Our Day of Rememberance.

I think the world knows what took place this day and I do not need to tell you.  What has gotten me of late are the emails telling me to Remember The Flag. To fly it today. See these are the folks that go to church on the holidays only.  I am an American, my Flag flies 365 days a year day and night (it is lit for the night). I have flown the Flag for over 20+ years on my home. This is my heritage the 200+ years of this Country. I pray for all those who put their lives on the line daily for all of us World Wide so we can live free.

Enough of the soap box, my days have been crapy lately, i am getting fitted for mobility movers so I can go out with the family. Also to help get my fat ass off the couch, you know a cushion that liftss you up gentteling and puts you in a standing position. Yes my mind still for some reason still works, but the physical parts of Alzheimrer's are rapiddlly taking over. Brain wanders a lot. For the most part I stay in, sleep at the drop of a hat, watch my fish clean their ponds, which just wears me out. Still get lost in the days though. Just like trying to post here, i sit down and just starrte at the screen and forget what the hell i am doing here. Oh well at least i still remember to breathe.

You all bne good to yourselves and stay well.

God Bless & Keep You & This Country of Ours!
joe

PS the blessing includes all of you World Wide. I Forgot Dr. Sivak has a new blog when i find the emails i will post it.

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Yes It Is ALZHEIMER'S AWARENESS MONTH!

That means that i expect all of you to make people aware of us.  If need be take an Alzheimer's suffer out and about so people can see our faces and that we are REAL people. As much as you mya thnik many people still do not know about us, the disease yes, the faces no hide them away.

I have a challenge for all of you. GET MY BOOK FREE, just pay shipping and hanlding hell it is even signed, except the digital copy. After the cost of mailing the rest goes to Alzheimer's Disease Reseaarch Foundation. I get nothing, even on the sales my royalties go to them. You reall want to help well here is an eay way. You can even give the book to friends to view and follow. Only have about 5 hard backs, about 75 siftcovers, but can sen ou a hell of alot of digital copies. Yes I am assking for you to put you money to wor.  This book cost me thousands of dollars to get published, i never expected to get rich or my money back, let alone sell more than 2 or 3 books. Well giving them away and my royallties will never pay for the printing, have sold more than 3 though. Those in other countries i still charge what is on the list, although it cost not only the shipping you pay, but double thatn. So you money does not get donated since i go in th whole on it. But the message gets out and that is what my blog and book are all about.

Remember us this month, it is Our Time To Be Known!!!!

God Bless & Keep You & This Country of Ours!!!
joe

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First time to post...

First, THANK YOU Joe for inviting me to post on your page! I've been a big fan of yours since the HBO series came out...as soon as I viewed it, I knew I had to look you up on the big wide web.

A bit about me: I've been a nurse for 17+ years and have a very special place in my heart for the geriatric community. I've been an instructor for 8 years at a Technical school. I teach adult students in different allied health fields. After beating the floor for several years, I felt that it was my calling to pass on what knowledge I have to others. I believe that every person living in a nursing home or receiving home health care deserves to be treated with dignity and respect. As far as I am concerned, there just is not enough of that these days. It takes a very special, and patient person to care for elders, regardless of what disease process they are going through.

In my Certified Nurse Aide class, I have my students do a research paper on Elder Abuse and another on Alzheimer's Disease. Part of my teachings over Alzheimer's involves the HBO documentary - The Alzheimer's Project. And you, as well as the others that are and were inflicted with this monsterous disease. In case you haven't been told yet, thank you for allowing your story to be told.

Today after I took the students on the Alzheimer's Brain Tour, I showed them the documentary. I am always amazed at comments the students make. "I didn't know that this disease was that bad" or "What a horrible disease to get". My answer every month is always the same: Yes it is, on both accounts. There is no cure for Alzheimer's as of today, but my hopes and dreams is that there will be... soon.

A couple of weekends ago, I was on a flight to Houston, reading your book when the lady sitting next to me commented on the book cover. She said that it was an unusual picture, but it had a catchy title. I explained to her who you were and during the conversation, she informed me that she has a mother who has the dreaded disease. I gave her your website and I hope that she has had a chance to log on and look you up. The experiences and emotions that you are dealing with IS helping others out here Joe. How can it not? No one knows what a person with Alzheimer's is going thru or feeling unless someone tells us. You are doing that for all of us. Thank you for that.

I will post more in the coming days and as always, I look forward to reading your blog. Thank you again for inviting me to post.

Hug Lynn and hug yourself!

Judy

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Hears a thought

How many caregivers out there ask the person they are caring for "How do you feel about having this?" Or "How do you feel when you can't remember?" I know Joe has communicated to me and has been trying to do the same with all of the readers he has. It is a tough concept to ask thses types of questions. What Joe has been trying to communicate is that there is alot of fear with this disease. He has sat down to eat dinner and forgotten what it is he is doing and how to do it. He is scared of the person sitting next to him even though he has known that person forever. We do not go out alot because he is afraid to go past the edge of the property because he may not come back. This has made a man who would willing take on the South Side of Chicago to do his job, someone who jumps when I walk up next to him. What we take for granted the pepole who have this disease no longer can. Joe mentioned that I had taken a job as a caregiver. I was taking care of a perfectly sweet couple who both had AD. Everyday while I was there we had the same discussions. "Where is my car?" "Why can't I go to the bank?" "It is not fun getting old because you get no respect from anyone." I was sorry when I decided that I could no longer work for this company because I will miss the couple. Try listening to your client, loved one, neighbor. They are trying to say hear me but most of the time can't.
This is what Joe wants on the TV shows, and the newspapers, and the articles that are written about the disease. We all know that there are people dying and we know the medical field is working on a cure for a disease that they don't know how it starts. I have never heard of brain cells regenerating. But then I don't have a degree.
This is the story that needs to be told.
And if it sounds like he is kvechting so be it send him some cheese and crackers. He'll love it.
Lynn

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What's in a day

Let's start with how Joes' day goes. He gets up and goes in and turns on the computer. We moved it upstairs after our son moved out. Then he goes down and feeds and waters the bird. , takes his meds. That may or may not tire him out so he will sit and most likely fall asleep sitting on the couch. On Fridays that is towel day. He gathers all the towels in the house and washes, dries and puts them away. This could take anywhere from an hour and a half to all day because he has forgotten that he started them, and most likely will sleep again. He has his tacquitos several times in a day or not depending on wheter or not he remembers if he is hungry. We all ask him if he wants anything. Then there are the times that he is staring off into space and you ask if anything is wrong and he shrugs and says Ehh. Yesterday I asked him and he said that he was tired and did not care anymore. He wants to go home. It is getting harder for him to get his thoughts across and out to us. We play alot more charades. It is a good thing I know how his brain works or we would never have a conversation.
I think that is enough for now and will do more later.
Take care
Lynn

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The very Fabric of This Blog

Anonymous has left a new comment on your post "talking it out":

Hi there Lynn & Joe. You two sound like such a perfect couple. I'm sorry to say that I am not feeling that way about my husband and I. My spouse is 17 years older than me. He was diagnosed about the same time as Joe and yes, he seems to be experiencing relatively the same stages that Joe is going through. But I must confess, I am not feeling like the pleasant, let me make you feel better caregiver right now. The TV can only be on one of the two channels he chooses, Fox News or the Weather Channel and he doesn't even watch them. He, like you Joe, stares off into space. I try to strike up any type of conversation by commenting about what they have just shown on TV but he wasn't watching it and has no idea what they were talking about. Then he gets angry with me because he is confused about my comments. Lately, he is always crankey and YELLING at me and our extended family (5 children, 6 grandchildren) so they don't seem to come around anymore. I do go to work part time but he is insistant that I not leave him for more than a few hours at a time and demands that I not go anywhere away from him for any type of enjoyment. He doesn't even want me to go shopping to get things that we need, only to the grocery store a half mile away. He makes me feel guilty that he is afraid he will die alone and that I must be with him at all times. And I don't mean just at our home, he insists I be in the same room with him ALL the time. People say to me that I should get out and do things for myself. I agree. But the reality of life is that other people don't include you when they know you have to be home with your spouse all the time. They don't want to be the cause of his anger either. So here I sit feeling so all alone in the same room as him. I provide his meals, cut his hair, do the grocery shopping, take care of our expenses and accounts, pick up his prescriptions, do his laundry and clean up after him. He refuses to go ANYWHERE. Will not leave the house and wants me to do the same. I do understand that what he is going through is very difficult. But there is never any expression of gratitude or even acknowledgement that this is difficult for me to go through also. He used to tell me every night when we went to bed that he loved me, but even that has gone. Now I only seem to be the object of his anger and frustration. But all the same, I will keep on keeping on. I won't give up, but it does help to have an outlet to release my feelings, even if it is to someone I have never met and never will.

Joe, please give Lynn a hug and let her know how much you love and appreciate her. Sounds like you have a real piece of gold to hang on to through this journey we all pass through. My love to you both.

The above is a comment shared on this blog in respose to a posting by my wife Lynn, who I am 16 years older than. This lady is suffering just as Lynn is, I have become very combative, pig headed, a dick, paranoid and more withdrawn.  I have asked many of you to be guest bloggers for the above very reason. I cannot tell you how many 100's of emails I have received just like the above comment.  See all I can respond to these people is that I am sorry for your mate and you, but it is only going to get worse, a lot of comfort right, wrong, but it is the truth. I ask again that you help with posting. See even if you do the same thing everyday, you still do something a little different and that little difference could help someone like this lady. Me i love and appreciate your words of encouragement, but really they are gone as soon as I read them. You see I know that I will not get better only worse and it is doing that quite well. I am on a journey to keep an appointment with mental collapse and physical death that is the reality of it. It sucks, i hate how i feel, i do not like my distrust and disgust with others, but my emotions are no longer mine, I even do not feel bad anymore when I am a real pain in the ass or hurt feelings, my brain says tough crap to you. I hear and see things now that are not there, i do not even know when I am being talked to. Sex keeps rolling in my brain but the old pecker does not help out and I even say who the hell caaares to taht. I am getting like my good friend Dr. Joe Savick, making a 42 paragraph post. Thanks for listening shit has hjust built up in me and while I am thinking of it I am making this post.

God Bless & Keep You & This Country of Ours.
Joe

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My Forum

This is my forum to tell you how I feel and for you to talk back to me. It has always been my goal to make this not just about me, but about those that travel my journey before and after me. For you that care for us to tell how you feel. For those who contribute to leave posts on their take and views. I personally feel that my time to the line is close and I am having difficulty battling that.While I fight it, I know inside and have accepted the fact the fight is lost, but I am an honory bastard and just have to fight for the sake of it, win or loose does not matter, I just will not give this disease the satisfaction it wants. It is going to have to stomp on me and its shoes are getting heavier. Sometimes my posts are less than kind, but this is not a kind disease and I am trying to make people think about us in this world as real people not someone in a looking glass. This is my only forum to do that in. I feel caged and somewhat worthless at this point and that feeling will probbably woresen as time goes on. Well so much for now.

God Bless & Keep You & This Country of Ours!
joe

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Last Night

Last night I found myself in very difficult and not likeable sitution.  It was a rough day for me as it was. We sat down for dinner and I put my food on my plate and completely froze. I had no idea what I was doing or what to do, my wife tired to help put I just told her leave me, she put my fork in my hand and it just fel from it, I was in a state of, in betweenness, between here and there. I finally started eating but with my fingers and slowly got back to where I should be. I am about 4 or so years into this and it is taking hold now as it seems to do about this time.

Now I am a beginning to become really concerned and not so humorous, but life will go on and so will I. I guess that line of no return is getting closer and sneakier about things.

Well that is it for now from: us here in Oceanside, CA.

God Bless & Keep You & This Country of Ours!
joe

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From A Friend

Those of u that follow me know I love jokes about my condition, most are so true and funny. The one tha follows as many I got from a good friend who brightens my day often. Some may get offended but to damn bad, sit and think in through it is funny, our gov. would make this suggestion.

The phone rings and the lady of the house answers, "Hello."
''Mrs. Sanders, please"..
''Speaking."
''Mrs. Sanders, this is Doctor Jones at Saint AgnesLaboratory. When your husband's doctor sent his biopsy to the lab last week, a biopsy from another Mr. Sanders arrived as well."
"We are now uncertain which one belongs to your husband.. Frankly, either way the results are not too good."
''What do you mean?" Mrs. Sanders asks nervously.
"Well, one of the specimens tested positive for Alzheimer's and the other one tested positive for HIV. We can't tell which is which."
''That's dreadful! Can you do the test again?" questioned Mrs. Sanders.
"Normally we can, but Medicare will only pay for these expensive tests one time."
''Well, what am I supposed to do now?''
The folks at Medicare recommend that you drop your husband off somewhere in the middle of town. If he finds his way home, don't sleep with him."


see I would get lost.


God Bless & Keep You & This Country of Ours!!
joe

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It Is May

Just in case you wer not aware it is May. I know the calendar and my computer tell me so and they would not lie to me. Well maybe they would cannot trust them buggers.  At least my brain doesn't, it really does not anylonger link days weeks or months together, let alone years.

According to the wife I have developed my own language, not heard on this Earth is billions of years. It seems that when I cannot get out what I want to say, let alone remembber what it is, I express myself in sort of a babble type lanugaggge. She seems to understand me, I sure the hell don't, I wonder who has the problem. Her or me?  Since she can remember days, what to do and what she is talking about, she has the problem, those type of people do not live in my World. What the title has to do with this is beyond my mind. Sounded good.

Well we got some new young koi, will see how they do. I have to do water changes on the ponds, and I do not want to, it is such a pain in the ass. I guess the fishes like it, but not one has given me a fin to shake and say thank you.  They remind me of gov. officials take it, shove it up my butt and not even a kiss. Yes I am in a mood today, have been for awhile, never kno when they will come or go, seem to stay alot longer these days.

Take care, who knows i MAY see you soon.  There that is why the title. If you believe that your brain is as blue as mine is.

God Bless & Keep You & This Country of Ours!!
joe

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Messing Up

I have been making some changes, and probably should have had someone else make them. A few things have disappeared and others moved to second page with everything else.  Eventuallly I hope this will all get fixed right.

The skype call button now works after months of well disconnect. See they require you put in your correct user name, can you believe that. So finally I RTFM'd (back in my computer days that meant Read The Fucking Manual), and found I forgot a (.) period in my user name. So if you have tryed without success, it seems to be working now.

Hope to have thr rest of the mes cleaned up soon. Brain cell is getting overloaded.

God Bless You & This Country of Ours!
joe

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My Husband

Well now that I have been on the guilt trip for not blogging on his site I will explain why. Even tho I am a Leo I don't do a lot of roaring. Only when it counts like protecting my family or friends. For the most part I am a real pussycat. So you wonder how in the world I managed to survive 30 years with this man. So am I. He is a tyrant when it comes to having things his way. Always has been and probably will be till the end. But he is also a very loyal and loving friend. He is my best friend. He would fight for me. Since we have started this trip with his medical problems it has not been easy. Lately he is stubborn, mean, forgetful and just not with the rest of us. I have asked him questions and then he walks away without answering them. Or he will say something about me nagging him and getting rid of wives that nag him. Nagging consists of asking him what he wants to do on any given day.
So those of you out there taking care of a spouse or loved one just remember that we do it for love because who else is going to do it. Me, I tell him I am in it for the money now. So he should probably go back to work and earn some.
It is not easy and it will only get harder. But we are in it for the long haul. For those who can't stand up to the pressure do not feel bad. This world is not for everybody and the quality of care is more important than who gives it.
Take care
Lynn

I

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Reading Blogs

I spent sometine today reading some friends blogs and leaving my ever uplifting comments. But you folks that change your links, dam tell me so I can keep my list correct. I list you so others can read as well. Hopefully the remaining 6 people I have invited will have the balls to post and the others will continue.

• I would post daily if I could remember, but I start processing an entry and it starts one way, goes another, then turns left and winds up in the back forty, lost and me with it. Hope the changes are to you liking if not to bad, deal with it.
• Like a legal pleading now.
• Find days are slipping by quicker.
• The brain is getting bluer. Always wanted to be a blue blood, but I have obtained higher standards I am a blue brain, Ok a dumbshit.
• I was at my mens support group the other night, one of the guys there mothers has AD and wwe talk about it and he told me once that you could hardly tell, but his family insisted. He sees her every couple of months or so. Just got back and said he spent 4 hours with her and he was her brother and did not know what town they were in. He was a bit taken back. I asked is she about 4 years or so out from being labeled, he said yes and that she was on Aricipet (wonder drug, not). He asked me why and I told him the truth, she is on schedule. Also the A drug was for well toilet bowl cleaning in my opinion and many others. We hugged I cried for him and prayed for her to be set free soon. These are the real stories of AD not the commercials on TV or the movies, this is what it really does to us. Like a thief in the nite it suddenly takes what it wants when it wants.
• God Bless & Keep You & This Country of Ours! (The Rest of The World Needs Help Also)
• Joe

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The Gift of Alhziemer's!

Yes I know what gift? You need to have the disease to understand. See because of this blasted thing, I learned something today that I did not know, even with it starring me right in the kisser. I was reading over some emails I got because of the HBO Documenttary.

It brought people I knew from over 50 years ago back into my life. Of course they had to tell me how, when, why, etc., before the old noodle could grasp it. This may get long and run in circles, but what the hell, if I can run in them so can you.

You see I wanted most of all to be a good husband, lover, friend, father and someone the Lord would be proud to call his child. Well I feld very badly in my own mind and soul. So as I re read an email from my first girlfriend, the only one nuts enough to date me, Cheryl, I really realized how fortunate I am to have AD. You see, I have invited her to guest blog, but no response, what an asset to this site she would be. Now remember she dated me (poor lady), her mom has AD and Cheryl works for The Alz. Org. in Colorado what a wealth of help.  But more than that, after we broke ups I had 16 years of a real messed up life.  So you understand and I am not sure I do, she was about 5'6"  115#, brown hair, brown eyes and nicely, well very pleasant to look at, not what a memory, she sent me a picture from that time, and a Leo. I always felt comfortable with her, but life goes on and people (me) screw up alot.  What does that matter to you or me, well I just described my wife of over 30 years. Now she is stuck with an AD patient and she is a Leo to, and I have asked her to post, but you know these lions the roar, but are really just pussy cats. Because of this and the special I have found that my family was my career and Mr. How Smart Am I, was not even aware of it. Cheryl and the rest of you have shown me that and I am well pleased inside.

Still confused and not sure what I will do from moment to moment but I am having quiet an adventure, and sometimes it is pretty rotten. Just spent a week isolated to my self and not really talking to anyone, without being short and less than Kind. I find that, at least i do, just wip back without concern of what I am saying. From those I tak with that have this disease seem to do that alot to. Well enough of me for now. Be good and take care of yourselves.

God Bless You & Keep You & This Country of Ours! (The World Needs Him To)
joe

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New Link Added

First let me say that if you have not tried Google Chrome, you might want to, much faster.

I have added a link to the Beijing Tiantun Puhua Hospital today. This may seem strange to you, but I figure if they can use this blog as a source for them in China, least I could do was add them to my links. They contacted me, let me say that kind of took my socks off.

I needed their contact, the last couple of days have been very uncomfortable and less then memorable and they made my day. It has been difficult to know where I have been, but I know I have not been with my family or my own brain, but that is life with AD and any dementia.

God Bless & Keep You & This Country of Ours!
joe

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Frustration Reigns!

This week has been a difficult week for me. Just toooooo much family and kids. Good thing I have additional meds to take or I woud not have kept things to gether. I love my family, but I am becoming less tolerant, more mouthy, angry and pissed mor easily. I have a grate deal of trouble controlling my mouth and emotions lately.

I want to thank the two who have taken the opportunity to guest blog here. I have invited several that I thought could add to the thought processes found here on both sides of the fence as it awere.  But it seems that some old "friends" choose not to. Everyone has something to offer. Even if it does not agree with what is felt here. That is what this blog is about. Expressing feelings about having dementia and those careing for us. Neither side is neat and tydie, they both suck. I miss the days when I could think more clearly and express myself and do it (ego here) with little room for argument. Now I am lucky to blog at all. But no this you are all welcome even those who feel I am just an angry old fart, angry yess, old yess and I guess a fart as well.

I try to not talk about everyday things, but how this disease affects me overall. Yess some days I am on top of it others I cann't even find the stairs. I do find the walls I walk into them and excuse myself. Yes I have taken additional meds today, and am still shaking inside and my temper is border line, but the impression of my teeth in my tongue helps me keep quiet. I will be posting some emails that I have been give permis to, I ask because not everyone leaves comments.

Dr. Joe I guess the 10.00 bucks I paid you for your post paid off. Doc I really cannot walk on water, trust me, I can barely walk on the ground without it moving. But I thank you, my friend.

Well you all take care and be good to each other.

God Bless You & Keep You and This Country of Ours!
Joe

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May The Lord Bless You This Day & Always!!!!

From my family to yours a very Blessed and Happy Easter. To those of you who have entered this World of mine and do not celebrate the day, celebrate it with us for you are welcomed here.  To all I extend to you my hand so that YOU KNOW, THAT YOU, NEVER HAVE TO DO THIS THING CALLED LIFE ALONE EVER AGAIN.

Well I have started inviting some folks to be guest bloggers and we will see how this works. I have tried with a 24 hour chatroom for you, that was not used, different ways of talking not taken advantage of. See This is My Blog, but You are a part of it and I would like you to share in it. Only requirement is that you deal with dementia, as a caregiver, reasearcher or one on this road of unknown journey. Thanks Dr. Joe for being first to join in.

If you wish to join me and others here, just fill out the email form at the bottom of the right hand side and send me your email address and I will send you the info. Actually Blogger will send it for me.

Well the family has descended and I have found it necessary to retreat. I can only be a jungle jim for so long and I hurt. Body is definitely not what it once was, not that it was ever much to start with. My temper is much shorter and I have a hard time controlling me, so retreating works.

I feel lost today and not quite sure what the old brain wants besides to escape and be alone somewhere.

We may He Bless You All This Day and Forever.]

God Bless & Keep You and This Country of Ours and Yours!
Joe

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Before The Lynchers Come After Me!

Sorry I forgot they have discovered a GENE in some families that makes them more prone to AD. What a mystery, we knew it ran in some families, great rocket scientist work that there was a gene. So I ask, what does that do for these folks? Did you discover how the gene causes AD? (Yes or probably NO) Just how will this help those to follow me and others? I know I sound skeptic, but 100+ years and nothing. Imagine HIV in 1980's, we are now working and testing a vaccine for it. I am sorry for thoses who got the disease through no fault of there own, but sharing needles, unprotected sex, etc. your choice. I and those before me and with me have not had any choice in this. I could take on cancers and heart disease, but I think most of you know how I feel and why.

#7 Reported Killer - AD.  No cure, No Survivors. Only you can really help come out of the shadows and join others and beat down the doors of stigma, we are not lepoards which now can be stopped.

God Bless You & Keep You & This Country of Ours!
joe

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The Relentless Killer Alhziemers.

Normally I talk about how this affects me, today I like to beg the question, "Do You Really Know How This Disease Kills?"

I suggest to many of you your real and honest answer is not really. They tell us (the know it alls), that we forget things slowly, forget to eat, bathe, etc. and then linger and die.  Well I in my limited capacity suggest to you that they are chuck full of shit. Joseph forgets none of these things, that which is Joseph. What happens really is that my brain, that finally tuned sharp as a tact organ, does the fucking up.

You see when my stomache or body sends the enzymes and nerve messages to my glorious brain that I am hungry and need to eat, the damned thing no longer understands, it now speaks a second language. My bladder and intestines scream, so it listens to my ears of course they have nothing to do with those lower class forlks and well you can guess the result. As time goes on my brain no longer recognizes smells, so who needs to bathe?

Latter I die do to liver failure (the second death). Why? Well stupid upstairs answered the wrong phone call, not the one for instructions from the liver, but the bladder. Or my heart stops, why, because Mr. genious was trying to tell me my toe hurt. Get the picture. I will physically die as others because my brain will no longer under stand it's own unique coding system to keep me functioning. NOT ME, not my doing, the grey matter will be out to lunch. As the old saying goes, THE LIGHTS ARE ON, BUT NOBODY IS HOME!

What brought this to my train of thought was The Forbidden Planet, where the robot is given a command and it's electrical signals (the brain) went into turmoil and with nothing to counter act the order it would just go kaput.  So goes our brain, kaput. A bunch of ramdom requests made by our organs that just confuse the hell out of it, so they all shut down and so does it. Process not compatible with life, THE END.

Simple stated yes, but it is that basic. Now all the brilliant ones can tell me how wrong I am, with their fancy words that when boiled down to their basic elements will be just kaput.

You see I grow weary with all the BS of how much more we understand and all the strides made. I say to you then "WHY ARE THEIR NO SURVIVORS?" It is simple you do not have the answers and are not even close. You study rats and mice, I am neither, you study dead brains (wow they can speak), mine is still alive, study mine and others like me, maybe then you may get some real answers. I do not mean your normal 100 or 200 particpatnt studies, try one of 10,000 there are more than enough of us.

You all claim that about 5.5 million people (this country only) are affected by AD in this country, I submit you are wrong. I have AD and I affect, my wife, mother-in-law, five children, physc, GP, physcologist, 7 grandchildren and about 5 friends. That is a total of 22 people affected by me. Lets say that 5.5 million onlyy affect a total of 7 each, that means that 38,500,000 people are affected. Why are we still put on the back of the bus? I wonder what the cost in $$$$$ is, billions yearly, maybe that will catch your dead ears.

Till later take care and be kind to yourselves. My brain now hurts.

God Bless & Keep You & This Country of Ours!  
Joe

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My Brain on The Move.

I do not know what this one will be titled, because I am not sure what is really inside of me today.
I finished after quiet sometim a book called "When Can I Go Home". I was asked for what reason I am not sure to review it. The author can post my review if he wishes once I write it.

I will tell you that I think, once and awhile, that most people will miss the real hidden story of the book. Caregivers will find solice from it I am sure. But what struck me is that we that live in this world of AD are still put aside as the wicked stepchild. Not that, that was necessarily done here, but seems to me it was without knowing.

See I feel that way because folks say no your ok, and I am not, I never know where or who I am going to be. I started this blog in 2006 and I am not sure why anymore. I like hearing from folks but I really wish those who read this that live in this World of ever growing darkness and confusion would write me. Feeling alone in this journey is no fun and I know I am not alone but feel that way often. It is difficut writing these things trying to keep them readable.

It upsets me, again my problem, but people write you write back and never hear from them again. I am sure that I have forgotten to answer many an email. I can only same I am sorry, here to all that I have missed.

I wonder if you know that AD is the #7 killer. I think that if they put the real reason people die, like their liver stopped because their brain forgot to tell it to work and things like that happen frequently with this disease that it would very likely be #1.

My brain is just bouncing around right now so until later, be good to yourselves.

God Bless & Keep You & This Country of Ours!

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