Showing posts with label facebook. Show all posts
Showing posts with label facebook. Show all posts

Friday, June 1, 2012

Faces and Names don't always match.

The other day i do not remember when it was my younest daughter and i were siting on the couch talking and I looked at her and could not remember her name. Which is Kathryn. I tried to say it but i just was not able to. Finally it came out and she just looked at me and said you forgot my name, tried to cover it up, but she had me dead to rites. We did laugh about it, but it bothers me. Living with us she understands more about what is happening then the other kids and she just  I think the word is placates me, and says don't worry dad it is ok.

God Bless & Keep You & This Country of Ours!
joe

Thursday, May 3, 2012

Welcome to Our World, Bobby Vee.

Bobby Vee was a pop singer in the 1960s, diagnosed with Alzheimer's a year ago, he is now 69. See not an old farts disease. I welcmoe him to this World of Ours so that he knows, should he ever read this blog that he is not alone he now has a family of millions and growing by the minute.  So welcome friend.
I also learned last evening, I think it was, that my Son-in-laws father has been diagnosed with Stage 1 Alzheimer's six months ago. They just found out. The man is I think 10 years my junior.
Looks like what we have said all along from the beginning of this blog, Alzheimer's is not jus an old persons disease. Which the Alz.org finally in recent weeks has said, some folks are just slower than others.
My day has just been a day, mostly sleeping this morning, finally getting on this beast and ready to go off somewhere else.
If you do not want to comment, you can just rate a post, check interesting, thank you and what ever the other one is. At least that will let me know that the posts are read. Thanks for being there for me.

God Bless & Keep You & This Country of Ours!
joe

Monday, September 19, 2011

From Sunrise Senior Living


an email i received thought you might be interested.


Message = Hi Joe,

Sunrise Senior Living has just published a new guide for Alzheimer's caregivers. You can access/link to the Guide here: http://www.sunriseseniorliving.com/caregiverguide/

The Guide is part of a full slate of programming around World Alzheimer's Day. On Wednesday, Sunrise is inviting caregivers to attend free information sessions at its communities across the country. Here is a link to more info: http://www.sunriseseniorliving.com/ResourcesToRemember.aspx

Please let me know if you have any questions.

Many thanks,
Lanna Nguyen
for Sunrise Senior Living
(202) 775-0200

--------------------------------------------
Visit the new Sunrise Memory Care Blog:
http://www.sunriseseniorliving.com/MemoryCareBlog

God Bless & Keep You & This Country of Ours!
joe

Thursday, September 1, 2011

Yes It Is ALZHEIMER'S AWARENESS MONTH!

That means that i expect all of you to make people aware of us.  If need be take an Alzheimer's suffer out and about so people can see our faces and that we are REAL people. As much as you mya thnik many people still do not know about us, the disease yes, the faces no hide them away.

I have a challenge for all of you. GET MY BOOK FREE, just pay shipping and hanlding hell it is even signed, except the digital copy. After the cost of mailing the rest goes to Alzheimer's Disease Reseaarch Foundation. I get nothing, even on the sales my royalties go to them. You reall want to help well here is an eay way. You can even give the book to friends to view and follow. Only have about 5 hard backs, about 75 siftcovers, but can sen ou a hell of alot of digital copies. Yes I am assking for you to put you money to wor.  This book cost me thousands of dollars to get published, i never expected to get rich or my money back, let alone sell more than 2 or 3 books. Well giving them away and my royallties will never pay for the printing, have sold more than 3 though. Those in other countries i still charge what is on the list, although it cost not only the shipping you pay, but double thatn. So you money does not get donated since i go in th whole on it. But the message gets out and that is what my blog and book are all about.

Remember us this month, it is Our Time To Be Known!!!!

God Bless & Keep You & This Country of Ours!!!
joe

Thursday, August 4, 2011

I wonder why I bother to share my Journey!


As many of you know i get rather testy at times and just fell like saying to hell with it, you do not need to know this or how I feel.  Then i get an email like the one tha follows, this is why I keep trying to give us a voice.  Parts are edited since it came to my private email so no name of way to tell who it is from. But i did write back to the person, took me a short time then longer. I asked for a pic and name and dates for my memory page, but like soooooo many of you i receive nothin back. I post the pics so people will know that these folks lived, they gave, they touch others lives and that should be celebrated. well to the email i am getting on my soap opera box. by the way this has been on my todo list for sometime, i am quick.I was asked if i filled out the facebook form, YOU BET YOUR SWEET A__, I did.
____________________________________________________________________

Hello, My name is xxxxxx, and I'm a nursing student studying in xxxxxxxxxx, xxxxxx (Canada).  I watched The Alzheimer's Project documentary, and was very touched by your story.  I know you have probably heard this from so many other people who have read your story online, or watched this same documentary, but I would like to thank you so much for contributing your own experiences and stories to helping understand and find a cure for Alzheimer's.  I was asked to write an essay for one of my courses at school on anything I wanted related to disease and disease concepts.  I chose Alzheimer's because my grandfather passed away from A.D. 10 years ago.  I never had the chance to really get to know him, since his diagnosis occurred when I was only 2 years old.  By the time I was old enough to have memories of my own, he had already progressed to the very late stages of the disease.  He only spoke Italian, which I did not, thus I had very limited communication with him.  My memories with this man consist of visiting him at the nursing home, where he stared at me with blank eyes. I fed him and walked him around, and told him stories.  When he passed away, I felt like a part of me had been ripped out of my chest, and it was difficult to accept that I had not known him better, and could do nothing about that. I appreciate hearing from someone who can recount his own experiences with this disease. I do not have personal experience with this disease, and was only an observer to something that took away someone I loved.  However, I believe that it takes great strength to explain what it feels like to go through something that takes away from the person you have grown to become.  I do not know what has happened to you or your family, or if you crosses "the line" since the documentary was filmed. I would only like to thank you, quite simply, for giving me a story that my grandfather never was able to. So thank you, truly, from the bottom of my heart.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, August 2, 2011

Alzheimer & Dementia Suffers NOW IS YOUR TIME TO SPEAK OUT!!!!!


The following is an email I received, we who suffer are being finally a real chance to speak out, i have submitttted the form, this could very well put a face and a real voice to this disease. I ask you to join me.



My name is Ashmi, and I’m on the Facebook Marketing team. I love your blog. 

For Alzheimer’s Awareness month in September, we are partnering with the
Alzheimer’s Association to help raise awareness.

We're collecting stories on the theme of how people with Alzheimer's use
Facebook to find strength and cope- through knowing that treasured memories,
photos, and conversations are preserved on Facebook. We're trying to raise
awareness about how people who are suffering can learn about coping with
Alzheimer's in the modern day - perhaps through Facebook as a place to revisit
and secure those memories and identities.

If you are interested in sharing your story with us on this topic, please let me
know. We’d love to raise awareness about Alzheimer’s. I created an online form
where you can tell your story: http://www.jotform.com/form/11850317172.

Please let me know,
Ashmi


God Bless & Keep You & This Country of Ours!!
joe

Sunday, September 20, 2009

The Friendship Connection

When Whitney and her friend Mariah donned their balloon hat, it reminded me of how we are connected to our friends. Don the Balloon man’s hat-for-two gave the friends a different kind of connection at our Sedalia Memory Walk this year.

Friendship connections have evolved since my friend Sharon and I wrote notes in study hall. To keep our words private, we wrote them backwards and held them up to a mirror to read them. Now people email, text, Twitter, or use Facebook. Many of us have cell phones with nationwide plans and think nothing of calling someone across country to chat for a few minutes.

Not too long ago, I was riding with my daughter-in-law and my grandkids were texting each other—and they were both in the backseat. Of course, one advantage of text messaging is that siblings can have a disagreement without getting the parents involved.

I finally caved to the pressure and opened a Facebook account. It is a good way to stay updated on what is going on in my friends’ lives. I’m sure all friends on Facebook are not necessarily friends in the true sense of the word. Many of these “friends” are only casual acquaintances. A person is not a friend unless we care about what happens to them, we keep their confidences, and we overlook their faults. We support our friends and celebrate their successes without a twinge of envy.

When we meet people, we feel an immediate connection with some but not others. Our friends aren’t necessarily mirror images of ourselves. Sometimes we are drawn to others because they have a trait or skill we lack but admire.

I have been blessed with many friends. My involvement in my business women’s group, writers’ guild, work, and the Alzheimer’s Association brings me into contact with a lot of talented people. A combined effort to support a cause forges a lot of other personal differences to create a bond.

The Memory Walk took months of planning, organization, leg work and fortitude. My sister-in-law, Ginger Dollinger, and team coordinator, Sheila Ream, logged countless hours of preparation. All this effort birthed a fun Memory Walk with music, balloons, face painting, raffles, prizes, and a cake walk.

Friends pitch in and help you when you need it. That’s what Connie Pope did when she saw we needed help at Memory Walk. Cindy stopped to visit while I signed books, casually bagged them and handed them out with a smile. Brenda called to let me know she couldn’t be at the walk because she felt she needed to stay with her gravely ill husband. Sheila gave me a comforting hug as we released our balloons at the end of the walk. These are just a few of the contacts I made with friends at one event.

My favorite part of Memory Walk is spending a few hours with family and friends—hugs, smiles, and a lifting of spirits as we connect with each other. Weeks, months, and years disappear when I greet a friend after a separation.

We don’t need a balloon hat to physically connect us to our friends. A real friendship connection is not diminished by miles and time. It has no boundaries or limits and lives deep within our hearts.