Showing posts with label alan arnette. Show all posts
Showing posts with label alan arnette. Show all posts

Wednesday, September 26, 2012

My Friends.

today has been a rather calm day for me. after the last few weeks it is much welcomed. i still do not sort things out well, but i am a bit more aware i think this day. i think i have acquired sleep life away syndrome. I get up about 8 am do my morning stuff sit down and it is noon or one oclock already.  Next I know it is 4 or 5 diner time. Yes i sleep about 7 hours at night, but tht does not seem to matter. I have sat down a number of times this week to post, but as usual i just go dormant and cannot remember what i want to say or why i am at th computer. Lynn handles the check book now. I have to contact the DMV license renewal time. Although i do not drive anylonger, they will probably not renew my license, test and i will not get along. Just another part of one's life taken away by this fricken pain in the ass disease.  it is getting harder to keep some sense of humor and my mouth shut. It is what it is.

till next time take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

Thursday, May 31, 2012

Alan Arnette Completes 7 Summits Climb.


Climb4AD (The 7 Summits Climb for Alzheimer's)
Alan Arnette climbed the 7 Summits of the world in memory of his mother, Ida Arnette, who passed away from Alzheimer’s disease. Help Alan raise awareness of the growing prevalence of the disease and share your memories of caring for a loved one with Alzheimer’s. Email C4ADFBWall@biosector2.com with your story.

Support Alan as he has us.

God Bless & Keep You & This Country of Ours!
joe

Sunday, September 11, 2011

Our Day of Rememberance.

I think the world knows what took place this day and I do not need to tell you.  What has gotten me of late are the emails telling me to Remember The Flag. To fly it today. See these are the folks that go to church on the holidays only.  I am an American, my Flag flies 365 days a year day and night (it is lit for the night). I have flown the Flag for over 20+ years on my home. This is my heritage the 200+ years of this Country. I pray for all those who put their lives on the line daily for all of us World Wide so we can live free.

Enough of the soap box, my days have been crapy lately, i am getting fitted for mobility movers so I can go out with the family. Also to help get my fat ass off the couch, you know a cushion that liftss you up gentteling and puts you in a standing position. Yes my mind still for some reason still works, but the physical parts of Alzheimrer's are rapiddlly taking over. Brain wanders a lot. For the most part I stay in, sleep at the drop of a hat, watch my fish clean their ponds, which just wears me out. Still get lost in the days though. Just like trying to post here, i sit down and just starrte at the screen and forget what the hell i am doing here. Oh well at least i still remember to breathe.

You all bne good to yourselves and stay well.

God Bless & Keep You & This Country of Ours!
joe

PS the blessing includes all of you World Wide. I Forgot Dr. Sivak has a new blog when i find the emails i will post it.

Tuesday, May 10, 2011

Yesterday i had blood drawn for tests for my physical next week. Then I spent the rest of the morning with my phsycologist . It was interesting, i have seen mim for nearly 7 years or so with breaks. We were talingi about the so called new advances in Alzheimer's and the new guide lines for diag. and treating. Funny part about it is as we talked he remembered I had said most of this years agao. And it has been posted on this blog in various forms over the years. I dound that all to be interesting that these so called experts only needed to talk to me or someone like me with the disease to get these startling new ideas and would have cost nothing. But what the fuck do we know, we are sick and mindless. But it does add credability to sites like mine, that we know what they cannot figure out.
I had another doctor write me recently, and the gist of what he said as I could understand it and questioning him on what he said is that he basically in simple terms agrees about the profession, and pharma companies, they all have their heads up their collettive asses and only promote drugs for money sake, because no matter how you want to cut it, the drugs DO NOT WORK! It is still about 8 years from diag. to the end drugs or no drugs. Our paper here had an article today about a former mayor, whose wife was diag. 7 years ago and just died. I know we hear about the 15 to 20 year sufferers, but they only exist because someone was smart enough to notice it in its infancy stages. The ten or so years of true EOA which most pros call DDSS, my term for Distraticed, Depressed, Stress, Syndrome.
I have my moments, what is difficult is getting what is in my brain cell, down to my fingers and then getting them to type what it is that is their. I have to do it quickly or if I think to long ( 5-6  seconds) it is gone and never gets said.
I know from some mail i got i insulted the Alz.org, but i want you to know that was intentional. Yes they help caregivers, they have done shit for me and I have contacted them many times. Even my local San Diego Chapter, who I gave copies of my book to for their lending library. And they wanted me to help with things and with the State, YES YES YES i said. Their ultimate answer and reuests have been complete silence, and I have heard this from others, including some Drs. I know their are good people working for them and my attack if you will is not on them, but what seems to be an organizzational lax of understanding the sufferer. Oh yes they know it is not pretty, but it does not seem that they have the first idea of the real terror in our minds and the loneliness and the difficulty we have telling anyone, because we know you do not know or understand this hell, you are not in it.
Time to shut up, i am getting to angry and feel like telling most everyone out there to fuck off, but we are family and I need you and I think you need me also while I can spout off and make some sense.

God Bless & Keep You & This Country of Ours!
joe

Saturday, May 7, 2011

What price Alzheimer's

Many of you have lost loved ones to this disease, mothers, fathers, grandparents, friends, siblings and this list goes on. Mother's Day is tomorrow and to all Mother's long gone, still with us and to be, I wish you the happiest of times.

This is only one cost of the Disease, the losss of a loved one. Just think how we feel as we loose the loved one that we care about so greatly, ourself. Sounds selfish, but it is a reality. The other day to me it was just yesterday, because there is only today and yesterday for me, I walked into the "OFFICE", doe not everyone have to have one in their howse. A bedroom with a comuter in it, WOW. Anyway i walked in and the next i knew my wife was in helping me get up off the floor. See this 700 pound pigeon, does not remember how to fly to well. I bet i wennt down with grace, style and diginity and a thud. problem is not remembering what took place, one minute i am standing the next on the floor like a beached whale. I know this is only part of the disease and what is to come, but it is taking longer to get up and the aches take longe to leave and some now stay, they found a home. Good thing I drank heavily in my twenties, I learned how to fall and get back up. So I guess we are born we grow and start to return to our original days.
The more i look at this disease the more I feel it is auto immune in nature. I notice our Alzheimer's Organization here in the states touts the stars who have parents or sweethearts who have parents with the disease as being such brave soles and all the work they do for Alzheimer's. I say stick it up your ass you do nothing for us. At least Canada has speakers at meetings with the disease so that the true story comes out. I know I have a couple of friends up their speading the word at AD meetings by the Alzheimers Assoc. of Canada. Kudos to you folks.  Here forget it. See personal experience has shown me the nature of their commitmennt.  The San Diego Chapter, visited me the wife would remember when, it was shortly after the Walk here in Oceanside, I think. They met to discuss my book, the lady was very nice as i remember and felt that my story needed to be told and by me and that i would be of greqat service, i was even asked if i would be willing to speak and help, well I said yes. gave them books for their lending library. They would be in touch I was told, the bullshit put off statement. Well they went to the state capital for getting things done, i was asked originally if I would go, yes, however time came and pass and so did their silence. I get emails to help support them. I think not, you can have as much support from me as you have given me.  The Alzheimer's Disease Reasearch Foundation gets my help they at least are doing things.
Had to get this off my chest. It has been burning my ass for a long time now. Many good people work and volunteer for the Alz.org,, but the whole does not even come close to equalling the parts.
I have noticed lately that ai seem to be going away, that is the best way i can say it, seems like me and that around me are starting to part ways more and more each day.
I am rambling on so I will say so long for the time being.

God Bless & Keep You & This Country of Ours!!
joe

Tuesday, May 3, 2011

Dear Carol

Thank you for the post and kind words.  Well you assked me and you know me and my mouth so it goes babe:
10: Do not hover over me.
11: No sudden changes.
12: Do not ask how I am doing constantly.
13: Watch your being needy.
14: Do not patronize me.
15: GIVE ME MY SPACE AND QUIET TIME.

Now that you hrut my brain cell, I hope you are happy. Herb needs to dump ice water on you.

By the way folks there is a new email box, put you email in there and you will be notified each time a post is made, little easier. However comby anytime you are welcome.

God Bless & Keep You & This Country of Ours!
joe

Thursday, April 14, 2011

The Physical Aspects of Alzheimer's

By now i wolud think that we all know about the mental trials that allll of us with this disease go thru.  Not remembering people, turning around and meeeting a new friend each time, wondering where we are, who you are, where is home, my glasses hell where are my pants.  Forgetting to use the bathroom timely oooh well. Spending and forgetting we did it, driving those close to us to exhaustion and we do not even realize it and in most cases do not care.  How rotten we can get and next minute the world is rosey to us and you have the problem. The list goes on and on and on.

But there is another side to this story, not being able to walk right anymore, cannot drive because forgetting what to do (our freedom is gone). Tiring easily from practically little effort. Standing one moment the next investigating the dirt on the floor or cracks in the cement. Trembling a good deal of the time, eyes get worse, food tastess funny, sleeping is a joke, not at night we go to the daytime, walking into things because we do not see them, winding up with cuts and the like because we do not realise that we have been injured, not eating just because. This is the other side of our world and much more but my brain cell is to empty right now to remember or clogd up, get the draino.

I find listing other things for you is easier these days then really talking to you anymore. I forget what I want to say, I sit down with this whole well organized thought out post in my brain somewhere, and it never shows up when I start, it goes walking down the street. I feel like i repeat the samethings over and over, but that is what happens here in Alzheimer's land.  It seems no matter how many times I am told yes we listen that no one really hears us. You suffer and all the books about you are considered to be by experts and people who know about this disease, but folks sorry you do not have a clue to this sise of the fence. I have pretty much lost sight of your side now also. My voice is becoming quiet and running out of its one time fire, i am worn out spent and just plain tired. I sit and wait for the bus to take me home most of the time, these moments of knowing and suddenly not are incredidablly painful and frustrating.I ramble on and on and on and cannot tell you what I really am talking about most of the time.

Well friends take care and be good to yourselves.

God Bless & Keep You & This Country of Ours!!
joe

Monday, March 21, 2011

A different world

I know or at least think that many thought testifying in court was a big deal. But I had an attorney that ledd me through it, the entire eveidence package in fron of me and a judge that was just supper and helped everytime i sat therre with a blank and confused look on my face. Trust me that is why it took two days for me. Mr. Computer Brain, buned out circuits.

In case you are wondering what the big earth movement in Oceanside was on i think Thursday, it was the shifty old whale here hitting the deck as I tripped and fell over the cat. Not so nimble anylonger. Good thing have exxtra extra padding on my butt.. However ever since then I have been really having difficulty talking and trying to make sensse of things. Lynn says my face is lost when we talk or i look at her. Really i am lost and really do not like what is going on.

Have found out in round about ways why my voice is not listened to or my book received, I am just not gentle, kind and nuturing in my telling of this fucking disease. I guess i need to be more politically correct I think is the phrase, well bite my ass, there is nothing grand and wonderful of about having this disease. I have one thing for me though, I stand at the gate to the world of mine and about every 70 or so seconds I get to greet a new friend, shake their hand and hug them and welcome them to the darkside.

Dr. Joe Sivak will be in Long Beach in April promoting his book and Lynn and i hope to be able to make it up there to see him and maybe harass him a little those physcs need it.

God Bless & Keep You & This Country of Ours!!!!
joe

Thursday, March 17, 2011

My Friend Carol has asked for Armagedon.

Yes Carol you have asked me to bring the wrath of the Lord on us. Me making a video of me dancing, is like asking 40 Blue Whales to come ashore and dance, it would shake the ground and mountains of the world, then you said about maybe one of me singing.  Well i do not know if you ever herd a bull mose bellow, I am far worse, cows calve, horses fold, birds take flight and forest fall down. And gardening, my idea is dig a hole put the pott with the plant in the ground, if the grass or plants get brown spray paint them with green paint. I think he who made us all would not allow such a plaque on his world done by one like me, that is his job.  I have tried to play him in my life, got no where but arrested, told to go away, drunk and strung out for years, toooooo many battle scars to do that anymore, so my friend no way.

I have thought about making a video for You Tube, but as a suffer of this disease to verbaly tell folks about this world that i and many others live in. Not the crud from the experts and sorry caregivers, who really do not know who we are, but love us enough to help. People need to really know what it truly is like for us that suffer. Have tried with my blog and my book and well, my ego is now in the way and it has gotten kikced in the ass.  Maybe the video might help as my time grows shorter.

I know I sound damn good today, but I am in a rotten mood, spent two days in court testifing  in a fraud case that cost my son 56000 investment. Good thing the judge wa s a compassionate and understanding person, because you all know how I can say things and how blunt i get. I tired as hell no sleep, hours in the court room and me basically the only witness for two days, traveling to court being out with people which just drives me squirerler than I already am. Meds have not helped much but I am here today and I guess that is what counts. Confused as hell, not really knowing what I feel or want or much of who I am anymore.

I thank all of you that responded to Lynns last post, it shows what a family we are becomming and she really was touched. But why not she is with me, so you know she is sick to. But I do thank you, because what you did and said is why this blog is here and all are welcomed.

God Bless & Keep You & This Country of Ours!!
joe

PS> prayer for those who fight to keep us all around the world free, and for those suffering in Japan, they did not ask for this, no more than the folks in New Orleans asked for Katrina.

Thursday, March 3, 2011

Who Am I Now?

I no lonegr know wo Joe is. It is like i have become two different people. Actually the same but in two different worlds.  I feel like the Joe I was is sitting up in the balcony at a play. And i see the actors on the stage and they are me and those I know, but I am no longer part of their world or they mine.The world they are in, i am all screwed up in and walkand talk in circles. But the Joe in the Balcony is who he once was, this is getty scarey now. I knew things would happen but not this. I am starting to progress faster each day and it is harder to get here to write and tell you.  I have a new computer, an all in one, so only a screen sits on my desk. all is wireless, mouse, keybaord, internet and i have a remote. built in webcam and mic, touch screen, boy can i scrtew things up with this. The voice recogn. prog. andme are having a battle, it spells worse then me. Once I get it down if I do.My posts will be written by it, so you will get all he what the f***ks and things as I forget where I am and doing.

Will be making book available soon in digital format for everyone around the world to get. have to addd to my buy button.and stuff.

God Bless & Keep You & This Country of Ours!
joe

Monday, February 28, 2011

Alan Arnette The Summit Climbet

Hi Joe,

It was great speaking with you. Here is the picture of me holding my mom’s picture on my last of the 54 Colorado 14,000 mountains. I will take this picture to the top of the 7 Summits as I climb them to raise awareness and $1M for Alzheimer’s research.

All the best,

Alan
 Alan will be attacking Mount Everest is a few weeks. It will be his third summit climb for Alzheimer's Awarness, fund raising and for caregiver support. I hope you all join me in wishing him wel. He is supposed to keep me posted on things and how they are progressing.

Alan has already accomplished what I have tried to for those of us that suffer to give us a voice, am i jealous, YES. He is giving a voice to Alzheimer's via his noterity for the climbs and the companies backing him. He has reached approximately 20 million folks so far, with radio talk shows, articles written and press coverage. He hopes to raise 1 million for Azheimer's Reasearch and the like.

Alan asked me if I would go to the mountains and I told him I did once and it looked at me and said "Fool Go Home"!
God Bless You Alan on your journey.

God Bless & Keep You & This Country of Ours!
joe

Wednesday, February 23, 2011

Brain Decay

Over the last few days both Lynn and i have ntice a dectease in my attention and ability to relate. am developing new language, but poor Lynn she understansd what I am trying to say, what does that tell you.

Also I referred to Alan Rogers,  well good memory joe his name is Alan Arnette, sorry big guy and he is.

Have a new guy Ken with us he has Lewy Body Dementia, maybe we can get him to blog here as well as his own, to help learn about his dementia. After all that is what this site is about.

God Bless & Keep You & This Country of Ours!!!!
joe

Monday, February 21, 2011

Old Mems and New Ones

I have found that old memories aer stil there but they have no time stamp you might say, I can tell you about them, but part of the probelm is that two or three may get mixed together, facts are pretty good, but knowing exactly  which memory they belong to, well you have to guess. New memories, I have only about 2 days worth, they do not stay for long at all. In fact have trouble with telling you about this morning even.

The wife colored her hair today, did it this morning so I am told, I did not notice.  Later we were up in our office, that sounds so officey doesn"t it, just a extra bedroom with the computer.  But that makes us Yuppies we have an office. I was looking at this woman in front of me and knew I thought I knew her but something was not right. I had her turn around and finally my mind put back some old color in her hair and I knew it was Lynn. Said you colored your hair, YES, when this morning, oooh i said.

God Bless & Keep You & This Great Country of Ours!
joe