Picks or Frontal Lobe Dementia (They Are The Same)

I was reading my friend Mary's blog today, it is on the right side. She lives in Canada and we have chatted back and forth for quiet awhile. She posted a site A Picture of Picks Disease from the inside out. 

I am posting the link here also.  You see I have AD and FTD. The article may help you understand me better, since it is writtten by a Dr. (you know my normal thoughts here) that suffers from FTD and explains things very well.  His feelings on the publics knowledge do not difffer from mine. But he is kinder than I, surlely he speaks the truth and feelings as he understands them, i just happen to be more direct and believe in the raw basics they speak of the horrors more directly.

I have read a new study that shows that the brain starts its' shrinking journey a full 10 years before the first diagnosis of AD is made.  Thank You oh Great One's. You have once again proven your swiftness of understanding and well deserved Paper Hanging Degrees.  I have said on this blog as I have been reminded that I knew things were wrong when I turned 50 tem yrs before my first diag. in 2004 by my pshycologist whose father died from AD.  The FTD and AD confirmed by a pet scan 2006/2007 do not remember. So Early Onset is not Early Onset but as i have thought more mid stage. These assholes do not talk to us they are to fricken smart.  Sme food for thought in reading the various ground breaking studies of the cause and cure and preventions of this disease, I have come to my own earth shattering and astounding cause for ALZHEIMER'S & OTHER DEMENTIA'S, they are Auto Immune Diseases, all the studies point that way since it is enzymes and the such causing plaque build ups and other nasties, and from the med shows and the experts these things are auto immune, beta amaloyid protiens, formed when enzymes attack white corpusle cells if I have my thinking cap on. Since I believe that Dementia in and of itself is a full body assault to my lowly brain poser of one cell, it spells auto immune. See I consuletd with DR. HOUSE and his whiteboard and he agrees. Trust me I am not making fun, i believe that this is where it lies.

God Bless & Keep You & This Country of Ours!
joe

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Brain Decay

Over the last few days both Lynn and i have ntice a dectease in my attention and ability to relate. am developing new language, but poor Lynn she understansd what I am trying to say, what does that tell you.

Also I referred to Alan Rogers,  well good memory joe his name is Alan Arnette, sorry big guy and he is.

Have a new guy Ken with us he has Lewy Body Dementia, maybe we can get him to blog here as well as his own, to help learn about his dementia. After all that is what this site is about.

God Bless & Keep You & This Country of Ours!!!!
joe

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What Day Is It?

Many of you probably find that an easy question. Well around here it is asked who knows how many times each day. Then I always ask are you sure. Of course minutes later I ask all over again. My wife smiles so pleasantly and reminds me one mor time. After awhile my daughter will just say Dad it doesn't matter. I guess she is right. See to me it is always someday but I am not sure which one. If I rember I will ask from now on "Is Today, Today". hopefully it will lessen some of the frustration. But first I have to remember , now that is another story.

Oh well life goes on and I just keep doing whatever it is I do. Thanks for listening, stay well and be good to yourselves.

God Bless & Keep You & This Country of Ours!
Joe

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WOW TO HBO, JUST WOW!

Last night and I need to do this while it is still fresh or atleast somewhat fresh in my brain, my Wife & I had the privilege of seeing the premier screeening in LA of the first part of the HBO series The Alzhiemers Project. What a job they did. I am humbled that I was a part of this movie. It truly shows a side that few people know about for thoose that live in this World of Mine, with me. It was done with style, grace, compassion and an understanding of what we go through.

AGAIN WOW!!!! Thank You for asking me to be a part of it.

God Bless You & This Country of Ours!

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Crossing The Line

Some of you may have read in other entries of mine of that line that those thaat live is this World of Mine cross. Itt is that point where you cease to be who and what you are and become another entity, if you do not physicallly pass on. Yes they say this is gradual and can take many years, true but sure, it can happen in a day. Here today gone tomorrow. I have over the years since joining this ever growing community of those with dementia have seen it take place just that way. One instance my wife told me of a fellow at one of the sites she works at who has been reading my blog and hopefully gainnned some insight and comfort that he was faultless. HIs mother was fine the one day and the very next (24 hours later), knew crap, nota and required suddenly 24 hour care. So many I have communicated with that suffer have had this take place with them, because I speak (this form) with their loved ones and caregiverss and they tell me of this suddeness. What say you perverers of great wisdom and knowledge, what is that "Duh". MY own life is growing shadowier, forgetting we said grace at dinner, turning on this beast, conversations in the middle of them, physically becoming a poster child for damage of the year or how to screw up your body in one simple lesson. My time is coming when ?????? but it is on its' way. I have told my family the day will come as long as I have any ability to think as who I am, that I will kiss them all and say goodbye and be gone. I believe I have the right to passon with some of me in tact and with some dignity. I refuse to have my family see me lying with my face in my food, as I have seen from working in Assisted living homes when doing computers. Looking into the trap souls of those folks through their eyes made my decision along time ago shoulod I ever be blessed with this disease. There is no cure and most likely will not be one, until they whoever they are talk to US and really learn. For their knowledge of the brain fits in the head of a pin. Bye for now until next time be good to yourselves.

God Bless You and This Country!
Joe

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Early Signs Differ

I have been asked whaat did I notice in the beginning that made me think something was wrong. On the side of my blog are places to go for the medical signs. However no two persons are alike. My Physciatrist and I talked ablut this he his opion, which to me makes sense, it takes so long to determine because it depends where you start. In other words how much grey matter do you have to statr with and have deminish. I noticed around 50, that multi tasking for me was starting to be confusing. I was able, to handle 10 projects at a time without notes and jump from one to the other and back again and never miss a beat. I was in the computer field (the beast of humanity). I started to have to pause to remember and even take notes, something I did not do, I would forget my pen, my glasses, what day it was, peoples names, stand up to do sommething and sit down again because I forgot. Eeach of these things in and of themselves is no big deal. But once I started to connect the dots, you know that old kids game where you go from one dot to another and a pickure forms, these things were happening daily and more and more often, I still functioned and got my job done, but I knew something was happening. Doctors or you are depressed, absent minded, forgetful, to much anxiety, all of a Sudden, no trauma had taken place. Things progressed slowly, but I could feel that my once active mind was slowing down and not because I was growing older. Talking to the text book guys was not helping. Finally after several years of pushing and refusing the bs answers my physcologist started to believe as I did that some form of dementia was occuring, because of my memory losses, inability to do things in minutes that now took me hours to days to do, because I forgot how. His dad had Alhziemers and he started and was the first to believe this was taking place with me. My Physc was not sure but felt that some form of dementia was occuring. My physician just plain ass was not sure, because I could still hold a conversation. Finally one day talking to him with my wife, the lights went on in his head there was something wrong because he was finally paying attention to the trouble I was having talking with him. We had done MRIs and EECs and Cat Scans, with no result, so he ordered a Pet Scan. Low and behold, his words get to a neurologist I can not help you, well none of them had been able to either. Armed with history at the PS, the new neurologist confirmed that I had Frontal Temporal Lobe Dementia along with inconsistent consistencies of Alzheimers (good one). so here I site be inconsistent and whatever else I am. All I know is that you need to look at the whole picture and stand firm and make your physicians or whatever explain why not and why something else and if their treatmenst do not work move on and kick down as many doors as needed until someone listens and starts to did. NOtes help and having someone with you that has known you for a time that can see the differences and help explaim them will help. Thankfully I have a wife that is stuborn as I am and keeps going until the truth is found. You may not like what you find but you have the right to know. I am not only having greater trouble with the grey matter but the physical affects are starting to settle in. Well you all behave and God watch over you.
God Bless
Joe

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A Couple Of Days To Remember

Well the last coupleki days have ben interestingl have been working with some very peststy people from HBO in the process of making a documentary on folks like us with dementia. I imagine that they willl call ita show on Alszheimers, I hope the y call a documentery on dementia, since there are two many forms and they are different and people think AD is transmittable.It hwas been a strain to say the least, buth they are actually very nice folks, but we cannot let themmm no that. It is hard to tell folks what it is like, little easier to write it, because you cannot seem me or me se you. I do not know what will happen with it if anything but it has been an experiencer, they could have at least left their one crew member here. We hared some real tense moments and some very enjoyable ones. They honored our table by having a turkey dinnner with us, which makes us feel good inside. But they did not eat any of the fat raid we wnt on. Theat means goodies.. WEllso mouch for now may be back soon.

God Bless You and the Country of Ours
Joe

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