Showing posts with label alzeimer's. Show all posts
Showing posts with label alzeimer's. Show all posts

Wednesday, November 28, 2012

One of Our Family Asking For Help

alicespicer2003@yahoo.com
Message = Hi. My name is Alice Spicer, and I have recently launched a non-profit organization dedicated to eliminating the stigma associated with Alzheimer's and dementia through publication of creative work. Basically, I want to provide a platform for their voices to penetrate nursing home walls and be heard in the public arena.

Here is our website: http://alzheimerchronicles.com

I am writing to ask your support in helping people become aware of a fundraising campaign we are doing for the first publication, "Alzheimer Chronicles: The Invisible Poets," an illustrated collection of short stories. After almost two years worth of weekly storytelling workshops, I think it is about time that others are exposed to these valuable stories. The cognitively unchallenged people in this world have a lot to learn from our forgetful friends.

Here is a video, which demonstrates the level of depth and meaning in their stories:

http://www.youtube.com/watch?v=Cx_kI8e0Q7E

I hope that you will pass this information along to your friends and colleagues. Our campaign, on Kickstarter.com ends December 5th. We have about 24% funding so far, with 21 days to go.

Thank you for your time and consideration.

Take care,
Alice Spicer

God Bless & Keep You & This Country of Ours!
joe

PS> review if interested follow your feelings.

Tuesday, October 9, 2012

New Song

you can turn off my usual song if you wish. I do request you listen to the new song I have embeded from You Tube on the right. I cried.

I will be going on a road trip with my youngest starting next monday, so i may not post for awhile. We will head to Chicago, stopping at zoos on the way, and then seeing some of my old town. We are going to THE CHICAGO BEARS GAME vs detroit lions on the 22nd. Then will be heading home. To tell the truth i am afraid of this trip, i will be away from my security place, away from lynn, my fish and that which i am familiar with and that scares me.

In a prior post i believe a gave you a link to a new short film, Shattered Love, that is in production for you review. I have yelled long enough about a voice on this blog, so when asked I decided to put my money where my mouth is and have become an executive producer, on of some.

so there you hav it from the big brain in Oceanside, CA.

God Bless & Keep You & This Country of Ours!
joe

Friday, September 28, 2012

Welcome to our world of dementia, Jim McMahon.

Some or many of you do not know Jim McMahon. He was the quarterback for my Super Bowl Champions, The Chicago Bears is 1985. To me one of the great one's, not afraid to get hit or do what it took to win the game. Not like some of the sissys today. Jim at the age of 53 now has dementia, not Alzheimer's, Lewy Bodies, Frontal Temporal or any of the others. He has the new one specially named for retired football players, chronic traumatic encephalopathy (that was cute and paste). Comes from toooooo many wacks in the head they say. Sorry Jim, you are still a favorite of mine, but now we have something in common, brains kind of scrambled.  I often wonder if my Alzheimer's and Frontal Temporal Dementia are not tied to the wonderful car door slams to my head that my wonderful asshole of a father took delight and delivering to me. Or the hits in the head by the swings in school or those from the teeterboards or whatever the where. Possibly my wonderful abilithy to fall and crack my head on the cement. Oh well whatever the cause we have it don't we Jim? Truly i am sorry for your condition, it is not fun. Believe me I and millions of others know that and wish you well. You can always contact me and we can chat, talk or write. Just know there are a great number of us out here who stand shoulder to shoulder with you.

God Bless & Keep You & This Country of Ours!
joe

Friday, September 7, 2012

Radio Show

To listen to the radio show I was on, you will find link on right hand sid. I would make the folowing sugestions:

1: Turn off my intro music first. You can push the button under Josh Groban on the right hand side.
2. Click on the Radio show icon and wait for it to load, a few seconds.
3. You can slide the bar forwad to skip to my segemente if you wish, otherwise show is two hours long.


Enjoy.

God Bless,
joe

Saturday, July 21, 2012

Oceanside's Cultural Art Center

Should you happen to be in Oceanside, CA on Saturday 7/28/2012 the center is having what is called "Write On", event.  Featuring the authors that live in Oceanside. More info Click Here!!!!!

Bet you cannot guess who will be there. So if you are out and about that day stop by.

God Bless & Keep You & This Country of Ours!!!
joe

Thursday, July 12, 2012

Alzheimer's Time Line -- New Page

Please note the new page added to my blog - Alzheimer's Time Line. This info is from Fedelta Care Solutions. Hold many facts and figures. I hope you find it useful. While there check out their other resources.


God Bless & Keep You & This Country of Ours!
joe

Wednesday, July 4, 2012

A week gone & Happy 4th to All.

I am glad that last week has past, the crashing out of bed, 8.5 hours at the hospital on sunday. Monday got to relax, the tuesday spent  2 hours iat the dentist, proded and poked and xrayed and open and shut measure this and that, looking into a apnea device for my mouht the mask and i do not get along at all. Then wednesday, good old phychiatrist, they are so non commital and say keep doing what you doing, well i do not want to. Dieing sucks, not knowing what day it is anymore sucks, forgetting where the day went sucks, life sucks so there. Then spent hour and a half at the eye doctors, how wonderful, pull this lid then that one blind me with this light agnd then the next put drops is to measure pressure i guess, that process was met with a bit of resistence, you do not touch my eyes. Then we put all types of drops in them so I can no longer see shit and they take pictures of them. Finally the Doctor arrives and he fuckin blinds me with lights. We discuss a cataract that is in the left eye, he suggested to leave it for now and not operate, smartest thing i heard all week.  But need new glasses.

This week comes and somehow some way a sctrewed up my back and need my brace to move and my scooter to get atround. I know it ends sometime, but when is that time. i forgot what i was going to say.
Oh well take care.

God Bless & Keep You & This Country of Ours - Especially OUR TROOPS.
joe

Tuesday, June 26, 2012

Where the Hell did that Buick come from?

Yes early Sunday AM about 5:15 or so i am told, I was struck in the back of the head, neck shoulders and back by a buick. I think an ol 1956 Buick Roadmaster for those who remember those tanks. That is what it sounded like. See I was having this wonderful dream, I was young and agile again (you know that is a dream), i was playing in traffic in the street, playing dodge um with the cars and doing just a outstandting job of winning. I made this magnificient  summer sault to avoid a car and go to the other side of the street to the sidewalk. Then it happened CRASH, BAM POW, Holy Cow Batman, laid out flat this Buick had done me in, sneakoy devil got me from behind.

Well after hearing my name called  for who knows how long there is my wife asking me if i am ok. Well i did not understand how she got there. The truth be known Mr. Gymnist here apparently did a leg flying high twisting of this very fit body of mine, right out of the bed. In the process I struck my left ear, back of my poor little head, neck and shoulders on the bedside table. Not to mention my fat ass on the floor (that was the real crashing noise).  Later in the day when I confessed i could not see well, my head hurt, hell all of me hurt and was more unstable than usual, physicallly that is, we spent the next 8 ½ hours at the wonerful Hospital Hotel. Had a CT scan and it showed the following:  No definitive intracranial hemorrhage.  There is a focus of increased density to the posterior left temporal lobe. No skull fracture. Mild sinus opacity. Basil ganglia calcifications (and my very favorite medical language) and other incidental findings. I guess they found a brain cell.  One good thing the basil thing which has never shown or have I been informed of in right on that part of my ginormous brain that controls your balance, and is an old brain injury that continues to calcify.

What a day. Take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

PS. anyone finds that Buick it is mine.