Showing posts with label senior living. Show all posts
Showing posts with label senior living. Show all posts

Friday, September 28, 2012

Welcome to our world of dementia, Jim McMahon.

Some or many of you do not know Jim McMahon. He was the quarterback for my Super Bowl Champions, The Chicago Bears is 1985. To me one of the great one's, not afraid to get hit or do what it took to win the game. Not like some of the sissys today. Jim at the age of 53 now has dementia, not Alzheimer's, Lewy Bodies, Frontal Temporal or any of the others. He has the new one specially named for retired football players, chronic traumatic encephalopathy (that was cute and paste). Comes from toooooo many wacks in the head they say. Sorry Jim, you are still a favorite of mine, but now we have something in common, brains kind of scrambled.  I often wonder if my Alzheimer's and Frontal Temporal Dementia are not tied to the wonderful car door slams to my head that my wonderful asshole of a father took delight and delivering to me. Or the hits in the head by the swings in school or those from the teeterboards or whatever the where. Possibly my wonderful abilithy to fall and crack my head on the cement. Oh well whatever the cause we have it don't we Jim? Truly i am sorry for your condition, it is not fun. Believe me I and millions of others know that and wish you well. You can always contact me and we can chat, talk or write. Just know there are a great number of us out here who stand shoulder to shoulder with you.

God Bless & Keep You & This Country of Ours!
joe

Sunday, September 16, 2012

There is a new community some of you may or may not know of now on the web. I have joined it,  it consists of people involved with Alzheimer's, sufferers, caregivers, etc. It is called The Alzheimer's Community   , you can register and join, of course it is free. Come take a look and help spread the word.

My world has been very mixed up lately. I really do not know what is going on in it much anymore. Lynn has to do the check book now, even the calculator does not do what i wnat it to do. Talking is becmoing one of those one time I knew how to do that and make sense.But that is the way it goes.

I sit here and have all these things to say and when I go to they go somewhere other than on this page, it pisses me off. Making a decisssion for me takes alot of time. So much that I forget what it is that I am trying to answer or do.

God Bless & Keep You & This Country of Ours!
joe

I just remembered something, I have noticed that most of my so called friends have disappeared from my life, just as they did when I stopped drinking. Quit being a drunk and loose your friends, have your brain eaten away loose your friends, seems interesting.

Saturday, July 21, 2012

Oceanside's Cultural Art Center

Should you happen to be in Oceanside, CA on Saturday 7/28/2012 the center is having what is called "Write On", event.  Featuring the authors that live in Oceanside. More info Click Here!!!!!

Bet you cannot guess who will be there. So if you are out and about that day stop by.

God Bless & Keep You & This Country of Ours!!!
joe

Tuesday, July 17, 2012

The Death of ?



A short story by Joseph V. Potocny

Let us go back in time as far as our minds will travel till when this war began and the battles raged on day and night for centuries.

Our setting is in times of old, set among the rolling tree lined hills and grass lands of a land known as the LAND OF DARKNESS. Through the glens ran rivers filled with fish and clear waters and lakes that sprawled across the land.  Many a village dotted the landscape with one mighty fortress in the center of all that could be seen. The villagers went about their daily business of selling goods, cleaning their shops and homes, repairing their roofs and greeting one another. In the background one could hear the noise of battle, the clashing and crushing of metal and the helpless cries of those engaged in this never ending war that seemed to have no rhyme or reason to it. Yet one could hear the roar of cheers and adulations being boosted upon the victor as the gayety of the event went on. For years the war raged with hardly a person caring who was or was not winning; only that it gave them excitement in their otherwise hum drum lives.

Then came a cold and blustery fall day, the skies were darkened and the winds swirled throughout the land. The reviewing stands were filled to over flowing with crowds of frenzied on lookers. It was difficult to see what was taking place through the dust and debris flying in the air. But yet all in attendance cheered and screamed and ate all that they could and laughed among themselves. Suddenly two hours past the rising of the sun in midday sky the clouds began to part. The massive clouds of dust seemed to clear and a quietness never before felt in the Land of Darkness could be felt. People closed their eyes, covered their mouths and ears as they gazed upon the carnage that years of battles in this war they really cared nothing about could be seen. DEATH was all about the land, where it was once green now it was scared and torn by the ravages of the war. Ones they had known for years were among the slaughtered and dismembered bodies that lay for the scavengers to feast upon.  But not to worry, they were safe in the stands and had others to talk to and while the time away.

Suddenly could be heard the thunderous ponding of the hooves of a mighty beast coming towards the field from the east.  All turned their eyes and cheered wildly and appeared a mountainous mass of a steed black as coal with what looked like the very smoke of hell coming from its nostrils. His mighty hooves gleamed in the sun and as they hit the ground one after the other a shaking and rattling of the stands could be felt by all.  The crowds went wild, when atop this mighty mount sat the Black Knight.  His dark plumage all twirl in the wind, armor black as the night and gleaming. His battle axe hanging on his side, a might mace stuck in his saddle. As he rode towards the crowd his lance stood tall in his mighty arm, with his colors of red trailing behind it.  He slowly made his way to the east end of the jousting pad and sat so tall and mighty that he seemed to block out much of what could be seen.

From the west end of the battle field a soft but mounting laughter started to be heard.  All eyes turned toward that end of the field and there they say the cause of this gaiety.  Standing there on a Roan Steed was a war torn and embattled knight. His stature was not even half that of the Black Knight.  His page even had to help him stay steady on his charge.  The crowd could hardly contain themselves as the starter slowly made his way up the tower to play his part in this drama.  As he neared the end of his climb the weather seemed to change, a chill entered the air and the skies seem to darken, by this time night was starting to fall.  The Starter reached the top of his post he showed the white cloth to the Black Knight, who dipped his lance in acknowledgement.  He then turned to the old knight and he dipped his lance toward the starter and almost dismounted.  None of the money changers would take bet on this battle; one could plainly see who the victor would be.  The starter dropped his cloth, the Black Nights mount could hardly be contained waiting for the cloth to strike the ground. 

The Cloth hit the ground the massive beast reared and roared a mighty sound and the smoke of hell came forth from his nostrils. His mighty feet hit the dirt with such a force that the earth cracked, mountains trembled and the reviewing stands did weaken. Forward charged the Black Knight with his lance lowered.  The Old Knight sat himself right and lowered his lance and started his charge. Suddenly seeing his braveness and lack of fear the jeers started to turn to cheers. They charged towards one another in the dimming light and met with such a clash as never before heard that many fell out of their seats. A cloud of thick and dark dust was swirling in the middle of the field. The sound of metal ripping, wood snapping and the cries of pain and horror could be heard. Then all went silent. No one knew what had happened. But slowly the tail and hind quarters of the Black Knights mount could be seen. Soon the knight and his entire mount were standing tall at their starting point. Where was the old knight? A light rain and breeze came up and the center of the field could be seen. There laid broken battle axes, maces, the Black Knights sword and the proud Roan Steed. But the Old Knight was not to be seen.  All were just besides themselves, how could this be? Then one cried out look. As all looked to the west end, there standing in the setting sun was the Old Knight; how he was able to stand no one could phantom a guess. But yet there he was standing, with half a shield, leaning on his sword and bloodied beyond belief the battle that had just been fought.  As the last rays of the sun cast across the field the Starter raised his hand, the Black Knight raised his shield and so did the Old Knight. Down came the starters hand and like a blur the beast from hell was racing towards the end of the field. The Black Knight lowered his lance, which was already drench with the blood of his opponent and took deadly aim. Darkness fell just as the two met once again. This time the collision had a different tone to it but still there was so much dust and in the darkness hardly a thing could be seen. Finally, after what seemed like years the moon broke through the clouds and the wind swept across the field once more, to reveal the finality of this battle.

There at the west end to the amazement of all, laid both the Black Knight his charge and the Old Knight.  Pages ran to the scene to see what was and signaled to all that both were dead.  The crowd demanded the helmet of the Black Knight be removed so they could see who this valiant warrior of so many battles and years was. However his face was so deformed and twisted and hair all in knots that no one could tell who he was or where came from. The Old Knights page removed his face plate to reveal his master, instead of a face a spiral plume of bluish white smoke ascended to the heavens. As is raced upward a great sound could be heard and then a burst of silver, gold and white flakes fell towards the earth. All could hear the words clearly, I Am Free, finally.  The flakes fell across the entire battle field and all that laid there was consumed as if it never was.

All looked to where the Black Knight and his companion had laid upon the field.  A twisting wind blew across the spot and there where they had lain was written: My Name Was Alzheimer’s.  The crowd now knew what they had not done, but one lone soul sacrificed their life to do.

God Bless & Keep You & This Country of Ours!
joe

Thursday, July 12, 2012

Alzheimer's Time Line -- New Page

Please note the new page added to my blog - Alzheimer's Time Line. This info is from Fedelta Care Solutions. Hold many facts and figures. I hope you find it useful. While there check out their other resources.


God Bless & Keep You & This Country of Ours!
joe

Wednesday, July 4, 2012

A week gone & Happy 4th to All.

I am glad that last week has past, the crashing out of bed, 8.5 hours at the hospital on sunday. Monday got to relax, the tuesday spent  2 hours iat the dentist, proded and poked and xrayed and open and shut measure this and that, looking into a apnea device for my mouht the mask and i do not get along at all. Then wednesday, good old phychiatrist, they are so non commital and say keep doing what you doing, well i do not want to. Dieing sucks, not knowing what day it is anymore sucks, forgetting where the day went sucks, life sucks so there. Then spent hour and a half at the eye doctors, how wonderful, pull this lid then that one blind me with this light agnd then the next put drops is to measure pressure i guess, that process was met with a bit of resistence, you do not touch my eyes. Then we put all types of drops in them so I can no longer see shit and they take pictures of them. Finally the Doctor arrives and he fuckin blinds me with lights. We discuss a cataract that is in the left eye, he suggested to leave it for now and not operate, smartest thing i heard all week.  But need new glasses.

This week comes and somehow some way a sctrewed up my back and need my brace to move and my scooter to get atround. I know it ends sometime, but when is that time. i forgot what i was going to say.
Oh well take care.

God Bless & Keep You & This Country of Ours - Especially OUR TROOPS.
joe

Thursday, May 31, 2012

Alan Arnette Completes 7 Summits Climb.


Climb4AD (The 7 Summits Climb for Alzheimer's)
Alan Arnette climbed the 7 Summits of the world in memory of his mother, Ida Arnette, who passed away from Alzheimer’s disease. Help Alan raise awareness of the growing prevalence of the disease and share your memories of caring for a loved one with Alzheimer’s. Email C4ADFBWall@biosector2.com with your story.

Support Alan as he has us.

God Bless & Keep You & This Country of Ours!
joe

Friday, April 13, 2012

Sadness in one's life.

This has been a hard week for me. My bird died Easter night. I was the only one that could handle her, very picky with people. Her leaving has really messed me up, i come down in the morning and go to uncover her and feed, water, bird talk all that knid of stuff and no cage. At night I want to cover her and say goodnight again no cage or bird. She had been ill and sitting with me at nights for long periods cuddeling and sleeping, i knew time was near, but never expetced feeling this lost over it. I look forher cage and it is not there. Change is not good for me anymore I have problems with it now. I find I am angrier inside now than ever, but I fight not to let it out at others, i just leave the room come st here at this beast and do nothing or go in my bedroom and just lay there for awhile. I find the tremors and my balance worsening daily my head seems to be screwe on sideways this crap has to endlife really is beginning to suck big time. well that is the hand i have drawen and have to play.

Take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, March 27, 2012

Hello

just a note to say i am still here.  my days are shorter with sleeping a lot. have reduced meds. my brain is not lear on what to say all days seem the same, nothing seems to become any clearer  i just do not know what it is that i want to do anymore, wife leaves things on the calednar and well who the hell looks at it not me. I cannot remmmeber one moment to the next. my sense of humor is also leaving. You know i get upset and then am told to calm down and what i did or said is wrong. pisses me off. I feel like just not talking anymore, hell things do not come out right and then i get those looks, you know them you have given them yourselevs me too. I am starting to feel that this is my fault, although it isnot. It is just hell inside this mind of mine and growing worse by the day. With those of us out here telling, yelling, being gentle, when the fuck do we get heard. screw the rich and famous most of us are regular folks and our stories are important, i think but mainstream does not even those orgs that are supporedlly their for us.

take care and be good to yourself.

God Bless & Keep You & This Country of Ours!
joe

Wednesday, March 14, 2012

In The Moment!

As many of you know i have also fought my disease of alcoholism.  The program i joined taguht me to live one day at a time. Taking things as they came and dealing with them without the use of my friend Jonhn Barleycorn. Now I have a disease, Alzheimer's and Frontal Temporal Dementia, which have robbed me of those memories that i was told to keep green, so I would remember my life with JB and the hell that i lived in. Those days and other memories good and bad are all becoming only words to me. They are starting not to carry the pain, joy, saddness, hapiness , etc of my past. Alzheimer's has now forced me to live in only the minute, not even the day, I can do something at 8am and by 8:30am it is gone, not even a memory only a few words exist about it. This is becomming more and more my life. Living only in the moment. I guess that is how we are reallly to live, but this is new and confussing to me. It is about 7pm here and I cannot tell you what I did an hour ago.This fuckin disease really robs you of things and it is taking more faster and faster. But I still have ½ brain cell that refuses to give up, so I can tell you of this journey at least for the moment.

Take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

Monday, March 12, 2012

Care Givers Listings

I have added a resource list for caregivers and nursing home guides. To help those of you who take care of us get help and share your stories with others. Hope you find this helpful. All of the slistings come from emails i received going back over a year or more, so I am slow at getting things done. I still have others to go over before I list when I next remember.  Enjoy.

I think i got the links correct, i know you all willl let me know if not.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, February 28, 2012

I'm Back!

Back from where who the heck knows.  By the way if you want to cotact me or Lynn directly just email us at:
joynn1@cox.net  make sure you put in the subject line eitehr my name or Lynn's so the right person gets it.

If  any of you out ther suffer from this damn disease and have nowhere to post what you want to say, email me with a post and if it meets our extreeeeemly high standards I will send you back an invite to be a guess bloggger on this site.  Rules: simply total honesty, correct speling not an option, be ready to catch flack from rest of this World family if you get out of line; if your postings are inappropriate I will remove your privilidges.

Posts must relate to any form of DEMENTIA or your direct care of one with Dementia.

my computer is now bakc and running, maybe i will be to.

God Bless,
joe

Saturday, January 28, 2012

Me and My Friend Alzheimer's.

Of late some of you have yelled at me in emails and comments. Apparantely my fire has gone somewhat. Well you are right. I hate ths fucking disease. Alzheimer's is robbing me of who I was, i am constantly lost is a maze in my brain.  Lost in conversations, seems this is my only way of real contact. I walk like a drunken sailor, my hands and feet hurt, my body trembles, i cannot see very well anymore. I try to keep a sense of humor but it is becoming more difficult.

You all have a feeling of my thoughts towards the Alzheimer's Organization, well Mr. Robert Egge, VP of Public Policy wrote me and i am sure others to watch howdy doodies State of the Union for his push for NAPA and Alzheimer's because Obama cares deeply abouth this. WELL gues what not a word or a whisper or passing comment about it. Got another email from Egge stating disappointment but to wait for the buget and how we may shine.  These people have no clue, we with Alzheimer's are not important to this government and society at large.  I mean i get all these emails about this vitamin this herb and even coconut oil to help retartd the damange and help. Horse feathers, this shit may work for a very, very, very few for a short time 6 mos to two years and then they hit a brick wall. No more functionality, quaks go away. ALZ a cure by 2025 not on a hot day in the summer. Idiots do not even know what causes it. Loook up the studies, tey all contradict one another. I will say it agin, WE HOLD THE KEY, come to us for the answers, get the hell out of your little square boxes and see the reality.

People say Joe you are wrong, the prove it to me, show me the one person that has been cured or givn 5 to 6 more years of life because of the so called wonder drugs and herbs, etc. All my friends that have taken this crap have deterorated and even died in the 8 year time line. In 3 short years the seven of us is the Memory The Loss Tapes and 2 in the Caregiver Part of HBO Documentary The Alzheimer's Project, only TWO of us are alive today.

Yes my life sucks just like the others with this disease. I want it over, i know what still lies ahead and it ain't the golden years. Yes more people are speaking out, but they have money and prestige on careers so they are important. The people in the know say there are over 5.4 million of us in the US, According to the American Health Assitance Foundation approx. over 500,000 will join us in 2011. Well now I bet there are over7-8 million in this country in this world of mine. All those that are hidden and not talked about shoved into the darkness because this still is widely seen as mental illiness rather than the disease that it is. I know organizations are getting out the word. We do you people unite into one voice and let it be heard through out the land?

God Bless & Keep You & This Country of Our!
joe

Friday, October 14, 2011

My Disease, Alzheimer's is relentless!

I hvae not written lately because I have not been able to.  To this point i have only really suffered some of the affects mentallly of the disease and the physical has gotten worse. Back brace, a scootter chair now, tremors higher dosages of meds for pain and to keep me somewhat calm. Now i ned the wrife to help me use the remote of all fricken things. I still sit at the dinner table and am not sure what I am doing, i am getting lost more and more in conversations. Hell i am starting to gorget to turn this thing on let alone post.

I keep getting sites from people tat want posted on here, but i have to read them and ask Lynn if they fit, i owe that to you my family. Some I have just forgotten this is not a sales site, with once acception MY BOOK. then the money is doneated. I am lucky these days that I can stay awake for part of the day, i just drift and that is that for hours. I am getting to know less and less where I am and actually what I am doing.
Guess it is true some of us stay mentally ok until we start to reach the end of this disease. Then all of a sudden down the hill lickety split and it is over. Not only have most of those in the documentary Memory the loss tapes left us, but a number of those is the other parts that were featured with Alzheimer's have passed since the release in 2009 I think it was. Still I hear no voices for us, only those inside my head now, but they have interesting things to say and they agree with me msot of the time, sometimes they get out of hand.

Till next time you take care of your selves.

God Bless & Keep You & This Country of Ours!
joe

Monday, October 3, 2011

What do they know about Alzheimer's really?

I was reading best I coudl an artickle in AARP to day called: Diagnosing Alzheimer's by Katharine Greider. Interesting a lot about nothing, they know they have no tests or real meds to help us, gosh what a fricken surprise.  A Quote; "But scientists don't yet understand exactly what various results of biomarker tests mean for each patient or how they can be used to predict a patient's future. (i typed this from the article.)" Eli Lilly has a drugg Amyvid which is an injectible radioactive dye to stain amyloid deposits for use in PET Scans which may help.  quote from article: "The drugmaker says Amyvid would be for old people with mental decline wose diagnosis is uncertain." you judge that one. This is the best part of the article and only part that is truly reaal in my opinion.
"It will likely be many years before any test can predict precisely who really with get the disease, and when," says Frances, who has helped establish guidelines to iagnose mental disorders. "In the meantime, there will be lots of continued hype about progress in testing," hes says. "The best thing mos people can do is simply ignore it. Instead of worrying about Alzheimer's you should make sure to exercise you mind and body, eat well, don't drink too much, and enjoy life."

Exactly waht my neuroligist a number of years ago said to me, except she said dump the meds they are not going to stop anything. Keeep my shrink so he coulc give me the mental calming drugs and mode stabilizers I would need. And enjoy the time I had left.

Now to those who keep telling me just because you forget placing your glasses, keys, appointments, pens, etc. does not mean you have Alzheimer's. CORRECT, but when you do all these things daily, you have a fricken problem, bub.

I am now entering year 7 and the physciall parts are taking hold, no balance, bladder wants to be on self control, forgetting my meds, needing to hold the walls to walk, back brace so I am not in pain, meds increased to help with symptoms, may even have my ow Scooter Chair soon to I can go shopping and not die in the middle of the store, because I am in pain cannot walk, people just need to disapear, sweating getting confused (some fun). I truly hate it when people tell me hang in there it will be ok. Fuck it will not be ok I am dieing. That is ok, this is just not the way i planned things.

Well till next time take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

Monday, September 19, 2011

From Sunrise Senior Living


an email i received thought you might be interested.


Message = Hi Joe,

Sunrise Senior Living has just published a new guide for Alzheimer's caregivers. You can access/link to the Guide here: http://www.sunriseseniorliving.com/caregiverguide/

The Guide is part of a full slate of programming around World Alzheimer's Day. On Wednesday, Sunrise is inviting caregivers to attend free information sessions at its communities across the country. Here is a link to more info: http://www.sunriseseniorliving.com/ResourcesToRemember.aspx

Please let me know if you have any questions.

Many thanks,
Lanna Nguyen
for Sunrise Senior Living
(202) 775-0200

--------------------------------------------
Visit the new Sunrise Memory Care Blog:
http://www.sunriseseniorliving.com/MemoryCareBlog

God Bless & Keep You & This Country of Ours!
joe