New Findings - Interesting Support The Cause!!!

Bulletin from the cause: Support Alzheimer's Research Go to Cause Posted By: Fisher Center To: Members in Support Alzheimer's Research Significant Finding in Nine Months by Fisher Scientists Scientists at the Fisher Center for Alzheimer's Disease Research at The Rockefeller University, led by Paul Greengard, Ph.D., and Jennifer Warner-Schmidt, Ph.D., have shown that anti-inflammatory drugs, which include ibuprofen, aspirin and naproxen, reduce the effectiveness of the most widely used class of antidepressant medications, theselective serotonin reuptake inhibitors, or SSRIs, taken for depression and obsessive-compulsive disorder and anxiety disorders. This surprising discovery, published online this week in the Proceedings of the National Academy of Sciences, may explain why so many depressed patients taking SSRIs do not respond to antidepressant treatment and suggests that this lack of effectiveness may be preventable. The study may be especially significant in the case of Alzheimer's disease. Such patients commonly suffer from depression and unless this can be treated successfully, the course of the illness is likely to be more severe. Depression in the elderly is also a risk factor for developing Alzheimer's disease and researchers have suggested that treating depression in the elderly might reduce the risk of developing the disease. LEARN MORE: http://www.alzinfo.org/04/articles/fisher-center-scientists-show-anti-inflammatory-drugs-reduce-effectiveness-ssri-antidepressants Call to Action Support the cause. Be counted: I Read This

God Bless & Keep You & This Country of Ours!!
joe

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Early Onset Alzheimers

Yesterday my physcollogsit and I discussed this topic. Generally from time of this diagnosis till time to leave is about 8 years. Check the people that have died from the HBO special and the timeline and that of Sarge Schriver diag. in 2003 just died 2011. The list goes on.

We got to talking about the time period and EOA. My opinion only is that what is called EOA is not, it is more towards the middle stages. My reasoning, which is questoinable, is most of us are told when we start to notice things going wrong, oh it is STRESS, you are just DEPRESSED, you are DISTRACTED and you know the other bullshit. It generally is years before anyone really starts to listen and connnect the dots and finally does reall testing and oh well now you have EOA. I say no, you had EOA possibly for as much as 10 years befoer those white coats figured it out. Of course you had no idea, even though you kept on saying no that is not the problem this is. But of course you did not read page 89 of the med journal of AD and the box you have to fit in to have it.

Yes we both disagreed with each other at the beginning, but since his dad died from AD, he thought back and started to understand what I was trying to say, just maybe the real deal. He is a good man, shit he has put up with me for almost 6 years, so who is the sicker one! He asked me when I first noticed things going goofin and best I could remember I was around fifty, i could not multitask without notes anymore or even handle the number of tasks that I could and it got worse and worse. Of course i had SDD syndrome, right.

What I am trying to say while I am still somwhat together is, if you feel there are reall problems going on in your head, do not allow your doctor to just push it off as the SDD syndrome. You have to fight for you period.

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An Email From a Friend.......

As many of you know from time to time I share emails with permission. This is one I got just recently. You all seem to be amazed that even advancing in this fricken disease I can still communicate. I want you to know that all of us with AD or other forms of dementia are not always stumbling, bumbling and drooling people. Some to the end, not many still reamin mentally strong, maybe not physically but one cannot have everything. Also this email may give you a hint of why I take no meds for AD, just mood stabilizers, the shit does not work if that helps.**************

Dear Joe and Lynn,
 
Thank you again for your response...these letters and blogs must keep you both very busy...I don't know how Joe still does it, but thank you from the bottom of my heart.  My father suffered from AD silently...we did not know what he was thinking or feeling...he tried to live life as if he didn't have the disease, including not talking about it.  The only glimpses we had were his physical struggles, his hallucinations, and listening to his frustrations...we had to try to fill in ourselves what was going on in his head.  Joe, you have no idea how much your shared words help us understand what you are feeling or experiencing or thinking...more than you know.  I wish my father could have expressed what he was experiencing, but he didn't, so I am learning from you.
 
I just checked into your blog...I am sorry to say that I haven't been able to keep up with it regularly (due to restricted internet access), but every time I visit your page, it brings tears to my eyes...I am just filled up with sentimental emotion on how much you share, and your struggles doing it, and your struggles with the disease...thank you for all the work you put in.  I am amazed at how articulate you still are at this stage.
 
I am so happy you published a book!!!! That's great.
 
I unfortunately could not find the memorial link on your page...I must be overlooking it.  But I would love to send you the information on my father, and a photo.  I will let my mother know.
 
I was also thrilled to hear that you are doing the Memory walk in Oceanside.  Before I knew that, I was going to e-mail and ask if you and/or your family if you and they might be interested because I want to do it too.  But I have to get my butt in gear to sign up and send out the e-mails.  My mother did the walk in Florida about a week or two ago.  I'll honor my father with a team bearing his name; however, I do not have family here, so unless friends join me (and they might), I might be a team of one.  I would be honored to walk with you and Lynn if you like.  It sounds like you might not have many walking with you, so if you and Lynn need any help at all, I would be happy and honored to help.  I helped give care to my father until he passed.
 
This is getting long for you to read, so I will sign off.  If you want to put any of this last response on your blog, you have my permission.
 
God bless you all (and my father would have agreed with Joe on "...and this great country of ours")
 
Cheryl

________________________________

God Bless & Keep You & This Country of Ours!!!

joe

PS Cheryl has no real idea what emails and comments from you folks really mean to me. They keep me wanting to post, even though I feel no one really gives a shit.

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Par Boiled Fanny

Yes yours truly master of home repairs and as dense as a tree was at it again today. One needs to know that me and ladders do not belong in the same universe, I get on one and by the time I reach the second step on it I am 30 pounds lighter. Today we started on clean the outside of the house, redoing the pation and th driveway. Well do to my immense brain power I got on the roof to wash down the roof and upstairs portion of the house.  Well sitting on the roof was a bit on the hot side. Did you know that when you spray down a roof that the sun has been beating down on the water turns to steam, well I do now. As this small river came rushing down the roof towards my secure spot, it reached my butt, yess my backside, and it cooked it. I felt like I was sitting ing boiling water, guess what DAH i was. I am fighting this disease the best I can, but the longer we go down the road, the more I find out what I do not know that I thought I knew, before I found out that I did not have the first idea about it.

Lately when I get up I am not able to finish crossing that bridge from sleep to being fully awake. I was talking with my ologist this week and he asked if I felt like I was is a fog.  Well the answer is yes, the above is proof of that.Things are just not clear to me any more and I stop more in the middle of things then I did before and wind up doing something else. Each day I decide to write on here and say I should write things down before I post so I remeber what it is that I want to say. GREAT IDEA, problem is I sit down to do it and forget what it was I was going to do, welcome to dreamland.

Well I need to stand right now so you all be good to yourselves and THANK You for helping me win the new award posted on our blog. This is your victory as well.

God Bless & Keep You & This Country of Ours!!!!
joe

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The very Fabric of This Blog

Anonymous has left a new comment on your post "talking it out":

Hi there Lynn & Joe. You two sound like such a perfect couple. I'm sorry to say that I am not feeling that way about my husband and I. My spouse is 17 years older than me. He was diagnosed about the same time as Joe and yes, he seems to be experiencing relatively the same stages that Joe is going through. But I must confess, I am not feeling like the pleasant, let me make you feel better caregiver right now. The TV can only be on one of the two channels he chooses, Fox News or the Weather Channel and he doesn't even watch them. He, like you Joe, stares off into space. I try to strike up any type of conversation by commenting about what they have just shown on TV but he wasn't watching it and has no idea what they were talking about. Then he gets angry with me because he is confused about my comments. Lately, he is always crankey and YELLING at me and our extended family (5 children, 6 grandchildren) so they don't seem to come around anymore. I do go to work part time but he is insistant that I not leave him for more than a few hours at a time and demands that I not go anywhere away from him for any type of enjoyment. He doesn't even want me to go shopping to get things that we need, only to the grocery store a half mile away. He makes me feel guilty that he is afraid he will die alone and that I must be with him at all times. And I don't mean just at our home, he insists I be in the same room with him ALL the time. People say to me that I should get out and do things for myself. I agree. But the reality of life is that other people don't include you when they know you have to be home with your spouse all the time. They don't want to be the cause of his anger either. So here I sit feeling so all alone in the same room as him. I provide his meals, cut his hair, do the grocery shopping, take care of our expenses and accounts, pick up his prescriptions, do his laundry and clean up after him. He refuses to go ANYWHERE. Will not leave the house and wants me to do the same. I do understand that what he is going through is very difficult. But there is never any expression of gratitude or even acknowledgement that this is difficult for me to go through also. He used to tell me every night when we went to bed that he loved me, but even that has gone. Now I only seem to be the object of his anger and frustration. But all the same, I will keep on keeping on. I won't give up, but it does help to have an outlet to release my feelings, even if it is to someone I have never met and never will.

Joe, please give Lynn a hug and let her know how much you love and appreciate her. Sounds like you have a real piece of gold to hang on to through this journey we all pass through. My love to you both.

The above is a comment shared on this blog in respose to a posting by my wife Lynn, who I am 16 years older than. This lady is suffering just as Lynn is, I have become very combative, pig headed, a dick, paranoid and more withdrawn.  I have asked many of you to be guest bloggers for the above very reason. I cannot tell you how many 100's of emails I have received just like the above comment.  See all I can respond to these people is that I am sorry for your mate and you, but it is only going to get worse, a lot of comfort right, wrong, but it is the truth. I ask again that you help with posting. See even if you do the same thing everyday, you still do something a little different and that little difference could help someone like this lady. Me i love and appreciate your words of encouragement, but really they are gone as soon as I read them. You see I know that I will not get better only worse and it is doing that quite well. I am on a journey to keep an appointment with mental collapse and physical death that is the reality of it. It sucks, i hate how i feel, i do not like my distrust and disgust with others, but my emotions are no longer mine, I even do not feel bad anymore when I am a real pain in the ass or hurt feelings, my brain says tough crap to you. I hear and see things now that are not there, i do not even know when I am being talked to. Sex keeps rolling in my brain but the old pecker does not help out and I even say who the hell caaares to taht. I am getting like my good friend Dr. Joe Savick, making a 42 paragraph post. Thanks for listening shit has hjust built up in me and while I am thinking of it I am making this post.

God Bless & Keep You & This Country of Ours.
Joe

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My Forum

This is my forum to tell you how I feel and for you to talk back to me. It has always been my goal to make this not just about me, but about those that travel my journey before and after me. For you that care for us to tell how you feel. For those who contribute to leave posts on their take and views. I personally feel that my time to the line is close and I am having difficulty battling that.While I fight it, I know inside and have accepted the fact the fight is lost, but I am an honory bastard and just have to fight for the sake of it, win or loose does not matter, I just will not give this disease the satisfaction it wants. It is going to have to stomp on me and its shoes are getting heavier. Sometimes my posts are less than kind, but this is not a kind disease and I am trying to make people think about us in this world as real people not someone in a looking glass. This is my only forum to do that in. I feel caged and somewhat worthless at this point and that feeling will probbably woresen as time goes on. Well so much for now.

God Bless & Keep You & This Country of Ours!
joe

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A Favor to Ask.

My friend Mary, who's site is listed in my linkes, is having some real troubles health wise. Also her doctor is being a pain about meds for her hubby who has AD also. Please say a prayer for the two of them so that they get the right help. I would appreciate it. I am starting to loose to many friends to this disease.

They live in Canada and their whether is nowhere as nice as my haunts.

If I remember I will post pictures of THE POND, yes it is 95% done, need to get an electrician to run the out door cables for me. Me and electricity, not a good match, never was and even less so now.

Until later:

God Bless You & This Country of Ours!
Joe

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What is Important in this World?

Last post has drawn some hard comments, which is great. But the one I am going to post here comes from a friend whose mom is suffering a great deal from this disease.

You know what enrages me? The commercials for the drug that makes your eyelashes grow darker. WTF? There are people dying of AD and other hideous diseases, but we need a f'ing drug that makes eyelashes grow darker. Again, WTF?

2:21 PM

My point exactly.

I was informed that they found the protien believed to be the culprit. AMALOIDs probably speeled wrong. But guess what Dr. A. in 1906 or 1908 made that discovery, boy we are moving fast. By the way this same protien can settle anywhere in the body, and that means any organ and cause failure. It is produced by the body. As I understand it, and we have to remember my brain here, they are formed by an auto imune sysdrome that attackes the white corpusles in the blood and breaks them down into these things and they do not know how to stop it exactly. Got a lesson these on Discovery Health, where a lady was in almost complete kidney shut down from these wonders and I forget what they did to help her, but they did say things could happen again as they did not know how to really stop it. Let's grow those eyelashes, boobs and fix up our stomaches and loves handles guys and gals.

The word AIDS was a stigma but it is ok now, not having it but talking about it. But Alhziemer's get away you with the plaque.

God Bless & Keep You and This Country of Ours!
joe

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