Showing posts with label thinking. Show all posts
Showing posts with label thinking. Show all posts

Tuesday, February 8, 2011

Early Onset Alzheimers

Yesterday my physcollogsit and I discussed this topic. Generally from time of this diagnosis till time to leave is about 8 years. Check the people that have died from the HBO special and the timeline and that of Sarge Schriver diag. in 2003 just died 2011. The list goes on.

We got to talking about the time period and EOA. My opinion only is that what is called EOA is not, it is more towards the middle stages. My reasoning, which is questoinable, is most of us are told when we start to notice things going wrong, oh it is STRESS, you are just DEPRESSED, you are DISTRACTED and you know the other bullshit. It generally is years before anyone really starts to listen and connnect the dots and finally does reall testing and oh well now you have EOA. I say no, you had EOA possibly for as much as 10 years befoer those white coats figured it out. Of course you had no idea, even though you kept on saying no that is not the problem this is. But of course you did not read page 89 of the med journal of AD and the box you have to fit in to have it.

Yes we both disagreed with each other at the beginning, but since his dad died from AD, he thought back and started to understand what I was trying to say, just maybe the real deal. He is a good man, shit he has put up with me for almost 6 years, so who is the sicker one! He asked me when I first noticed things going goofin and best I could remember I was around fifty, i could not multitask without notes anymore or even handle the number of tasks that I could and it got worse and worse. Of course i had SDD syndrome, right.

What I am trying to say while I am still somwhat together is, if you feel there are reall problems going on in your head, do not allow your doctor to just push it off as the SDD syndrome. You have to fight for you period.

Thursday, December 16, 2010

My Book

If you wish to see sites it can be purchased at both written and electronic go to:

http://LivingWithAlzhiemers.wordpress.com

You can also leave a review of the book should you have purchased it.

God Bless,
Joe

Wednesday, November 17, 2010

Well Good Morning World! Yes it is me again you lucky people.

I have been puzzled, confused or whatever over something. You caregivers out their and even you suffers can help me with this. Ther are days that I get up and ready to take on the wolrd and my brain in on fire. The all of a sudden i am like, Robby the robot in Forbiden Planet all my circuts start to short out and I am just plain fricken out of it. I do not understand this, most of the time I kind of walk on eggs because I am not sure where I am or how I feel or what is taknig place in my brain. Have any of you seen or experienced this? It is really concerning. Kind of like here today, gone in a minute. Well I am 66 today, who would have thunk it, not me. Still a pain in the ass about things.
Food no longer intersets me either. Eat or don't eat ok by me. The food just does not hold any enticement I think that is the world anylonger. Things I loved to eat just do nothing for me. I have to be reminded now or asked about eating, not part of my list today. Oh well starting to ranble.

Take care of yourselves.

God Bless & Keep You & This Country of Ours!!!!!
joe

Monday, October 25, 2010

Happy Monday To You.

I have added a link to my book for those who are interested. At present it is only available is soft & hard cover. Within the next 2-4 weeks so i am told it will be available in electronic format for you Kindle folks. At That time the bugger will be available at Amazon.com & BarnesandNoble.com, as well as my website and other locations.

Now that, that is out of the way, today sucks, I am having trouble getting things from my brain cell to my mouth or fingers and once it gets there they don't know what to do with it. I feel like i am starting to reepet my self more and more.  My family bless them say its ok dad we know. I sure would like to know what it is that they know because I do not. Doing this blog is getting difficult. I have these grand things, I think to say and my brain farts them away. I have problems with titles that have antynig to do with the post. I think, that is a joke that their maybe no more titles.

How does one tell you how uttterlly difficult it is living in this World that I am now in. Cann't drive, cann't balance check book anymore, forget my pills, forget the bills and now I get up from the table leaving my dinner because I forgot I was eating.However my bowels and I still are on the same page, way to often, but still together.

You take care now.

God Bless & Keep You & This Country of Ours!
joe

Monday, August 16, 2010

Brains or Trains

I wonder sometimes if I have any brains left or if they are just trains runnnning in a circle. Things to me seem to be getting fuzzier each day. I forget mor of what I am going to do each day. Wife is up North visiting daughter and kids, I just could not take going after her 50th a week or so ago.  I found 32 good reasonss to commit homicide that day, way too much noise, movement, people, just a real grate on my brain, nerves and patience.

I am glad to see the going back and forth in comments and Lynn's posting.  We got one the other day that we discussed and both of us for diffferent reasons.  She could understand the people resenting the fact that the parents who are becoming a problem and like me, living another 5 or more years. Lynn feels that way about me at times and we both think it is normal and good to express it. You need time away from us guys to help yourselves. See I look at it that I may have to put up with those arround me hovering, checking, watching ever annoying me even for another year.  I wish they would just disappear at times. I think both sides feel this way, have to, we with Dementia are really a handfull, I think worse than trying to raise baby tripplets. See have the time I do not know what I want or what I am doing, just like a kid.

I want to say welcome to all of you that visit my blog. From Russia, US, Canada, Latvia, China, Brazil, Austrailia, etc., it boggles my brain cell.  Thank you all for visiting. I hope to be adding new resources to the list on the side soon for you all.

God Bless & Keep You and This Country of Ours (and the World)!!!!!
joe

Saturday, July 24, 2010

talking it out

Joe just told me about the lady in the previous post. So here's to helping her at least dog paddle. Joe does not talk alot about how he is feeling anymore and as he puts it I nag. It is not so much nagging but wanting in to his thoughts so I can understand what he is thinking and how he is feeling. Yes I know he does not know what he is thinking alot of the times but when he does it is really good. So I am relegated to asking only once a say certain questions such as "what's on your brain?" To which the answer is usually mud, eh, or I forget. I have to ask specifically about how he is feeling to a body part. If I ask in general I can only ask once a day. So if I know his fingers hurt or his head hurts I ask specific questions. I also have learned how to ask the same question in different ways but he is catching on. So he will ask me if I have already asked that for the day. And don't be afraid to say hey it's not my fault I am here for you but let me in once in a while. I need to know how he is feeling so that I am prepared to help with either just holding his hand or letting him be on his own. Even though they have this problem going on in their heads they still need alone time too.
Hope this helps a little.
Lynn