyonset@hotmail.com.

Sunday, February 10, 2008

Caregivers and Unconditional Love

Do you have happy memories of puppy love? Do you remember your classmates stuffing valentines into a decorated box placed on the corner of your desk in elementary school?

I remember a valentine from the second grade that said, “Let me be your prince and guard your castle.” It came from the cutest boy in my class. It was the prize valentine out of box of 32—the one with the most sparkle. Time stood still as I waited, heart pounding, for him to open the valentine I had given him. Just like in a TV Hallmark moment, he caught my eye across the classroom and smiled at me. Life was good, my feelings were returned.

When I was seven years old, I planned to marry my classmate when I grew up and live happily ever after. My plans changed, and I did not marry the dark-haired boy with the killer smile. It was just a case of puppy love.

After we grow up, puppy love seems, well, so puppyish. Somewhere along the way, we realize that love is much more than holding hands and valentines. The reason we love someone has more to do with character and personality and a lot less with how they look. We become less selfish and more giving.

When someone we love has dementia, we learn a new level of love that we may have not previously known. We begin to love unconditionally without expectations of reciprocation.

Alzheimer’s often brings about role reversals as we struggle to provide care for loved ones who once took care of us. Love will make a caregiver stronger than he ever thought he could be. The Bible teaches that love always protects, always trusts, always hopes, and always perseveres. That sounds like a perfect definition of a caregiver with a heart full of unconditional love. Be sure to give your loved one the biggest glitziest valentine you can find, and wait breathlessly for that big smile.