New Song

you can turn off my usual song if you wish. I do request you listen to the new song I have embeded from You Tube on the right. I cried.

I will be going on a road trip with my youngest starting next monday, so i may not post for awhile. We will head to Chicago, stopping at zoos on the way, and then seeing some of my old town. We are going to THE CHICAGO BEARS GAME vs detroit lions on the 22nd. Then will be heading home. To tell the truth i am afraid of this trip, i will be away from my security place, away from lynn, my fish and that which i am familiar with and that scares me.

In a prior post i believe a gave you a link to a new short film, Shattered Love, that is in production for you review. I have yelled long enough about a voice on this blog, so when asked I decided to put my money where my mouth is and have become an executive producer, on of some.

so there you hav it from the big brain in Oceanside, CA.

God Bless & Keep You & This Country of Ours!
joe

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Gingrich to Alzheimer’s Association Advocacy Forum attendees: "We should be able to come together to address Alzheimer’s"

May 16, 2011

Former Speaker of the House and Alzheimer’s Study Group Co-Chair Newt Gingrich addressed more than 600 advocates to begin the second day of the Alzheimer’s Association Advocacy Forum. Throughout his hour-long remarks, Gingrich encouraged advocates to speak out and share their experiences with elected officials.
"The Constitution says, 'We the people,' not 'We the legislators,'’" said Gingrich. "One of my goals here today is to assure you that you have every right and responsibility to go out and tell elected officials what is going on. You are the living embodiment of the Alzheimer’s issue."
Gingrich emphasized several themes, including the ongoing need for bipartisan support of the fight against Alzheimer’s — an issue he embraced when serving as co-chair of the non-partisan Alzheimer’s Disease Study Group (ASG) with former Nebraska Senator Bob Kerrey. 'Alzheimer’s should be a totally bipartisan issue," said Gingrich. "Alzheimer’s does not just affect Republicans or Democrats, liberals or conservatives. It affects Americans. Therefore, as Americans, we should be able to come together with no partisanship to address Alzheimer’s."
Gingrich highlighted the high financial cost of Alzheimer’s disease to Americans both now and in the future. He emphasized the need for investment in Alzheimer’s research — and the potential cost savings if methods of treatment or prevention could be realized.
"Between now and 2050, Alzheimer’s will cost the American government an estimated $20 trillion," said Gingrich. "Yet today, Alzheimer’s research is grotesquely underfunded. We need the scientific community to tell us the optimum they could invest in the next 10 to 15 years. What could they do if they had the resources they needed to save lives and save money?"
To conclude his remarks, Gingrich shared his overall optimism that the dream of a breakthrough in Alzheimer’s research and awareness is on the horizon.
"I’ve seen things change," he said. "Every generation of Americans has been allowed to dream, and every generation has seen some of their dreams come true."
Following a brief question and answer period, advocates left with much to discuss.
"Anyone who is standing up and advocating, I respect," said Suzette Armijo, an Alzheimer’s ambassador from Mesa, Ariz. "He understands the impact of this disease. He has big dreams and broad ideals when it comes to this issue. It shows us as advocates that there are people on Capitol Hill who have those feelings. It gives us hope."

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Alzheimer's Association Advocacy Forum 2011
www.alz.org/forum
© 2011 Alzheimer's Association | www.alz.org | All rig

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Picks or Frontal Lobe Dementia (They Are The Same)

I was reading my friend Mary's blog today, it is on the right side. She lives in Canada and we have chatted back and forth for quiet awhile. She posted a site A Picture of Picks Disease from the inside out. 

I am posting the link here also.  You see I have AD and FTD. The article may help you understand me better, since it is writtten by a Dr. (you know my normal thoughts here) that suffers from FTD and explains things very well.  His feelings on the publics knowledge do not difffer from mine. But he is kinder than I, surlely he speaks the truth and feelings as he understands them, i just happen to be more direct and believe in the raw basics they speak of the horrors more directly.

I have read a new study that shows that the brain starts its' shrinking journey a full 10 years before the first diagnosis of AD is made.  Thank You oh Great One's. You have once again proven your swiftness of understanding and well deserved Paper Hanging Degrees.  I have said on this blog as I have been reminded that I knew things were wrong when I turned 50 tem yrs before my first diag. in 2004 by my pshycologist whose father died from AD.  The FTD and AD confirmed by a pet scan 2006/2007 do not remember. So Early Onset is not Early Onset but as i have thought more mid stage. These assholes do not talk to us they are to fricken smart.  Sme food for thought in reading the various ground breaking studies of the cause and cure and preventions of this disease, I have come to my own earth shattering and astounding cause for ALZHEIMER'S & OTHER DEMENTIA'S, they are Auto Immune Diseases, all the studies point that way since it is enzymes and the such causing plaque build ups and other nasties, and from the med shows and the experts these things are auto immune, beta amaloyid protiens, formed when enzymes attack white corpusle cells if I have my thinking cap on. Since I believe that Dementia in and of itself is a full body assault to my lowly brain poser of one cell, it spells auto immune. See I consuletd with DR. HOUSE and his whiteboard and he agrees. Trust me I am not making fun, i believe that this is where it lies.

God Bless & Keep You & This Country of Ours!
joe

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Alzheimer's - The Miss Understanding of Many People

What follows is a statement made of Caring.com by a supposed, i use the term very loosely and with distain, 20yr Professional Caregiver.  Persons words just prove what I have said here, we are not understood and we need a voice, and not from the professionals.  My response to this very ill informed ass and Lynn's is there also.  Pleaase understadn that most of the people on Caring.com are really people who care and are trying to undeerstand and get good information not this type of pure crap and idiocracy.

"it's an illness, it's difficult but it's not ugly, horrible, demeaning, cruel.

i know that no-one i ever look after ever could remember my name, but i remember theirs. and i walk beside them. that's what caregiving is. it's not oppositional, it's walking beside who this person actually is now. it's about forgiving them for their illness."

Frena wrote the above. Well maybe if you had the disease Lady, you might just find out how ugly, horrible, deameaning, cruel and damnable it is. See I suffer from it, so do not hand me that load of crap. And i do not need yours or anyone elses forgiveness for me having this disease. Expert you are not, you do not live in this world. I and over 5 million people at present in thsi countyr of orus do.

Joseph

/this is Joe's wife, Lynn, I am surprised that he was very calm in the response to your letter. This is a disease. It is ugly and horrible. Nobody wants to loose their minds and that is what happens with Alzheimer's. I do not know of anybody that has this disease who needs to ask for forgiveness from you or anybody else. The people who have cancer which is a disease don't ask for forgiveness why should the people who have Dementia. Maybe you need to rethink your profession.

Read more: http://www.caring.com/questions/tell-parent-she-has-alzheimers#ixzz1ITq5Jin3


God Bless & Keep You & This Country of Ours!!!
joe

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A different world

I know or at least think that many thought testifying in court was a big deal. But I had an attorney that ledd me through it, the entire eveidence package in fron of me and a judge that was just supper and helped everytime i sat therre with a blank and confused look on my face. Trust me that is why it took two days for me. Mr. Computer Brain, buned out circuits.

In case you are wondering what the big earth movement in Oceanside was on i think Thursday, it was the shifty old whale here hitting the deck as I tripped and fell over the cat. Not so nimble anylonger. Good thing have exxtra extra padding on my butt.. However ever since then I have been really having difficulty talking and trying to make sensse of things. Lynn says my face is lost when we talk or i look at her. Really i am lost and really do not like what is going on.

Have found out in round about ways why my voice is not listened to or my book received, I am just not gentle, kind and nuturing in my telling of this fucking disease. I guess i need to be more politically correct I think is the phrase, well bite my ass, there is nothing grand and wonderful of about having this disease. I have one thing for me though, I stand at the gate to the world of mine and about every 70 or so seconds I get to greet a new friend, shake their hand and hug them and welcome them to the darkside.

Dr. Joe Sivak will be in Long Beach in April promoting his book and Lynn and i hope to be able to make it up there to see him and maybe harass him a little those physcs need it.

God Bless & Keep You & This Country of Ours!!!!
joe

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Questions To Answer!

Yes i am back the last several days have been like living in a fog, you know where you are but cannot see the land marks. O h well such is life.
_____________________________________________
Hi Joe,
I watched both my parents succumb to Alzheimer's and the personal problems that came about because of this disease. But God is good and He supplied every need as they appeared. I have even written a book too - My Parents' Passing. I wrote it to open the eyes of those who want to know and not make the same mistakes that I made. I wrote it to help my family know should someone else in our family be diagnosed with it. I can see how a person could hide this for several years from even a loved one. Would it be in my best interest to know if I inherited this awful dementia and to be on medication? Will it slow the process down enough to make a difference? At what point does it not help? Lord please bless us with a cure. -Earlene
__________________________________________________________________
I pulled Earlene's comment from one of my posts, I feel the questions assked a valid. Earlene I will give you my take and hopefully others will comment.
Is it better to know if you have inheretited this disease or one step farther will get it?
I think not why worry your liffe away about something you have no control over, inspite of all the experts. Live you life, laugh, have fun, eat right, get the sleep you need. Go to the Dr. when needed, but make him or her answer as to why they came up with the aliment why the tests are necessary and what do theey reallly mean. Remember this is your life.
Knowing will not slow down anything, hell they do not know what causes it, plenty of theories and studies all proving nothing. All the knowledge that you may or may not get it and worring about it the point the point where all this knowwing and worring and wasting you life over maybe getting it ends when you get it if you do. So let it go and live your life.
Remember The Alzheimer's Research Foundation, says thi:
Zero know Causes
Zero know Cures
Zero medicines to reall help, i agree.
Pleas rest your brain and live for today, tomorrow will take care of itself.

God Bless & Keep You & This Country of Ours!
joe

PS> Earlene should you join this family of ours we will welcome you with open arms, the 26 million of us world wide that have it would be your family, just think 26 million people that woudl share a bond with you and love you, what a blessing.

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