Let's welcome Dana and Her Family

Dana Kruckenberg  has a blog called Today's Project where she posts when she can about her husbands battle with Alzheimer's and how she copes with it. Visit Her and I know you will all welcome her and her family into our extended family for strength, guidance and hard reality.


God Bless & Keep You & This Country of Ours!
joe

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The Physical Aspects of Alzheimer's

By now i wolud think that we all know about the mental trials that allll of us with this disease go thru.  Not remembering people, turning around and meeeting a new friend each time, wondering where we are, who you are, where is home, my glasses hell where are my pants.  Forgetting to use the bathroom timely oooh well. Spending and forgetting we did it, driving those close to us to exhaustion and we do not even realize it and in most cases do not care.  How rotten we can get and next minute the world is rosey to us and you have the problem. The list goes on and on and on.

But there is another side to this story, not being able to walk right anymore, cannot drive because forgetting what to do (our freedom is gone). Tiring easily from practically little effort. Standing one moment the next investigating the dirt on the floor or cracks in the cement. Trembling a good deal of the time, eyes get worse, food tastess funny, sleeping is a joke, not at night we go to the daytime, walking into things because we do not see them, winding up with cuts and the like because we do not realise that we have been injured, not eating just because. This is the other side of our world and much more but my brain cell is to empty right now to remember or clogd up, get the draino.

I find listing other things for you is easier these days then really talking to you anymore. I forget what I want to say, I sit down with this whole well organized thought out post in my brain somewhere, and it never shows up when I start, it goes walking down the street. I feel like i repeat the samethings over and over, but that is what happens here in Alzheimer's land.  It seems no matter how many times I am told yes we listen that no one really hears us. You suffer and all the books about you are considered to be by experts and people who know about this disease, but folks sorry you do not have a clue to this sise of the fence. I have pretty much lost sight of your side now also. My voice is becoming quiet and running out of its one time fire, i am worn out spent and just plain tired. I sit and wait for the bus to take me home most of the time, these moments of knowing and suddenly not are incredidablly painful and frustrating.I ramble on and on and on and cannot tell you what I really am talking about most of the time.

Well friends take care and be good to yourselves.

God Bless & Keep You & This Country of Ours!!
joe

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Alzheimer's - The Miss Understanding of Many People

What follows is a statement made of Caring.com by a supposed, i use the term very loosely and with distain, 20yr Professional Caregiver.  Persons words just prove what I have said here, we are not understood and we need a voice, and not from the professionals.  My response to this very ill informed ass and Lynn's is there also.  Pleaase understadn that most of the people on Caring.com are really people who care and are trying to undeerstand and get good information not this type of pure crap and idiocracy.

"it's an illness, it's difficult but it's not ugly, horrible, demeaning, cruel.

i know that no-one i ever look after ever could remember my name, but i remember theirs. and i walk beside them. that's what caregiving is. it's not oppositional, it's walking beside who this person actually is now. it's about forgiving them for their illness."

Frena wrote the above. Well maybe if you had the disease Lady, you might just find out how ugly, horrible, deameaning, cruel and damnable it is. See I suffer from it, so do not hand me that load of crap. And i do not need yours or anyone elses forgiveness for me having this disease. Expert you are not, you do not live in this world. I and over 5 million people at present in thsi countyr of orus do.

Joseph

/this is Joe's wife, Lynn, I am surprised that he was very calm in the response to your letter. This is a disease. It is ugly and horrible. Nobody wants to loose their minds and that is what happens with Alzheimer's. I do not know of anybody that has this disease who needs to ask for forgiveness from you or anybody else. The people who have cancer which is a disease don't ask for forgiveness why should the people who have Dementia. Maybe you need to rethink your profession.

Read more: http://www.caring.com/questions/tell-parent-she-has-alzheimers#ixzz1ITq5Jin3


God Bless & Keep You & This Country of Ours!!!
joe

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One of Our Family Needs Your Help

I got the following comment the other day, you all need to help this lady. You know me, it would be so what the hell do you think he is going through, toughen up and deal with it he has to 24/7. But I know you all will give her the guidance and advice she needs on her side of the fence.  Many of you probably know I am 66 and the old gal i am married to is a robust 50. So i hope she also replies to this. Enough of my ranting and carrying on. Help this lady!
_______________________________________________________________________________
Anonymous has left a new comment on your post "When is it time?":

Hello all

My husband was diagnosed 4 years ago with mild memory loss. We were doing fine until 6 months ago. all of a sudden he started packing boxes and telling me he has to go home. He was home. It continued to go down hill from there. So fast. That is what is so confusing to me. He is in a nursing facility now. The doctors advised me to do this. The big question of the day is, Do I feel guilty. The big answer is yes. we had our 35th wedding anniversary in January 2011. He was there and I was at home. This is so difficult. I look for a support group regarding early onset Alzheimer but there is no group for spouses. He just turned 69 years old. I'm much younger and very empty.
______________________________________________________________________________
This is a good family here and I am glad she found us.

God Bless & Keep You & This Country of Ours!

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I have a new name.

Yes thakns to you all I learned a new word.  I had to google it to find out what it meant, but none the less I like it. So i am KVECHTING, that makes me a KVECHTER. Yes a whinner, but I serve the wine, why do you not bring the cheese and crackers to the table?

Finally some of you let loose with what bothers you and I am glad, that is waht my blog is about, not only my journey and pain straight out, but you response straight out and back. No holds barred here. Do not be afraid of hurting my feelings with what you say, because I surely have no problem fighting back if it is called for.

I just want the real story about those of us in this World of Ours, told. Not by "experts", "researchers", yes "caregivers", etc. But by US!!! Yes you suffer the pains of helping us and watching us waste away to mere shadows of a one time person. Too many of those in my world are too afraid to say anything or are in denial and just do not want to tell anything.  Well we SUFFER greatly, we die many times, each day we die a little more, we forget who people are includdding our selves. I do not think you can really understand the anger and frustration of this. Sitting down to eat and you forgt how to use the fork or even what the fuck you are doing at the table. My own wife scares the shit out of me at time when she comes up to me, because at that moment, I have no idea who she it or what the hell she is doing in my house.

We do not go out much, I am afraid to leave my house or yards, because I may not return here, this is my safe place for me.

Well you all be good to yourselves.

God Bless & Keep You & This Country of Ours!!
joe

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Hello to all as we near the end of this year. I am still in February I have no idea where the rest of this time has gone or what has happended. As some of you know I attend a 12 step group and have for centuries to fight my disease of alcohol and am still sober some 37 years. I was at a ongoing meeting on Christmas Eve, we have what they call marathon meetings around certain holidays to add extra support, what made this special to me and has caused me to wonder if we have the stages of AD right, yes we have it starts and you die correct, but the inbetween seeems to be not so straight forward. I know I have written on my blog the stages, others have, Alz Org has, but you folks, my experience and what happended Christmas Eve tell me in my mind at least that there is no set inbetween stages actually, that we experience similiar things to a greater or lesser degree as suffers. I man shared at the meeting that his father had passed in the last week from AD and he was happy for him and said how he felt. I fortunately had the oppportunity to talk with the gentleman after the meeting, hugged him and told him I was glad his dad had been set free. We looked at each other and I know he was confused, hell I know that feeling, so I gave him my card that has my book info on it. We talked about how his dad was diagnosed about 3 years ago with it, for most of the time he was level had some problems then came the LINE CROSSING, 4 months ago when we knew no one and went downhill and died in the 4 month period from AD. He and I feel the same if we can prevent ourselves (he does not have it yet) from getting to that line to end it before. He saw the suffering of his father and the destruction on the family and does not want to go through that or put the family through it. Unfortunately his mother is at some point in the disease, where?????? Another lady joined us and told about her parents dying from AD a number of years ago and as I listened I could hear that her parents did not follow the so called stages either. Yes they had portions of them but kind of out of order. I see that in myself and think what master mind is comming up with this stuff. Maybe we need to revist how the disease really progresses, the middle part, we know that it starts and then we die. I know for me this is long, but I was very much touched and moved by these folks, I could see their suffering, but they were able to understand to a point my side. Especially when we talked of how they could get away from it and here I was at this meeting still getting support to help me not drink and I brought along old Mr. AD, i cannot get away from it not even a second.

Well I need to shut up, take care of yourselves and if I forget, Have A Very Happy New Year one and all.

God Bless & Keep You & This Country of Ours!!!
joe

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To You & Yours

From me and my family, to you and yours A Very Merry Christmas.

I remembered.

God Bless & Keep You & This Country of Ours!!!
joe

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Come & Join Us!!!!

Thank you for sending a message to the President. There is true strength in numbers and we need all the help we can get. Will you take a few moments to send out the message below? You can simply copy and paste it into a new email.

Again, thank you for your support.

Sincerely,
Brendan Burns
Associate Director, Advocacy
Alzheimer's Association


Dear Friend,
As you probably know, I'm an advocate in the fight against Alzheimer's disease. Right now there is a bill that has passed Congress that has the potential to change the course of Alzheimer's Disease.

The National Alzheimer's Project Act would launch a coordinated campaign within the federal government to overcome Alzheimer's disease. It would create a national strategic plan for America's 6th leading cause of death with clear objectives, accountability, and timelines.

Please send a message to President Obama asking him to sign NAPA. or go to www.alz.kintera.org/President

Thank you for your support,
joseph

Your message was sent to:

President Barack Obama

As you know, National Alzheimer's Project Act (S.3036) was recently passed by both the Senate and House of Representatives. As an Alzheimer's Association advocate, I respectfully ask that you sign the National Alzheimer's Project Act into law without delay.


The National Alzheimer's Project Act would launch a coordinated campaign within the federal government to overcome Alzheimer's disease. It would create a national strategic plan for America's 6th leading cause of death with clear objectives, accountability, and timelines. NAPA establishes an inter-agency Advisory Council that will coordinate and evaluate all federal efforts on Alzheimer research, care, institutional services, and home- and community-based programs. The national plan with outcomes, recommendations, and priority actions, must be updated and reported to Congress annually.

On behalf of the 5.3 million Americans currently living with Alzheimer's and their more than 11 million caregivers, thank you for your commitment to fighting Alzheimer's disease. I look forward to hearing from you regarding the enactment of the National Alzheimer's Project Act.

Sincerely,
Joseph Potocny
5435 Lariat Way
Oceanside, CA 92057-5517

PS> We look forward to your help.
God Bless & Keep You & This Country of Ours!!!!!
joe

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Once There Were Seven - Now??????

Many of you may remember the HBO special, specifically "Memory The Loss Tapes".  Both my wife and I have tried to find out how each of the perssons in the film were doing. However calling and emailing HBO brought not even a response of any kind jus SILENCE. I know my wife will hit me upside the head for this, but I guess they got their awards and that is that. I met these folks and they were oh so nice and greatfull for each of us letting them into our lives. It is not the actual people that filmed the part I was in that I am miffed at (being politically correct here), but those at the top who do not seem to really care beyond their fuckin awards, sorry wife but I had to let it out.


The film had the following folks in it:  Bessie Knapmiller, Fannie Davis, Yolanda Santomartino, Josephine Mickow, Cliff Hoffman, Woody Giest and of course me.


Theough research my wife was able to find out most of the information we wanted to know. Remember we all had been diagnosed for about the same number of years:
Bessie Knapmiller  set free 2/2010 she won!
Fannie Davis: unable to find out
Yolanda Santomartino: unable to find out, but her age and condition tell me she may not be with us anymore.
Josephine Mickow: set free 10/2009 she won!
Cliff Hoffman: set free April or May of 2008 before filming complete, he won!
Woody Giest: set free 3/2010 (believe this is correct) he won!
Joseph Potocny (ME): well your still stuck with me.


I have mxied emotions about my comrades, as I do not like to see anyone die, I am also happy for thsoe who won and beat this bastardly disease. I am also jealous that I am not with them. As for Fannie and Yolanda, I pray the Lord has you in his arms and comforting you.


I ask the families of those past on their permission to post a picture on my memory page of their loved ones and that they send me one:  jolynn1@cox.net


This is for me a sad day of posting. Take care of yourselves.


God Bless & Keep You & This Country of Ours!!!!
joe

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Locked In Time.

While this is still in my brain cell, the wife and I were talking last night, we are strange we do that. We were discusing yesterday and tomorrow.  To me there is no longer a tomorrow, it does not exsit and she asked me if I wanted it to come and I said not really or something like that. It just seems that tomorrow does not matter anylogner to me. Yesterday, well that is not 24 hours ago to me, but it seems like centuries and having no meaning. Lynn says I am in a time warp, who knows. All I know or thik I know is that time for me is right now, not 10 minutes from now or past just right now. It is a strange feeling, I guess my ½ brain cell is on overload.

I got a comment from a young lady in Romania and she was worried about her English. Well is was perfect and really young one, this is not the place to worry about it. As you read you will see what I mean. I welcome you and the other new folks I have heard from to this World of Mine. You never know waht will come out of my brain, and neither do I.

God Bless & Keep You & This Country of Ours!!!!
joe

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TO BE CONTINUED-------------

Well I am back today. Hope you all are well.  My day is a bit foggy and slow, but that is how things go. It is cool and rainy here, rain part very unusual for us, but welcomed.

Now tehn since you have wiated with great anticipation, pounding hearts and sweaty palms here is what is going on. First can you guess why the title to this post? Bet your wrong.

Living With Alzhiemer's (A Conversation if You Will), is in the process of being published. All of you have made this possible and have contributed in one way or another to it. Hopefully it will be out before xmas 2355, you know how slow and forgetful I can get. The Book as it is called, is not a novel or such, it is our conversation we have had over the last 4 years I think. Completely unedited and to the point. Yes it is this blog in print, comments and all, except the side materials as they appear.

So to you all Thank You, for your support, caring, sharing and just being there as I make this journey.

God Bless & Keep You & This Country of Ours!
joe

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What is in YOUR Refrigerator?

A few years ago we had the kitcehn remodeled. New Honey Oak Cabinets, with black nobs with dark cherry wood centers, the walls in a chocolate color, and a Brazilian Cherry Hardwood Floor, Black Stove & Microwave and a Black & Stainless Steel Dishwasher.  Then there sat6 are very old but working fine White Refrigerator. So for years you know who has been bitching for one to match, yes me. Well we just purchased a new one. Reasons, much more energy efficient then are 15 year old one, quieter, it has crushed ice a must for me, but most importantly it is BLACK and matches the decor. Happy am I, yes, except for opening it.

You see the last one the bottom drawers were solid and you could not see what was in them. This one they are CLEAR and you see everything. So what you say, well let me tell you there are creatures in those bins. I open the door and they stare at me, I know they want me. I cannot look at them, sill y yess, but that is how my brain reacts to them.Lynn just says Joe, get over yourself and deal with it. Not so simple, things like this are creeping into my life now and I can only wonder what lies ahead. The part of my brain that still understands logic laughs at me, but there is that growing part that sees and witnesses strange things and seems to have more control. The stuff in thre drawers seems to have eyes and moves when I look at it, not anyone else, just me and that is what really counts is how I feel about it.Well I guess I will just have to outfit myself for hunting when I go to the refrig that way I am prepaired for any attack.

Thank you all for being here for me.

God Bless & Keep You & This Country of Ours!!
joe


PS: PLEASE NOTE IN MEMORY OF PHOTOS NOW HAVE THEIR OWN PAGE!!!!!!!!

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Par Boiled Fanny

Yes yours truly master of home repairs and as dense as a tree was at it again today. One needs to know that me and ladders do not belong in the same universe, I get on one and by the time I reach the second step on it I am 30 pounds lighter. Today we started on clean the outside of the house, redoing the pation and th driveway. Well do to my immense brain power I got on the roof to wash down the roof and upstairs portion of the house.  Well sitting on the roof was a bit on the hot side. Did you know that when you spray down a roof that the sun has been beating down on the water turns to steam, well I do now. As this small river came rushing down the roof towards my secure spot, it reached my butt, yess my backside, and it cooked it. I felt like I was sitting ing boiling water, guess what DAH i was. I am fighting this disease the best I can, but the longer we go down the road, the more I find out what I do not know that I thought I knew, before I found out that I did not have the first idea about it.

Lately when I get up I am not able to finish crossing that bridge from sleep to being fully awake. I was talking with my ologist this week and he asked if I felt like I was is a fog.  Well the answer is yes, the above is proof of that.Things are just not clear to me any more and I stop more in the middle of things then I did before and wind up doing something else. Each day I decide to write on here and say I should write things down before I post so I remeber what it is that I want to say. GREAT IDEA, problem is I sit down to do it and forget what it was I was going to do, welcome to dreamland.

Well I need to stand right now so you all be good to yourselves and THANK You for helping me win the new award posted on our blog. This is your victory as well.

God Bless & Keep You & This Country of Ours!!!!
joe

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The very Fabric of This Blog

Anonymous has left a new comment on your post "talking it out":

Hi there Lynn & Joe. You two sound like such a perfect couple. I'm sorry to say that I am not feeling that way about my husband and I. My spouse is 17 years older than me. He was diagnosed about the same time as Joe and yes, he seems to be experiencing relatively the same stages that Joe is going through. But I must confess, I am not feeling like the pleasant, let me make you feel better caregiver right now. The TV can only be on one of the two channels he chooses, Fox News or the Weather Channel and he doesn't even watch them. He, like you Joe, stares off into space. I try to strike up any type of conversation by commenting about what they have just shown on TV but he wasn't watching it and has no idea what they were talking about. Then he gets angry with me because he is confused about my comments. Lately, he is always crankey and YELLING at me and our extended family (5 children, 6 grandchildren) so they don't seem to come around anymore. I do go to work part time but he is insistant that I not leave him for more than a few hours at a time and demands that I not go anywhere away from him for any type of enjoyment. He doesn't even want me to go shopping to get things that we need, only to the grocery store a half mile away. He makes me feel guilty that he is afraid he will die alone and that I must be with him at all times. And I don't mean just at our home, he insists I be in the same room with him ALL the time. People say to me that I should get out and do things for myself. I agree. But the reality of life is that other people don't include you when they know you have to be home with your spouse all the time. They don't want to be the cause of his anger either. So here I sit feeling so all alone in the same room as him. I provide his meals, cut his hair, do the grocery shopping, take care of our expenses and accounts, pick up his prescriptions, do his laundry and clean up after him. He refuses to go ANYWHERE. Will not leave the house and wants me to do the same. I do understand that what he is going through is very difficult. But there is never any expression of gratitude or even acknowledgement that this is difficult for me to go through also. He used to tell me every night when we went to bed that he loved me, but even that has gone. Now I only seem to be the object of his anger and frustration. But all the same, I will keep on keeping on. I won't give up, but it does help to have an outlet to release my feelings, even if it is to someone I have never met and never will.

Joe, please give Lynn a hug and let her know how much you love and appreciate her. Sounds like you have a real piece of gold to hang on to through this journey we all pass through. My love to you both.

The above is a comment shared on this blog in respose to a posting by my wife Lynn, who I am 16 years older than. This lady is suffering just as Lynn is, I have become very combative, pig headed, a dick, paranoid and more withdrawn.  I have asked many of you to be guest bloggers for the above very reason. I cannot tell you how many 100's of emails I have received just like the above comment.  See all I can respond to these people is that I am sorry for your mate and you, but it is only going to get worse, a lot of comfort right, wrong, but it is the truth. I ask again that you help with posting. See even if you do the same thing everyday, you still do something a little different and that little difference could help someone like this lady. Me i love and appreciate your words of encouragement, but really they are gone as soon as I read them. You see I know that I will not get better only worse and it is doing that quite well. I am on a journey to keep an appointment with mental collapse and physical death that is the reality of it. It sucks, i hate how i feel, i do not like my distrust and disgust with others, but my emotions are no longer mine, I even do not feel bad anymore when I am a real pain in the ass or hurt feelings, my brain says tough crap to you. I hear and see things now that are not there, i do not even know when I am being talked to. Sex keeps rolling in my brain but the old pecker does not help out and I even say who the hell caaares to taht. I am getting like my good friend Dr. Joe Savick, making a 42 paragraph post. Thanks for listening shit has hjust built up in me and while I am thinking of it I am making this post.

God Bless & Keep You & This Country of Ours.
Joe

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A Call For Volunteers!!!!!!

Hello,

I hope you all had a great holiday weekend! I wanted to get in touch to let you know about an Alzheimer's Disease research study and invite you to share this with Living With Alzheimer's blog readers.

Have you or a loved one ever experienced what it is like to be unable to recall things which were once so simple to remember? If so, you may know how devastating the effects of Alzheimer’s disease (AD) can be. An estimated 5.3 million people in the United States have Alzheimer’s, and every 70 seconds another person develops this disease! I am contacting you today on behalf of the Alzheimer’s Disease Cooperative Study (ADCS)  to raise awareness about AD and to encourage otherwise healthy adults with early complaints of memory problems to participate in the Alzheimer’s Disease Neuroimaging Initiative Grand Opportunity (ADNI GO). ADNI GO will build on the unprecedented momentum and success of the Alzheimer’s Disease Neuroimaging Initiative (ADNI), a landmark study to find more sensitive and accurate methods to detect AD at earlier stages and track its progress through biomarkers.

By being able to recognize changes in the brain, scientists hope to treat memory loss and other symptoms of AD before they appear, but the only way to recognize what these changes are and learn more about who is at risk is through the participation of volunteers. “We cannot end this terrible disease unless we know more about it,” says Dr. Paul Aisen, M.D., director of the Alzheimer’s Disease Cooperative Study (ADCS). “That is where the amazing volunteers, their friends and their families can make the difference in our success.”

Dr. Maya Angelou - the eminent poet, author, educator, historian and professor at Wake Forest University - is working with researchers to ask you and your loved ones to be part of the ADNI GO study that may help bring us one step closer to finding a cure. Click here to hear from Dr. Maya Angelou.

If you, a friend, or a family member is experiencing early signs of memory loss, you may be eligible to participate in this groundbreaking ADNI GO study. Please visit http://adcs.org/Studies/ImagineADNI.aspx or call the Alzheimer’s Disease Education and Referral Center at 1-800-438-4380 for more information on study sites in your area. I invite you to share this information with your blog readers to help shed light on this devastating disease, and encourage participation in ADNI GO.

Thank you for your time and please feel free to get in touch with any questions.

Sincerely,

Diana

 

Diana Bakowski

i-Blitz Interactive - Powered by WestGlen

1430 Broadway, New York, NY 10018

dbakowski@westglen.com

212.704.9134

 

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When Happiness Leaves & Shadows Come

As I walk on this journey of mine, although not alone, it does not seem that way anymore.

The wife and I have tried to have discussion about what is going on with me, but that veil of secrecy that has always been around me seem to be even thicker now. It is becoming more difficult for me to express what is happening and what is inside, because frankly I am not sure what the hell is taking place. I get more lost in my own head then I do elsewhere. Out and about with people is close to being a no no.

Lynn has asked me several times what would make me happy. Each time she has asked I come up with only one answer and that is to die or cross over the line. I no longer like this on the edge shit, it is to confusing, frustrating and just gets in the way of everything. I spend to much time crying inside and I have come to dislike me a great deal. But there really is nothing I can do about that, the disease is doing its job and the meds, even increasing them is not helping. Knew this time would come, just did not want to be here for it. But since I am not the ruler of the universe, be thankful, it is not in my time but his (I wish he would hurry).

God Bless & Keep You & This Country of Ours!!!!
joe

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I Applaud The Younger

So I am late getting to this, what the hell my fingers needed to be dusted off. What follows are a couple of emails that I want to post, one with full permission, the other not so identity will be with held from that one.

My name is Jordyn and I am twenty years old studying occupational therapy.  My professor had us watch the HBO Living with Alzheimer's documentary for my class, functioning of the older adult.  I just wanted to let you know that I really respect you for opening up your life to the world and writing so freely in your blogs.  How great is it that people of all ages follow your blog!  People from 15 years old to 100 years old are reading your story and I think that is truly amazing.  Hearing you say that your life didn't matter in the great scheme of things broke my heart...I just wanted to let you know that your life does mean something and I hope to follow your blogs from now into the future.  It's a wonderful thing you're doing.  Have a great day!  

Sincerely,

Jordyn

Hi Joe,

I am so excited that you e-mailed me back!  I would be honored if you posted my comment.  I actually just found out today that I was accepted into my Occupational Therapy program at Western Michigan University and I plan to work with older adults in my future career.  I hope you are your family are doing well.  I will keep you in my prayers.  Thank you so much for e-mailing me back.

Sincerely,
Jordyn Bell
Hey Joe! 

I saw you on the Swedish Channel 2 today! I heard
you talking about your illness and I feel for you thou I am only 18
years old. I hope that you can have a wonderful life and be happy all
your waken time with your loved ones. God knows you deserve it!

Greetings from Sweden!
Dear Joe
I continue to be thankful for your help in understanding
what my dad went through as we lost him to AD. Although he no longer
knows me when he sees me, he often talks about his daughter and has
wonderful memories of our time together. Although I miss my dad
terribly it is some comfort that I was able to give him memories of
being loved and appreciated. I pray those memories of time with your
wife and family will remain. And that you will continue to find days
when you are with us all. Take care
These are emails from younger people, those that are coming up the line to care for those that will follow me and are caring. This is what keeps me posting knowing that just maybe, just maybe, we are reaching people and someday maybe just by complete accident one of these and the others in Brazil, Sweden, Chile, Argentina, Australia and other places that have writen by accident just may find out why this disease is. I am not talking a cure or a medicine that MAY SLOW things down, but what really causes this.  Then and only then will the real breakthroughs come and not before. I applaud you young folks, just for your interest not to mention the course you are setting for yourselves. I WELCOME YOU TO MY WORLD.
God Bless & Keep You and This Country of Ours!
joe
PS. To my friend Dr. Joe, I am a dumb SOB, ask those who really know me, God Bless and Keep You my Friend.

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No Title

The las few days have beeen really rotten. I have been confused, frustrated and a pure asshole. I have hurt my wife, not physically. But through being just a complete moron and ass and I cannot explain why.

I need ot openly appologize to her, just doing it directly has not been enough for me, I have to share it with another human being and my God for me to be free from it.

I am afraid this is a sign of things to come, havig real problems with conversations, remembering things, I just zone out and get really confused over stuff.  It is no wonder what I did really got to Lynn, she has so much to put up with me now, not to mention the prior 30+ years. I feel myself slipping more each day, so far I can for the most part notice it, but there are days I have no idea what is what. So I leave you for now, tomorrow if wonder lust here remembers I have some emails to post, that give hope to My World that there will be otherss to watch over us as we wear the current ones out.

God Bless & Keep You & This Country of Ours!!!!
joe

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From A Friend

Those of u that follow me know I love jokes about my condition, most are so true and funny. The one tha follows as many I got from a good friend who brightens my day often. Some may get offended but to damn bad, sit and think in through it is funny, our gov. would make this suggestion.

The phone rings and the lady of the house answers, "Hello."
''Mrs. Sanders, please"..
''Speaking."
''Mrs. Sanders, this is Doctor Jones at Saint AgnesLaboratory. When your husband's doctor sent his biopsy to the lab last week, a biopsy from another Mr. Sanders arrived as well."
"We are now uncertain which one belongs to your husband.. Frankly, either way the results are not too good."
''What do you mean?" Mrs. Sanders asks nervously.
"Well, one of the specimens tested positive for Alzheimer's and the other one tested positive for HIV. We can't tell which is which."
''That's dreadful! Can you do the test again?" questioned Mrs. Sanders.
"Normally we can, but Medicare will only pay for these expensive tests one time."
''Well, what am I supposed to do now?''
The folks at Medicare recommend that you drop your husband off somewhere in the middle of town. If he finds his way home, don't sleep with him."


see I would get lost.


God Bless & Keep You & This Country of Ours!!
joe

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Before The Lynchers Come After Me!

Sorry I forgot they have discovered a GENE in some families that makes them more prone to AD. What a mystery, we knew it ran in some families, great rocket scientist work that there was a gene. So I ask, what does that do for these folks? Did you discover how the gene causes AD? (Yes or probably NO) Just how will this help those to follow me and others? I know I sound skeptic, but 100+ years and nothing. Imagine HIV in 1980's, we are now working and testing a vaccine for it. I am sorry for thoses who got the disease through no fault of there own, but sharing needles, unprotected sex, etc. your choice. I and those before me and with me have not had any choice in this. I could take on cancers and heart disease, but I think most of you know how I feel and why.

#7 Reported Killer - AD.  No cure, No Survivors. Only you can really help come out of the shadows and join others and beat down the doors of stigma, we are not lepoards which now can be stopped.

God Bless You & Keep You & This Country of Ours!
joe

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