Showing posts with label zombies. Show all posts
Showing posts with label zombies. Show all posts

Tuesday, February 8, 2011

Early Onset Alzheimers

Yesterday my physcollogsit and I discussed this topic. Generally from time of this diagnosis till time to leave is about 8 years. Check the people that have died from the HBO special and the timeline and that of Sarge Schriver diag. in 2003 just died 2011. The list goes on.

We got to talking about the time period and EOA. My opinion only is that what is called EOA is not, it is more towards the middle stages. My reasoning, which is questoinable, is most of us are told when we start to notice things going wrong, oh it is STRESS, you are just DEPRESSED, you are DISTRACTED and you know the other bullshit. It generally is years before anyone really starts to listen and connnect the dots and finally does reall testing and oh well now you have EOA. I say no, you had EOA possibly for as much as 10 years befoer those white coats figured it out. Of course you had no idea, even though you kept on saying no that is not the problem this is. But of course you did not read page 89 of the med journal of AD and the box you have to fit in to have it.

Yes we both disagreed with each other at the beginning, but since his dad died from AD, he thought back and started to understand what I was trying to say, just maybe the real deal. He is a good man, shit he has put up with me for almost 6 years, so who is the sicker one! He asked me when I first noticed things going goofin and best I could remember I was around fifty, i could not multitask without notes anymore or even handle the number of tasks that I could and it got worse and worse. Of course i had SDD syndrome, right.

What I am trying to say while I am still somwhat together is, if you feel there are reall problems going on in your head, do not allow your doctor to just push it off as the SDD syndrome. You have to fight for you period.

Friday, November 26, 2010

Here is hoping that you all had a wonderful day yesterday and stayed safe. As for me I helped to expand my stature in life, I ate.

I had an interview with a journalist sometime this week that is doing a two part piece in the local paper here on me. I guess she was promted by my post of Who Speaks For Us. We discussed my anger in the posting and she cam to understand that I was not against boobs, but the fact that there really is very little media about us. We talked about how we are throw aways. I also expressed my disappointment in the Alz Org for not being more media concious. Walks are great, working quietly with lawmakers to get things moving is nice, but without hard media coverage does not help that much. NOTICE we now have a pill that will help about 70% of those who take it not to get AIDS, is that not nice for those that want same sex and needle sharing.  From about 1983 or so till now we are stopping these folks from dieing (which is great), only 25+ years to help them, of course that was media push and political movement.

But here I stand with over 5.3 million (very low estimate) with AD, and we are THE WALKING DEAD!!!! like it or not that is the plain raw simple truth, known since 1906 well what do we have, meds that may slow things for a short time then down the hill you go. Yes we with dementia are B movie actors, Zombies of the World, Night of the Walking Dead, etc. Yes I am pissed. I will stay that way and continue with your help to get us a VOICE that will not be Silenced.

Each day that butcher in my brain takes more of me, not thin tiny slices anymore but it has widened the blade and the slices arre gettting thicker. I st5umble more, lost in conversations most of the time, sit and my brain goes off somewher and leaves the body here just fixed. I believe that I am starting to have ciesures not the roll on the ground type but where my mind just flakes. It is getting harder to post, the things come to my head, but get lost before I can write them and I sit here trying to figure out why I am at the computer and just get up and walk away.Everyday living is becoming a task, simple crap just is major, the fun is leaving. I now no the rages of this disease and the loss of who people really are.
My once strong strength to concentrate so I could talk is weaking quickly and I can be pulled off subject in a second and not be able to return. Right now, I am alone and the house is quiet, so I can talk to all of you, but it has taken since about 6 this morning to put this together. This blog has become me and I guess my crusade to awaken people that we do exist and that they very well may join us shortlly unless there is such an out cry that people move, THIS IS NOT AN OLD PEOPLES DISEASE, there are those that were born the same year as me that are a cpl of years dead now from AD. I am onl 66 now, stat wise about 2-4 yeras before I get the hell out of here.

Take care of yourselves and be good to each other.

God Bless & Keep You & This Country of Ours!!!
joe

PS that goes for all those on this planet.