Showing posts with label alzheimers association. Show all posts
Showing posts with label alzheimers association. Show all posts

Tuesday, October 9, 2012

New Song

you can turn off my usual song if you wish. I do request you listen to the new song I have embeded from You Tube on the right. I cried.

I will be going on a road trip with my youngest starting next monday, so i may not post for awhile. We will head to Chicago, stopping at zoos on the way, and then seeing some of my old town. We are going to THE CHICAGO BEARS GAME vs detroit lions on the 22nd. Then will be heading home. To tell the truth i am afraid of this trip, i will be away from my security place, away from lynn, my fish and that which i am familiar with and that scares me.

In a prior post i believe a gave you a link to a new short film, Shattered Love, that is in production for you review. I have yelled long enough about a voice on this blog, so when asked I decided to put my money where my mouth is and have become an executive producer, on of some.

so there you hav it from the big brain in Oceanside, CA.

God Bless & Keep You & This Country of Ours!
joe

Thursday, March 8, 2012

GOD'S SENSE OF HUMOR

I got the following from a friend you all know i enjoy all forms of humor, I live with me that explains it.

While creating women, God promised men, that good and obedient wives would be found in all corners of the World.


And the HE made the earth round.


I have added some names to my In Memory Of page. I only have the names and dates they were set free, no pictures. I will add anyone's name to this list that you send me that past from any form of dementia. Pictures are nice, but any way we can remember these folks is great.


I am still looking for myself, i just keep missing me. Yesterday for the first time that i can remember Lynn yelled at me. I have to say it schocked me and made me sad. I guess I was taking to long to answer a question and kep on taling about other things and her frustration with me jsust blosommed like a flower. Oh well now it begins.


God Bless,
joe

Monday, September 26, 2011

Dr. Joseph Sivak's New Blog

I think I promised to list this. It is on my resource link now. You can click the title of this post and go there. I must first warn you as usual my frind Dr. Sivak, does not know how to keep things short. Well he is a phsch, but a nice person. Since he has one blob I Hate Alzheimer's and of course an auother I guess he thinks he need another blog, I guess it helps him, LORD knows he needs it.

God Bless & Keep You & This Country of Ours!
joe

Sunday, September 11, 2011

Our Day of Rememberance.

I think the world knows what took place this day and I do not need to tell you.  What has gotten me of late are the emails telling me to Remember The Flag. To fly it today. See these are the folks that go to church on the holidays only.  I am an American, my Flag flies 365 days a year day and night (it is lit for the night). I have flown the Flag for over 20+ years on my home. This is my heritage the 200+ years of this Country. I pray for all those who put their lives on the line daily for all of us World Wide so we can live free.

Enough of the soap box, my days have been crapy lately, i am getting fitted for mobility movers so I can go out with the family. Also to help get my fat ass off the couch, you know a cushion that liftss you up gentteling and puts you in a standing position. Yes my mind still for some reason still works, but the physical parts of Alzheimrer's are rapiddlly taking over. Brain wanders a lot. For the most part I stay in, sleep at the drop of a hat, watch my fish clean their ponds, which just wears me out. Still get lost in the days though. Just like trying to post here, i sit down and just starrte at the screen and forget what the hell i am doing here. Oh well at least i still remember to breathe.

You all bne good to yourselves and stay well.

God Bless & Keep You & This Country of Ours!
joe

PS the blessing includes all of you World Wide. I Forgot Dr. Sivak has a new blog when i find the emails i will post it.

Thursday, September 1, 2011

Yes It Is ALZHEIMER'S AWARENESS MONTH!

That means that i expect all of you to make people aware of us.  If need be take an Alzheimer's suffer out and about so people can see our faces and that we are REAL people. As much as you mya thnik many people still do not know about us, the disease yes, the faces no hide them away.

I have a challenge for all of you. GET MY BOOK FREE, just pay shipping and hanlding hell it is even signed, except the digital copy. After the cost of mailing the rest goes to Alzheimer's Disease Reseaarch Foundation. I get nothing, even on the sales my royalties go to them. You reall want to help well here is an eay way. You can even give the book to friends to view and follow. Only have about 5 hard backs, about 75 siftcovers, but can sen ou a hell of alot of digital copies. Yes I am assking for you to put you money to wor.  This book cost me thousands of dollars to get published, i never expected to get rich or my money back, let alone sell more than 2 or 3 books. Well giving them away and my royallties will never pay for the printing, have sold more than 3 though. Those in other countries i still charge what is on the list, although it cost not only the shipping you pay, but double thatn. So you money does not get donated since i go in th whole on it. But the message gets out and that is what my blog and book are all about.

Remember us this month, it is Our Time To Be Known!!!!

God Bless & Keep You & This Country of Ours!!!
joe

Saturday, August 13, 2011

To Good Not To Pass On.


Subject: The truth about Dorothy
 
[]  Is 70 years old.

 
Today, if  Dorothy were to encounter Men  with no brains, no hearts,  and nocourage  -
 
She wouldn't be in Oz - 




 [] 



She'd  be in Congress.

From a friend made my day, hope you find the humor.

God Bless & Keep You & This Country of Ours!
joe
 
 

Saturday, July 2, 2011

New Tests Ahead

Saw a new nerologist yesterday, she confirmed the tremor diagnosis, last one referred us to her. Also have a some type of nerve tests schedulled, she thinks there maybe nervve damage in my hands and feet. By the way the one that asked me if the last neuro was good looking, OH YES. This one is ok. Also being tested for sleep apnea, which we know I have but need new equipment means new measurements and the rest of the crap. The AD and FTD are not enough, now reach into the bag and see what else you find.

I am trying windows writer for this post not sure how it will work.

God Bless & Keep You & This Country of Ours!

joe

PS. In case I forget to post it Happy July 4th.

Thursday, May 19, 2011

Politician Tells It Like It Is

Newt Gingrich addressed the Alzheimer's Association as reported in this Advocacy Forum
"Between now and 2050, Alzheimer’s will cost the American government an estimated $20 trillion," said Gingrich. "Yet today, Alzheimer’s research is grotesquely underfunded. We need the scientific community to tell us the optimum they could invest in the next 10 to 15 years. What could they do if they had the resources they needed to save lives and save money?"
Gingrich gets the point you, Joe, have been making.

The Association also announced partnership with AIM (Alzheimer's Impact Movement). Go to AIM and you can find out how legislatures in your state voted on our issues. I plan to write our legislature individuals in Florida.

Hey, Joe, let's give them a heads up this week! Let's see if they follow through.

Carol

Tuesday, May 10, 2011

Yesterday i had blood drawn for tests for my physical next week. Then I spent the rest of the morning with my phsycologist . It was interesting, i have seen mim for nearly 7 years or so with breaks. We were talingi about the so called new advances in Alzheimer's and the new guide lines for diag. and treating. Funny part about it is as we talked he remembered I had said most of this years agao. And it has been posted on this blog in various forms over the years. I dound that all to be interesting that these so called experts only needed to talk to me or someone like me with the disease to get these startling new ideas and would have cost nothing. But what the fuck do we know, we are sick and mindless. But it does add credability to sites like mine, that we know what they cannot figure out.
I had another doctor write me recently, and the gist of what he said as I could understand it and questioning him on what he said is that he basically in simple terms agrees about the profession, and pharma companies, they all have their heads up their collettive asses and only promote drugs for money sake, because no matter how you want to cut it, the drugs DO NOT WORK! It is still about 8 years from diag. to the end drugs or no drugs. Our paper here had an article today about a former mayor, whose wife was diag. 7 years ago and just died. I know we hear about the 15 to 20 year sufferers, but they only exist because someone was smart enough to notice it in its infancy stages. The ten or so years of true EOA which most pros call DDSS, my term for Distraticed, Depressed, Stress, Syndrome.
I have my moments, what is difficult is getting what is in my brain cell, down to my fingers and then getting them to type what it is that is their. I have to do it quickly or if I think to long ( 5-6  seconds) it is gone and never gets said.
I know from some mail i got i insulted the Alz.org, but i want you to know that was intentional. Yes they help caregivers, they have done shit for me and I have contacted them many times. Even my local San Diego Chapter, who I gave copies of my book to for their lending library. And they wanted me to help with things and with the State, YES YES YES i said. Their ultimate answer and reuests have been complete silence, and I have heard this from others, including some Drs. I know their are good people working for them and my attack if you will is not on them, but what seems to be an organizzational lax of understanding the sufferer. Oh yes they know it is not pretty, but it does not seem that they have the first idea of the real terror in our minds and the loneliness and the difficulty we have telling anyone, because we know you do not know or understand this hell, you are not in it.
Time to shut up, i am getting to angry and feel like telling most everyone out there to fuck off, but we are family and I need you and I think you need me also while I can spout off and make some sense.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, April 26, 2011

New Findings - Interesting Support The Cause!!!

Causes

Bulletin from the cause: Support Alzheimer's Research

Go to Cause
Posted By: Fisher Center
To: Members in Support Alzheimer's Research

Significant Finding in Nine Months by Fisher Scientists

Scientists at the Fisher Center for Alzheimer's Disease Research at The Rockefeller University, led by Paul Greengard, Ph.D., and Jennifer Warner-Schmidt, Ph.D., have shown that anti-inflammatory drugs, which include ibuprofen, aspirin and naproxen, reduce the effectiveness of the most widely used class of antidepressant medications, theselective serotonin reuptake inhibitors, or SSRIs, taken for depression and obsessive-compulsive disorder and anxiety disorders. This surprising discovery, published online this week in the Proceedings of the National Academy of Sciences, may explain why so many depressed patients taking SSRIs do not respond to antidepressant treatment and suggests that this lack of effectiveness may be preventable. The study may be especially significant in the case of Alzheimer's disease. Such patients commonly suffer from depression and unless this can be treated successfully, the course of the illness is likely to be more severe. Depression in the elderly is also a risk factor for developing Alzheimer's disease and researchers have suggested that treating depression in the elderly might reduce the risk of developing the disease.

LEARN MORE: http://www.alzinfo.org/04/articles/fisher-center-scientists-show-anti-inflammatory-drugs-reduce-effectiveness-ssri-antidepressants

Call to Action

Support the cause. Be counted:

God Bless & Keep You & This Country of Ours!!
joe

Monday, April 18, 2011

Picks or Frontal Lobe Dementia (They Are The Same)

I was reading my friend Mary's blog today, it is on the right side. She lives in Canada and we have chatted back and forth for quiet awhile. She posted a site A Picture of Picks Disease from the inside out. 

I am posting the link here also.  You see I have AD and FTD. The article may help you understand me better, since it is writtten by a Dr. (you know my normal thoughts here) that suffers from FTD and explains things very well.  His feelings on the publics knowledge do not difffer from mine. But he is kinder than I, surlely he speaks the truth and feelings as he understands them, i just happen to be more direct and believe in the raw basics they speak of the horrors more directly.

I have read a new study that shows that the brain starts its' shrinking journey a full 10 years before the first diagnosis of AD is made.  Thank You oh Great One's. You have once again proven your swiftness of understanding and well deserved Paper Hanging Degrees.  I have said on this blog as I have been reminded that I knew things were wrong when I turned 50 tem yrs before my first diag. in 2004 by my pshycologist whose father died from AD.  The FTD and AD confirmed by a pet scan 2006/2007 do not remember. So Early Onset is not Early Onset but as i have thought more mid stage. These assholes do not talk to us they are to fricken smart.  Sme food for thought in reading the various ground breaking studies of the cause and cure and preventions of this disease, I have come to my own earth shattering and astounding cause for ALZHEIMER'S & OTHER DEMENTIA'S, they are Auto Immune Diseases, all the studies point that way since it is enzymes and the such causing plaque build ups and other nasties, and from the med shows and the experts these things are auto immune, beta amaloyid protiens, formed when enzymes attack white corpusle cells if I have my thinking cap on. Since I believe that Dementia in and of itself is a full body assault to my lowly brain poser of one cell, it spells auto immune. See I consuletd with DR. HOUSE and his whiteboard and he agrees. Trust me I am not making fun, i believe that this is where it lies.

God Bless & Keep You & This Country of Ours!
joe

Saturday, March 26, 2011

One of Our Family Needs Your Help

I got the following comment the other day, you all need to help this lady. You know me, it would be so what the hell do you think he is going through, toughen up and deal with it he has to 24/7. But I know you all will give her the guidance and advice she needs on her side of the fence.  Many of you probably know I am 66 and the old gal i am married to is a robust 50. So i hope she also replies to this. Enough of my ranting and carrying on. Help this lady!
_______________________________________________________________________________
Anonymous has left a new comment on your post "When is it time?":

Hello all

My husband was diagnosed 4 years ago with mild memory loss. We were doing fine until 6 months ago. all of a sudden he started packing boxes and telling me he has to go home. He was home. It continued to go down hill from there. So fast. That is what is so confusing to me. He is in a nursing facility now. The doctors advised me to do this. The big question of the day is, Do I feel guilty. The big answer is yes. we had our 35th wedding anniversary in January 2011. He was there and I was at home. This is so difficult. I look for a support group regarding early onset Alzheimer but there is no group for spouses. He just turned 69 years old. I'm much younger and very empty.
______________________________________________________________________________
This is a good family here and I am glad she found us.

God Bless & Keep You & This Country of Ours!

Sunday, March 13, 2011

Just added a link

just posted a post with a link to Ken's last post. The stinker uses voice software.  He suffers from Lewy Body and has recently joined our family here. Please visit him and say howdy and make him welcomed.

I have been busy the last few dayss or weeks not sure which it is and not really sure what i have been doing. I look at thiss new beast of humanity that I have, and wonder why, i cannt spell or remember any better because of it. But it has a 23" screeen which i cannot see without my glasses either, so what the frick. Today has slipped away from me again.i just do not know what to tell you except that things are not bettter and are not going to be. At present nothing seeems to be working out right, but then again i am not sure what is right or not anymore. I know i am becomming very indifferent, whoa a big word there, to most everoything and every one around me and basically do not care.  Dr. Joe Sivack i think wrote on his blog or i heard it somwhere who the hell knows that we in this world i live in really become who or what we really are, if that be true i hope it ends soon. because i do not like who i am now, by the way i am not sure of who that is any how.

i would tell you who these two are but their names escape me. not really it is my wonderful wife Lynn and that bastard she now hangs around with. The woman just will not listen to anyone. Taken ????????

God Bless & Keep You & This Country of Ours'!!!!!!!!
joe

Wednesday, March 9, 2011

Digital Copy of My Book

you can now purchase from my site the digital copy of my book.  Cost $8.00 usd for all.  you will neeed to download :Adobe Digital Essentials this is a free program for viewing digital Ebooks, much like Adobe Reader for pdf files.  All you need to do is click on the link and follow instructions.  Once you purchase my book I will email you a copy of it.  In case you have prooblems downloading the Adobe program I will also enclose the link with the book.  The digital copies are not autographed.

God Bless & Keep You & This Country of Ours!!!!!
joe

Tuesday, February 15, 2011

Posting On This Blog

Only one rule to those invited to post, must be on dementia any type and you are free to be explicit. If a caregiver your thoughts, what you have learned, what you see, etc. One always has something to say even if it is I cannnot take this crap anymore.

Please check out the In Memory Of page udates. If you want a love one added, use email form on bottom, or email me at jolynn1@cox.net  I need name, birth year, date set free and a picture.

This is our home please join in. If you would like to be able to post here using above guidlines let me know? Remember abuse the priviledge and u will be cut off and so will your post. You know language is not always a criteria here, but honesty is.

I have had the honor of speakinnng to Alan Rodgers, the nut, who is climbing the 7 highest summits on each connntinent for Alzheimer's Awareness. I call him a nut because he climbs these mountains, me I fall down them. He is going to keep us in the looop. He has reached over 20 million people already through the presss coverage and talk shows he has been on.  Alzheimer's took his mother about 1½ yrs. ago, so this is his mission and is takking us with him.  May God go with you Alan.

God Bless & Keep You & This Country of Ours!!!!
joe

Thursday, February 3, 2011

From The Mountain Tops - WE WILL BE HEARD!!!

From: Alana Rogers <ARogers@Biosector2.com>
To: JosephPotocny@yahoo.com
Sent: Thu, February 3, 2011 7:57:16 AM
Subject: National Family Caregivers Association Joins 7 Summits Climb for Alzheimer's 

Dear Joseph,

Knowing your interest in Alzheimer’s disease and family caregivers, I wanted to share with you a recent update on The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign. 

To kick off 2011 – The Year of the Family Caregiver – the Alzheimer’s Immunotherapy Program of Pfizer Inc. and Janssen Alzheimer Immunotherapy today announced the addition of the National Family Caregivers Association (NFCA), an organization that empowers family caregivers to act on behalf of themselves and their loved ones, as a supporter of The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign. 

NFCA joins the campaign just as alpine mountaineer and Alzheimer’s disease advocate Alan Arnette successfully summitted Aconcagua in Argentina, his second climb of the 7 Summits.  From the top of the summit, Alan dedicated his Aconcagua climb to family caregivers of loved ones with Alzheimer’s (you can listen to his audio dispatch here:http://www.alanarnette.com/blog/2011/01/29/audio-dispatch-from-aconcagua-5/). 

As you may already know, Alan is seeking to climb the 7 Summits, the highest peak on each continent, in order to help raise awareness of the enormous financial and personal burden Alzheimer’s places on people with the disease, their family caregivers and society.  With two summits completed in just a few months, Alan is well on his way to achieving his ambitious goal. 

Alan was his mother’s caregiver during the time she lived with the disease and knows only too well that the burden of caring for these people often falls to family members and friends:
·         In the U.S., an estimated 10.9 million unpaid caregivers see to the daily needs of people struck by Alzheimer’s
·         In 2009, these caregivers provided about 12.5 billion hours of care 
·         Caring for a person with Alzheimer’s can be overwhelming, and research shows that caregivers themselves are often at an increased risk for depression and illness
·         In the U.S. the indirect and direct costs of caring for people with Alzheimer’s are estimated to be more than $ 100 billion a year

Alzheimer’s disease, the nation’s 6th most deadly disease, gradually destroys a person’s memory and ability to learn, reason, make judgments, communicate and carry out daily activities like bathing and eating.  Alan hopes to raise $1 million to go directly to the Cure Alzheimer’s Fund™, and now NFCA to advance Alzheimer’s research and provide support for family caregivers, respectively. 

You can follow Alan’s journey and encourage people to donate to his cause by visiting www.Climb4AD.com orwww.Facebook.com/Climb4AD.  Additional information is included in the press statement below.  Please let me know if you have any questions or would like to speak with Suzanne Mintz, president and CEO of NFCA, or with Alan.

Best,
Alana

Alana Rogers
Biosector 2
450 West 15th Street, 6th Floor
New YorkNY 10011

212.845.5627
212.845.5650

*****************************************************

Below please find press statements issued on February 3, 2011 by Janssen Alzheimer Immunotherapy and Pfizer Inc. of the Alzheimer's Immunotherapy Program about The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign.

National Family Caregivers Association Supports Advocate in His Mission to Raise Awareness of the Burden of Alzheimer’s Disease

SOUTH SAN FRANCISCO (February 3, 2011) – Janssen Alzheimer Immunotherapy, together with its collaborator on the Alzheimer’s Immunotherapy Program, Pfizer Inc., is pleased to announce the addition of the National Family Caregivers Association (NFCA), an organization that empowers family caregivers to act on behalf of themselves and their loved ones, as a supporter of The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign.  NFCA joins the campaign just as alpine mountaineer and Alzheimer’s disease advocate Alan Arnette successfully summitted Aconcagua in Argentina, his second climb of the 7 Summits.  Through this campaign, Alan is seeking to climb the 7 Summits, the highest peak on each continent, in order to help raise awareness of the enormous financial and personal burden Alzheimer’s places on people with the disease, their family caregivers and society.  In addition, he hopes to raise $1 million.  The funds he raises will go directly to the Cure Alzheimer’s Fund™, and now NFCA to advance Alzheimer’s research and support for family caregivers, respectively.  It is estimated that more than 5 million Americans have Alzheimer’s and approximately 10.9 million unpaid caregivers see to their daily needs.

“The NFCA’s participation in this campaign spotlights the vital and expanding role of the Alzheimer’s caregiver, which is why we are so glad they have joined this effort,” said Stef Heylen, MD, Chief Medical Officer and Head of Research and Development for Janssen Alzheimer Immunotherapy, on behalf of the Alzheimer’s Immunotherapy Program.  “Through their participation in the 7 Summits campaign, NFCA will be able to reach even more family caregivers, providing education, support and a public voice.”

Prior to Aconcagua, Alan summitted the first of the 7 Summits -- Mt. Vinson Massif, the highest peak in Antarctica -- in December.  Coming up in April, Alan is planning to summit Mount Everest, the highest peak in the world.  The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is funding Alan’s climbs so that all money he raises from donations will go directly to the organizations he has selected.  You can track Alan’s progress or make a donation to one of his chosen charities by visiting www.Climb4AD.com or www.Facebook.com/Climb4AD.

“2011 marks the Year of the Caregiver, and as such, we are thrilled to join Alan in his efforts to raise awareness about Alzheimer’s and the burden it places on family caregivers,” said Suzanne Mintz, president and CEO of NFCA.  “We applaud Alan for his commitment, perseverance and tireless advocating for the AD community.”

Alzheimer’s disease is the sixth leading cause of death in the United States, with another person newly diagnosed every 70 seconds.  The burden of caring for these patients often falls to family members.  Last year, these family caregivers provided about 12.5 billion hours of unpaid care.

Alzheimer's Immunotherapy Program
The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is an equal collaboration committed to researching and developing selective products for the treatment and/or prevention of neurodegenerative conditions, including Alzheimer’s disease.

The Alzheimer's Immunotherapy Program believes that it is possible to reduce the burden of disease through early intervention in the illness.  It is dedicated to delivering comprehensive and integrated solutions that help address the needs of people impacted by Alzheimer’s disease.

Its research focuses on the beta amyloid hypothesis.  Scientific evidence supports the idea that preventing the accumulation and/or promoting the removal of beta-amyloid may have the potential to slow the progression of Alzheimer’s disease and help preserve function in people with the disease.  This theory is being tested inclinical trials.
                                                                                                         
Janssen Alzheimer Immunotherapy
Janssen Alzheimer Immunotherapy is researching, developing and commercializing selective products for the treatment and/or prevention of Alzheimer’s disease.  Janssen Alzheimer Immunotherapy is based in Dublin and has R&D facilities in South San Francisco.

National Family Caregivers Association
National Family Caregivers Association (NFCA) envisions an America in which family caregivers lead full and productive lives, free from depression, pain, isolation, and financial distress.  NFCA provides family caregivers support, education, and a public voice.

Cure Alzheimer's Fund
The Cure Alzheimer's Fund is a non-profit public charity established to provide funding for targeted research into the causes of Alzheimer’s disease.  The Cure Alzheimer’s Fund exists exclusively to fund targeted research to hasten the slowing, stopping or reversing of Alzheimer’s disease.

MEDIA CONTACT:
Ellen Rose                                                                                                           
Office: 650-794-2546
Mobile: 650-491-4901
erose@janimm.com                      
____________________________

National Family Caregivers Association Supports Advocate in His Mission to Raise Awareness of the Burden of Alzheimer’s Disease

NEW YORK (February 3, 2011) – Pfizer Inc., together with its collaborator on the Alzheimer’s Immunotherapy Program, Janssen Alzheimer Immunotherapy, is pleased to announce the addition of the National Family Caregivers Association (NFCA), an organization that empowers family caregivers to act on behalf of themselves and their loved ones, as a supporter of The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign.  NFCA joins the campaign just as alpine mountaineer and Alzheimer’s disease advocate Alan Arnette successfully summitted Aconcagua in Argentina, his second climb of the 7 Summits.  Through this campaign, Alan is seeking to climb the 7 Summits, the highest peak on each continent, in order to help raise awareness of the enormous financial and personal burden Alzheimer’s places on people with the disease, their family caregivers and society.  In addition, he hopes to raise $1 million.  The funds he raises will go directly to the Cure Alzheimer’s Fund™, and now NFCA to advance Alzheimer’s research and support for family caregivers, respectively.  It is estimated that more than 5 million Americans have Alzheimer’s and approximately 10.9 million unpaid caregivers see to their daily needs.

“As the number of people diagnosed with Alzheimer’s increases over the next few decades, so too will the burden of this devastating disease on family caregivers, which is why continued resources and support are essential,” said Gregory Rippon, MD, MS, Senior Director, Specialty Neuroscience, Clinical Development & Medical Affairs, Pfizer, on behalf of the Alzheimer’s Immunotherapy Program.  “We are excited that NFCA has joined this effort, as their participation expands the reach of the 7 Summits campaign to focus on this critical audience.” 

Prior to Aconcagua, Alan summitted the first of the 7 Summits -- Mt. Vinson Massif, the highest peak in Antarctica -- in December.  Coming up in April, Alan is planning to summit Mount Everest, the highest peak in the world.  The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is funding Alan’s climbs so that all money he raises from donations will go directly to the organizations he has selected.  You can track Alan’s progress or make a donation to one of his chosen charities by visiting www.Climb4AD.com or www.Facebook.com/Climb4AD.

“2011 marks the Year of the Caregiver, and as such, we are thrilled to join Alan in his efforts to raise awareness about Alzheimer’s and the burden it places on family caregivers,” said Suzanne Mintz, president and CEO of NFCA.  “We applaud Alan for his commitment, perseverance and tireless advocating for the AD community.”

Alzheimer’s disease is the sixth leading cause of death in the United States, with another person newly diagnosed every 70 seconds.  The burden of caring for these patients often falls to family members.  Last year, these family caregivers provided about 12.5 billion hours of unpaid care.

Alzheimer's Immunotherapy Program
The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is an equal collaboration committed to researching and developing selective products for the treatment and/or prevention of neurodegenerative conditions, including Alzheimer’s disease.

The Alzheimer's Immunotherapy Program believes that it is possible to reduce the burden of disease through early intervention in the illness.  It is dedicated to delivering comprehensive and integrated solutions that help address the needs of people impacted by Alzheimer’s disease.

Its research focuses on the beta amyloid hypothesis.  Scientific evidence supports the idea that preventing the accumulation and/or promoting the removal of beta-amyloid may have the potential to slow the progression of Alzheimer’s disease and help preserve function in people with the disease.  This theory is being tested in clinical trials.

Pfizer Inc.: Working together for a healthier world™
At Pfizer, we apply science and our global resources to improve health and well-being at every stage of life.  We strive to set the standard for quality, safety and value in the discovery, development and manufacturing of medicines for people and animals.  Our diversified global health care portfolio includes human and animal biologic and small molecule medicines and vaccines, as well as nutritional products and many of the world’s best-known consumer products.  Every day, Pfizer colleagues work across developed and emerging markets to advance wellness, prevention, treatments and cures that challenge the most feared diseases of our time.  Consistent with our responsibility as the world’s leading biopharmaceutical company, we also collaborate with health care providers, governments and local communities to support and expand access to reliable, affordable health care around the world. For more than 150 years, Pfizer has worked to make a difference for all who rely on us.  To learn more about our commitments, please visit us at www.pfizer.com.

National Family Caregivers Association
National Family Caregivers Association (NFCA) envisions an America in which family caregivers lead full and productive lives, free from depression, pain, isolation, and financial distress.  NFCA provides family caregivers support, education, and a public voice.

Cure Alzheimer's Fund
The Cure Alzheimer's Fund is a non-profit public charity established to provide funding for targeted research into the causes of Alzheimer’s disease.  The Cure Alzheimer’s Fund exists exclusively to fund targeted research to hasten the slowing, stopping or reversing of Alzheimer’s disease.

MEDIA CONTACT:
Victoria Davis
Global Media Relations         
Office: 212-733-3227
Mobile: 347-558-3455

# # #


Tuesday, February 1, 2011

My 300th Post - Mercenary This Time

As you may or may not be aware I have self published my blog through Xlibris Publishing and it was released in 10/2011. On the right hand side of my blog, yes I am promoting, hell I have to pay for this some how, you will find a new spot to buy my book, directly from me and I will even sign it for you. I got a limited supply from Xlibris at special pricing. The price includes any taxes and shipping costs for the price. If need be I will send Uncle Louie after you.
Some Humor Today:


EXERCISE  FOR PEOPLE  OVER 50
Begin by standing on a comfortable surface, where you have plenty of room at each side.
With a 5-lb potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute, and then relax.
Each day you'll find that you can hold this position for just a bit longer. After a couple of weeks, move up to 10-lb potato bags.
Then try 50-lb potato bags and then eventually try to get to where you can lift a 100-lb potato bag in each hand and hold your arms straight for more than a full minute. 
(I'm  at this level.)
 
 After you feel confident at that level,  put a potato in each bag. 

God Bless & Keep You & This Country of Ours!!!!

Monday, January 31, 2011

Questions To Answer!

Yes i am back the last several days have been like living in a fog, you know where you are but cannot see the land marks. O h well such is life.
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Hi Joe,
I watched both my parents succumb to Alzheimer's and the personal problems that came about because of this disease. But God is good and He supplied every need as they appeared. I have even written a book too - My Parents' Passing. I wrote it to open the eyes of those who want to know and not make the same mistakes that I made. I wrote it to help my family know should someone else in our family be diagnosed with it. I can see how a person could hide this for several years from even a loved one. Would it be in my best interest to know if I inherited this awful dementia and to be on medication? Will it slow the process down enough to make a difference? At what point does it not help? Lord please bless us with a cure. -Earlene
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I pulled Earlene's comment from one of my posts, I feel the questions assked a valid. Earlene I will give you my take and hopefully others will comment.
Is it better to know if you have inheretited this disease or one step farther will get it?
I think not why worry your liffe away about something you have no control over, inspite of all the experts. Live you life, laugh, have fun, eat right, get the sleep you need. Go to the Dr. when needed, but make him or her answer as to why they came up with the aliment why the tests are necessary and what do theey reallly mean. Remember this is your life.
Knowing will not slow down anything, hell they do not know what causes it, plenty of theories and studies all proving nothing. All the knowledge that you may or may not get it and worring about it the point the point where all this knowwing and worring and wasting you life over maybe getting it ends when you get it if you do. So let it go and live your life.
Remember The Alzheimer's Research Foundation, says thi:
Zero know Causes
Zero know Cures
Zero medicines to reall help, i agree.
Pleas rest your brain and live for today, tomorrow will take care of itself.

God Bless & Keep You & This Country of Ours!
joe

PS> Earlene should you join this family of ours we will welcome you with open arms, the 26 million of us world wide that have it would be your family, just think 26 million people that woudl share a bond with you and love you, what a blessing.