Faces and Names don't always match.

The other day i do not remember when it was my younest daughter and i were siting on the couch talking and I looked at her and could not remember her name. Which is Kathryn. I tried to say it but i just was not able to. Finally it came out and she just looked at me and said you forgot my name, tried to cover it up, but she had me dead to rites. We did laugh about it, but it bothers me. Living with us she understands more about what is happening then the other kids and she just  I think the word is placates me, and says don't worry dad it is ok.

God Bless & Keep You & This Country of Ours!
joe

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New Stuff for you.

If you look at the very bottom of the page when it opens you hopefulyl will see a new bar. Clickign on this will take you to differerent spots for Alzheimer's info. More has been added to the caretaker section on the side as well. ///////////////////////////////////There is a health news ticker on the right as well.  I have even added a contact button that you can ask me a direct question, which I will answer. do not quote me but i think i have to be on line not tested it yet. looking to bring a Facts and Question section as well. These have been in the months making I have trouble with this stufff now.
I find that there is more problems with my thoughts than before, i get confussed more, argue more because i do not untderstand things, i feel more and more left out, and really hate being told it is ok, because it is not. There maybe some professsionnal writing done for the blog, i am not sure of it as of yet. i am having more problems reccognizing people and knowing there names, family, friends, etc.
San Diego County Death rates
the chart will show that with figures through 2009 posted that Alzheimer's has reached number 3 in our county. I have heard on the news, but not been able to find the story to back it, that the number ONE leading cause of death among Women in the county is Alzheimer's. am trying to get new info, but i get lost in the searching, cannot remember what i am after and where i am or have beeeen.
Hope new stuff is useful to you.

God Bless & Keep You & This Country of Ours!
joe

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Alzheimer's - The Miss Understanding of Many People

What follows is a statement made of Caring.com by a supposed, i use the term very loosely and with distain, 20yr Professional Caregiver.  Persons words just prove what I have said here, we are not understood and we need a voice, and not from the professionals.  My response to this very ill informed ass and Lynn's is there also.  Pleaase understadn that most of the people on Caring.com are really people who care and are trying to undeerstand and get good information not this type of pure crap and idiocracy.

"it's an illness, it's difficult but it's not ugly, horrible, demeaning, cruel.

i know that no-one i ever look after ever could remember my name, but i remember theirs. and i walk beside them. that's what caregiving is. it's not oppositional, it's walking beside who this person actually is now. it's about forgiving them for their illness."

Frena wrote the above. Well maybe if you had the disease Lady, you might just find out how ugly, horrible, deameaning, cruel and damnable it is. See I suffer from it, so do not hand me that load of crap. And i do not need yours or anyone elses forgiveness for me having this disease. Expert you are not, you do not live in this world. I and over 5 million people at present in thsi countyr of orus do.

Joseph

/this is Joe's wife, Lynn, I am surprised that he was very calm in the response to your letter. This is a disease. It is ugly and horrible. Nobody wants to loose their minds and that is what happens with Alzheimer's. I do not know of anybody that has this disease who needs to ask for forgiveness from you or anybody else. The people who have cancer which is a disease don't ask for forgiveness why should the people who have Dementia. Maybe you need to rethink your profession.

Read more: http://www.caring.com/questions/tell-parent-she-has-alzheimers#ixzz1ITq5Jin3


God Bless & Keep You & This Country of Ours!!!
joe

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Compensation for Missing Brain Cells

I do think that my husband with his Vascular Dementia and Alzheimer's compensates well. I do think that Joe with his Frontal Lobe Dementia and Alzheimer's compensates well. Joe blogs and testifies in court.  Both men are fighting. They have got to be using brain cells from somewhere. I would like to see the researchers follow both men around.
A new article from the Alzheimer's Weekly hints at compensation. Use healthy brain cells to compensate, it reads here.

My husband puts up signs so he can help determine which bin is for newspapers and which is for glass and plastic. He takes notes on what the day holds and checks with the calendar. He thinks ahead about our camping and how the camping electrical circuits can be fixed. He recalls good times with Jake and Sally and wants to know when we will see them again. "When are we going to Disney", he wants to know.

God bless our sweethearts!

Carol

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A different world

I know or at least think that many thought testifying in court was a big deal. But I had an attorney that ledd me through it, the entire eveidence package in fron of me and a judge that was just supper and helped everytime i sat therre with a blank and confused look on my face. Trust me that is why it took two days for me. Mr. Computer Brain, buned out circuits.

In case you are wondering what the big earth movement in Oceanside was on i think Thursday, it was the shifty old whale here hitting the deck as I tripped and fell over the cat. Not so nimble anylonger. Good thing have exxtra extra padding on my butt.. However ever since then I have been really having difficulty talking and trying to make sensse of things. Lynn says my face is lost when we talk or i look at her. Really i am lost and really do not like what is going on.

Have found out in round about ways why my voice is not listened to or my book received, I am just not gentle, kind and nuturing in my telling of this fucking disease. I guess i need to be more politically correct I think is the phrase, well bite my ass, there is nothing grand and wonderful of about having this disease. I have one thing for me though, I stand at the gate to the world of mine and about every 70 or so seconds I get to greet a new friend, shake their hand and hug them and welcome them to the darkside.

Dr. Joe Sivak will be in Long Beach in April promoting his book and Lynn and i hope to be able to make it up there to see him and maybe harass him a little those physcs need it.

God Bless & Keep You & This Country of Ours!!!!
joe

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Just added a link

just posted a post with a link to Ken's last post. The stinker uses voice software.  He suffers from Lewy Body and has recently joined our family here. Please visit him and say howdy and make him welcomed.

I have been busy the last few dayss or weeks not sure which it is and not really sure what i have been doing. I look at thiss new beast of humanity that I have, and wonder why, i cannt spell or remember any better because of it. But it has a 23" screeen which i cannot see without my glasses either, so what the frick. Today has slipped away from me again.i just do not know what to tell you except that things are not bettter and are not going to be. At present nothing seeems to be working out right, but then again i am not sure what is right or not anymore. I know i am becomming very indifferent, whoa a big word there, to most everoything and every one around me and basically do not care.  Dr. Joe Sivack i think wrote on his blog or i heard it somwhere who the hell knows that we in this world i live in really become who or what we really are, if that be true i hope it ends soon. because i do not like who i am now, by the way i am not sure of who that is any how.

i would tell you who these two are but their names escape me. not really it is my wonderful wife Lynn and that bastard she now hangs around with. The woman just will not listen to anyone. Taken ????????

God Bless & Keep You & This Country of Ours'!!!!!!!!

joe

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Digital Copy of My Book

you can now purchase from my site the digital copy of my book.  Cost $8.00 usd for all.  you will neeed to download :Adobe Digital Essentials this is a free program for viewing digital Ebooks, much like Adobe Reader for pdf files.  All you need to do is click on the link and follow instructions.  Once you purchase my book I will email you a copy of it.  In case you have prooblems downloading the Adobe program I will also enclose the link with the book.  The digital copies are not autographed.

God Bless & Keep You & This Country of Ours!!!!!
joe

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Removing the Mystery: Top 49 Blogs About Parkinson’s Disease

I have posted an article from Health Care Technicians, it is also a permanent link of my site. Hope you find some help in it.  CLICK THE TITLE TO GO TO THE PAGE!

God Bless & Keep You & This Country of Ours!
joe

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Alan Arnette The Summit Climbet

Hi Joe,

It was great speaking with you. Here is the picture of me holding my mom’s picture on my last of the 54 Colorado 14,000 mountains. I will take this picture to the top of the 7 Summits as I climb them to raise awareness and $1M for Alzheimer’s research.

All the best,

Alan

 Alan will be attacking Mount Everest is a few weeks. It will be his third summit climb for Alzheimer's Awarness, fund raising and for caregiver support. I hope you all join me in wishing him wel. He is supposed to keep me posted on things and how they are progressing.

Alan has already accomplished what I have tried to for those of us that suffer to give us a voice, am i jealous, YES. He is giving a voice to Alzheimer's via his noterity for the climbs and the companies backing him. He has reached approximately 20 million folks so far, with radio talk shows, articles written and press coverage. He hopes to raise 1 million for Azheimer's Reasearch and the like.

Alan asked me if I would go to the mountains and I told him I did once and it looked at me and said "Fool Go Home"!

God Bless You Alan on your journey.

God Bless & Keep You & This Country of Ours!

joe

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Posting On This Blog

Only one rule to those invited to post, must be on dementia any type and you are free to be explicit. If a caregiver your thoughts, what you have learned, what you see, etc. One always has something to say even if it is I cannnot take this crap anymore.

Please check out the In Memory Of page udates. If you want a love one added, use email form on bottom, or email me at jolynn1@cox.net  I need name, birth year, date set free and a picture.

This is our home please join in. If you would like to be able to post here using above guidlines let me know? Remember abuse the priviledge and u will be cut off and so will your post. You know language is not always a criteria here, but honesty is.

I have had the honor of speakinnng to Alan Rodgers, the nut, who is climbing the 7 highest summits on each connntinent for Alzheimer's Awareness. I call him a nut because he climbs these mountains, me I fall down them. He is going to keep us in the looop. He has reached over 20 million people already through the presss coverage and talk shows he has been on.  Alzheimer's took his mother about 1½ yrs. ago, so this is his mission and is takking us with him.  May God go with you Alan.

God Bless & Keep You & This Country of Ours!!!!
joe

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Due to an on slaught of complaints, meaning your eyes are getting as bad as mine, I have once again changed the look of the blog. Hope you all like it. If not wait a few months or so and when I remember I may change it again.

Till then may all you "normal people", whatever that is, enjoy your life on the otherside of the fence, because it is really slippery over here on this side.

God Bless & Keep You & This Country of Ours!!!!!
joe

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My 300th Post - Mercenary This Time

As you may or may not be aware I have self published my blog through Xlibris Publishing and it was released in 10/2011. On the right hand side of my blog, yes I am promoting, hell I have to pay for this some how, you will find a new spot to buy my book, directly from me and I will even sign it for you. I got a limited supply from Xlibris at special pricing. The price includes any taxes and shipping costs for the price. If need be I will send Uncle Louie after you.
Some Humor Today:

EXERCISE  FOR PEOPLE  OVER 50

Begin by standing on a comfortable surface, where you have plenty of room at each side.

With a 5-lb potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute, and then relax.

Each day you'll find that you can hold this position for just a bit longer. After a couple of weeks, move up to 10-lb potato bags.

Then try 50-lb potato bags and then eventually try to get to where you can lift a 100-lb potato bag in each hand and hold your arms straight for more than a full minute. 

(I'm  at this level.)

 

 After you feel confident at that level,  put a potato in each bag. 

God Bless & Keep You & This Country of Ours!!!!

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