Showing posts with label When Can I Go Home?. Show all posts
Showing posts with label When Can I Go Home?. Show all posts

Saturday, August 13, 2011

To Good Not To Pass On.


Subject: The truth about Dorothy
 
[]  Is 70 years old.

 
Today, if  Dorothy were to encounter Men  with no brains, no hearts,  and nocourage  -
 
She wouldn't be in Oz - 




 [] 



She'd  be in Congress.

From a friend made my day, hope you find the humor.

God Bless & Keep You & This Country of Ours!
joe
 
 

Tuesday, April 5, 2011

Dr. Joseph Sivak

Well Doc is out here in gold old CA.  He is being dragged around by his wife, that woman must never feed him, hell i make up two of him, probably i am in trouble again, oh well.

Went up to see Doc at one of his book signing, had a pleassant time. For me a very tiring trip, 160 miles round trip, I am toooooo old for that stuff. It was good to see Mr. Skinny with a red face from our sun, that will teach a winter wonderland boy to mess with us.

Nice day for me, tired, woren out but got to spend time with a good friend and met some new people, who I cannot even tell you what they look like now.  But we had fun.

God Bless & Keep You & This Country of Ours!!!!
joe

Monday, March 21, 2011

A different world

I know or at least think that many thought testifying in court was a big deal. But I had an attorney that ledd me through it, the entire eveidence package in fron of me and a judge that was just supper and helped everytime i sat therre with a blank and confused look on my face. Trust me that is why it took two days for me. Mr. Computer Brain, buned out circuits.

In case you are wondering what the big earth movement in Oceanside was on i think Thursday, it was the shifty old whale here hitting the deck as I tripped and fell over the cat. Not so nimble anylonger. Good thing have exxtra extra padding on my butt.. However ever since then I have been really having difficulty talking and trying to make sensse of things. Lynn says my face is lost when we talk or i look at her. Really i am lost and really do not like what is going on.

Have found out in round about ways why my voice is not listened to or my book received, I am just not gentle, kind and nuturing in my telling of this fucking disease. I guess i need to be more politically correct I think is the phrase, well bite my ass, there is nothing grand and wonderful of about having this disease. I have one thing for me though, I stand at the gate to the world of mine and about every 70 or so seconds I get to greet a new friend, shake their hand and hug them and welcome them to the darkside.

Dr. Joe Sivak will be in Long Beach in April promoting his book and Lynn and i hope to be able to make it up there to see him and maybe harass him a little those physcs need it.

God Bless & Keep You & This Country of Ours!!!!
joe

Wednesday, March 9, 2011

Digital Copy of My Book

you can now purchase from my site the digital copy of my book.  Cost $8.00 usd for all.  you will neeed to download :Adobe Digital Essentials this is a free program for viewing digital Ebooks, much like Adobe Reader for pdf files.  All you need to do is click on the link and follow instructions.  Once you purchase my book I will email you a copy of it.  In case you have prooblems downloading the Adobe program I will also enclose the link with the book.  The digital copies are not autographed.

God Bless & Keep You & This Country of Ours!!!!!
joe

Thursday, March 3, 2011

Who Am I Now?

I no lonegr know wo Joe is. It is like i have become two different people. Actually the same but in two different worlds.  I feel like the Joe I was is sitting up in the balcony at a play. And i see the actors on the stage and they are me and those I know, but I am no longer part of their world or they mine.The world they are in, i am all screwed up in and walkand talk in circles. But the Joe in the Balcony is who he once was, this is getty scarey now. I knew things would happen but not this. I am starting to progress faster each day and it is harder to get here to write and tell you.  I have a new computer, an all in one, so only a screen sits on my desk. all is wireless, mouse, keybaord, internet and i have a remote. built in webcam and mic, touch screen, boy can i scrtew things up with this. The voice recogn. prog. andme are having a battle, it spells worse then me. Once I get it down if I do.My posts will be written by it, so you will get all he what the f***ks and things as I forget where I am and doing.

Will be making book available soon in digital format for everyone around the world to get. have to addd to my buy button.and stuff.

God Bless & Keep You & This Country of Ours!
joe

Sunday, February 13, 2011

Because of You!

Yes because of you my every growing famliy out there we have made progress>
As you may or may not know their are something close to approaching 100 million sites on the Internet world wide. When I started the story of mine and asked you to join in this blog was number 57,xxx,xxx million something in standing. Well we are making an impact somehow, because it is as of today 927,085 in standing, Good JOb you guys. Out of the 10's of million in the US, we are now listed as 190,851, I am so humbled by what you have done.

Also thanks to those who have purchased my book.  I truly hope you enjoy and pass on the info to others. Now on the other hand me being a very tiny little bit mercenary - tell your friends to buy it and have them help spread the word as well.

I am going to invite more to post here soon. My haze is starting to get heavy and is keeping me from my job to let all know, how really crappy I feel. but yesterday I was a ball of fire, was so busy donig things, were it came from is beyond me.  Today different story.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, November 9, 2010

Just A Note

This is to let you know that my book is now available online at Amazon.com and BarnesandNobles. Kindle and Nookbook electronic downloads are available as well.

This Saturday past, we had a Memory Walk here in Oceanside and it went well. Old fleet of foot here sat on his fat you know what, bad feet. Did get to me a wonderful lady, Cheryl, who lives in the area and follows my blog, nice to put a face on a name.

Bye for now.

God Bless & Keep You & This Country of Ours!
joe

Monday, November 1, 2010

An Email From a Friend.......

As many of you know from time to time I share emails with permission. This is one I got just recently. You all seem to be amazed that even advancing in this fricken disease I can still communicate. I want you to know that all of us with AD or other forms of dementia are not always stumbling, bumbling and drooling people. Some to the end, not many still reamin mentally strong, maybe not physically but one cannot have everything. Also this email may give you a hint of why I take no meds for AD, just mood stabilizers, the shit does not work if that helps.**************
Dear Joe and Lynn,

Thank you again for your response...these letters and blogs must keep you both very busy...I don't know how Joe still does it, but thank you from the bottom of my heart. My father suffered from AD silently...we did not know what he was thinking or feeling...he tried to live life as if he didn't have the disease, including not talking about it. The only glimpses we had were his physical struggles, his hallucinations, and listening to his frustrations...we had to try to fill in ourselves what was going on in his head. Joe, you have no idea how much your shared words help us understand what you are feeling or experiencing or thinking...more than you know. I wish my father could have expressed what he was experiencing, but he didn't, so I am learning from you.

I just checked into your blog...I am sorry to say that I haven't been able to keep up with it regularly (due to restricted internet access), but every time I visit your page, it brings tears to my eyes...I am just filled up with sentimental emotion on how much you share, and your struggles doing it, and your struggles with the disease...thank you for all the work you put in. I am amazed at how articulate you still are at this stage.

I am so happy you published a book!!!! That's great.

I unfortunately could not find the memorial link on your page...I must be overlooking it. But I would love to send you the information on my father, and a photo. I will let my mother know.

I was also thrilled to hear that you are doing the Memory walk in Oceanside. Before I knew that, I was going to e-mail and ask if you and/or your family if you and they might be interested because I want to do it too. But I have to get my butt in gear to sign up and send out the e-mails. My mother did the walk in Florida about a week or two ago. I'll honor my father with a team bearing his name; however, I do not have family here, so unless friends join me (and they might), I might be a team of one. I would be honored to walk with you and Lynn if you like. It sounds like you might not have many walking with you, so if you and Lynn need any help at all, I would be happy and honored to help. I helped give care to my father until he passed.

This is getting long for you to read, so I will sign off. If you want to put any of this last response on your blog, you have my permission.

God bless you all (and my father would have agreed with Joe on "...and this great country of ours")

Cheryl

________________________________
God Bless & Keep You & This Country of Ours!!!
joe
PS Cheryl has no real idea what emails and comments from you folks really mean to me. They keep me wanting to post, even though I feel no one really gives a shit.

Wednesday, October 13, 2010

Posting Elsewhere

Yes I have been answering some posts on a site called Caring.Com, yes for so called experts and in my opinion some real whiny caregivers, but a good place for most of you to go for your help and discussion needs. Links will be on the side of my blog after this posting.
You all know how direct I am, so expect to be, being asked not to post anymore. I have not held back anything in my postings, to so called experts and the poor little itsy bitsy caregivers. Wine, need crackers & cheese. Come on this side of the fence, we have nowhere to go to escape except when we DIE, You can tell the discussion I got in really pissed me off. But that is the way it is.  I doubt how long I will still be able to post, we are entering that wild downward ride side. I loose people in conversations and sit idle at the dinner table so I am told and frankly I no longer remember yesterday, let alone this morning.
Till next tirade be good to yourselves and check the new links.

God Bless & Keep You & This Country of Ours!
joe

Sunday, September 5, 2010

Waking Up What Is It?

I have come to belive that waking up is not all that it is cracked up to be. It seems that I never seem to wake up completely anymore. I more or less remain is a state of awakeness if that is a word, if not it is now. I just never seem to quite get with it anymore. I am becoming much more testier and argumentative, wow I think I spelled that right.  Time is more jumbled now then ever before and I have more difficult in getting things out and what the hell i do no t know what i whant to say here.

I no longer enjoy being downstairs in my home, only outside in the front or back or upstairs, i do not know what it is, i am very uncomfortable now. We just spent I do not remember how much when remodeling downstairs the way we wanted it and I do not want to be down there now. I do not understand me anymore. Lynn wants me to talk to her and I cannot even talk to myself. Hell I always talked to myself, I was the only one that had the answers I wanted to hear now I cann't think of them.

Well take care for now.

God Bless & Keep You & This Country of Ours!!!!
joe

Wednesday, August 25, 2010

Par Boiled Fanny

Yes yours truly master of home repairs and as dense as a tree was at it again today. One needs to know that me and ladders do not belong in the same universe, I get on one and by the time I reach the second step on it I am 30 pounds lighter. Today we started on clean the outside of the house, redoing the pation and th driveway. Well do to my immense brain power I got on the roof to wash down the roof and upstairs portion of the house.  Well sitting on the roof was a bit on the hot side. Did you know that when you spray down a roof that the sun has been beating down on the water turns to steam, well I do now. As this small river came rushing down the roof towards my secure spot, it reached my butt, yess my backside, and it cooked it. I felt like I was sitting ing boiling water, guess what DAH i was. I am fighting this disease the best I can, but the longer we go down the road, the more I find out what I do not know that I thought I knew, before I found out that I did not have the first idea about it.

Lately when I get up I am not able to finish crossing that bridge from sleep to being fully awake. I was talking with my ologist this week and he asked if I felt like I was is a fog.  Well the answer is yes, the above is proof of that.Things are just not clear to me any more and I stop more in the middle of things then I did before and wind up doing something else. Each day I decide to write on here and say I should write things down before I post so I remeber what it is that I want to say. GREAT IDEA, problem is I sit down to do it and forget what it was I was going to do, welcome to dreamland.

Well I need to stand right now so you all be good to yourselves and THANK You for helping me win the new award posted on our blog. This is your victory as well.

God Bless & Keep You & This Country of Ours!!!!
joe

Friday, July 30, 2010

The very Fabric of This Blog

Anonymous has left a new comment on your post "talking it out":

Hi there Lynn & Joe. You two sound like such a perfect couple. I'm sorry to say that I am not feeling that way about my husband and I. My spouse is 17 years older than me. He was diagnosed about the same time as Joe and yes, he seems to be experiencing relatively the same stages that Joe is going through. But I must confess, I am not feeling like the pleasant, let me make you feel better caregiver right now. The TV can only be on one of the two channels he chooses, Fox News or the Weather Channel and he doesn't even watch them. He, like you Joe, stares off into space. I try to strike up any type of conversation by commenting about what they have just shown on TV but he wasn't watching it and has no idea what they were talking about. Then he gets angry with me because he is confused about my comments. Lately, he is always crankey and YELLING at me and our extended family (5 children, 6 grandchildren) so they don't seem to come around anymore. I do go to work part time but he is insistant that I not leave him for more than a few hours at a time and demands that I not go anywhere away from him for any type of enjoyment. He doesn't even want me to go shopping to get things that we need, only to the grocery store a half mile away. He makes me feel guilty that he is afraid he will die alone and that I must be with him at all times. And I don't mean just at our home, he insists I be in the same room with him ALL the time. People say to me that I should get out and do things for myself. I agree. But the reality of life is that other people don't include you when they know you have to be home with your spouse all the time. They don't want to be the cause of his anger either. So here I sit feeling so all alone in the same room as him. I provide his meals, cut his hair, do the grocery shopping, take care of our expenses and accounts, pick up his prescriptions, do his laundry and clean up after him. He refuses to go ANYWHERE. Will not leave the house and wants me to do the same. I do understand that what he is going through is very difficult. But there is never any expression of gratitude or even acknowledgement that this is difficult for me to go through also. He used to tell me every night when we went to bed that he loved me, but even that has gone. Now I only seem to be the object of his anger and frustration. But all the same, I will keep on keeping on. I won't give up, but it does help to have an outlet to release my feelings, even if it is to someone I have never met and never will.

Joe, please give Lynn a hug and let her know how much you love and appreciate her. Sounds like you have a real piece of gold to hang on to through this journey we all pass through. My love to you both.

The above is a comment shared on this blog in respose to a posting by my wife Lynn, who I am 16 years older than. This lady is suffering just as Lynn is, I have become very combative, pig headed, a dick, paranoid and more withdrawn.  I have asked many of you to be guest bloggers for the above very reason. I cannot tell you how many 100's of emails I have received just like the above comment.  See all I can respond to these people is that I am sorry for your mate and you, but it is only going to get worse, a lot of comfort right, wrong, but it is the truth. I ask again that you help with posting. See even if you do the same thing everyday, you still do something a little different and that little difference could help someone like this lady. Me i love and appreciate your words of encouragement, but really they are gone as soon as I read them. You see I know that I will not get better only worse and it is doing that quite well. I am on a journey to keep an appointment with mental collapse and physical death that is the reality of it. It sucks, i hate how i feel, i do not like my distrust and disgust with others, but my emotions are no longer mine, I even do not feel bad anymore when I am a real pain in the ass or hurt feelings, my brain says tough crap to you. I hear and see things now that are not there, i do not even know when I am being talked to. Sex keeps rolling in my brain but the old pecker does not help out and I even say who the hell caaares to taht. I am getting like my good friend Dr. Joe Savick, making a 42 paragraph post. Thanks for listening shit has hjust built up in me and while I am thinking of it I am making this post.

God Bless & Keep You & This Country of Ours.
Joe

Friday, July 23, 2010

Just When You Thought-------

For the last couple weeks I have been considering not posting any longer since ther did not seem to be any response to anything I posted. Especially yelling at you my extended family for not using the tools given to you. I guesss as we move forward I will become less tolerant and more bitchy. My wife will probably say I have already made it ther.  I know I am more withdrawn and really don't care much about things, even my KOI ponds.
The book here "When Can I Go Home?", i got to read before it came out.  See Dr. Joe is a friend of mine, even though he is a Phsyciahtrist, i cann't speel, that does not make him bad. It is a pretty good book for
caregivers to read I think.

Here is why I asked so many of you to become posters on this blog:


Message = Just found your blog and it is great.  It might be a good help for me to understand my husband.  He does not talk much about what he feels and when he does he yells.  I try to listen but how do I get him to talk without being so mean?  He has alzheimer's and was only diagnosed a few years ago but it seems that he is slipping more these days.  I hope your troubles are few.  You look like a fun guy.
Forget the last sentence. I get a great deal of emails from people like this lady. I can only answer from my side. She needs help fro you guys, you can see she is drowning in a sea she does not know how to swim in. Please POST and help her. This is part of my reason for not wanting to continue to post. I feel that we as a family are failing people like this lady. My emotions control me now rather than the other way around.  Even if you do the same thing each day I am sure you do something different, maybe a minute that can help someone. I do the same thing each day, become more forgetful, angry, frustrated, pissed, fingers hurt typing all of this, my brain wanders while I am tyring to post.  If you want to be a guest blogger on my blog, send me your email address and why and I will email you the link.  Postings have to be all related to Dementia in anyform or caregibing to Dementia patients.
God Bless & Keep You & This Country of Ours (Help The World Too)!!
joe

Saturday, July 10, 2010

A Prior Post if You Will. With Added Comment.


A Warrior's Lament:    (by j.v. potocny)

                                                                   
I kneel before thee
Upon bended knee
My battle axe rusts upon a tree
The Steed that served me well
Now runs free and frail
He served us both with grace and might
Let him rest well each night
There is no deadly mace
That you can see before my face
Gone is my shield which I cannot hold
All that is before you is my sword and face
I have stood tall in all battles
With You I have won and battles song sung
Many with scars some with none
Since a child I have fought the fight
Now I wish for it to end this night
My strength is dried up and gone
No longer does exist that fierce warrior in me
I long to face only Thee
This battle I am in is lost and so am I
So before You I am on bended knee
Prostrate would I lay
But this body is to broken and brittle this day
So I lay before you all I have left
Worn, beaten, yearning, to you I give my soul
No longer in the dust of battle let me roam
I await You and Your Hand to take me in your time
I pray Thee take ME HOME
In Your Name Amen.


This more reflects my wishs of today and my feelings. I no longer like it here. I no longer communicate with those around me well. Most of the time I am in my own little world and do not want to be bothered by anyone. My wife has noticed more and more that I am not with those around me. This is not a friendly world it rather sucks. Things I once enjoyed are a chore, getting things done takes it seems like years to me. It feels at times like my brain is being crushed or squeezed down. It is not a headache but a sensation of being pushed out and away.

God Bless & Keep You & This Country of Ours!
Joe

Monday, July 5, 2010

And You Say I am NOT NAGGED!!!

attacked from all angles


First let me wish you all a belated 4th of July!!
You know it is difficult when everyone is watching what you are doing constantly. OH of course the wife does not watch over me or nag, not the kids either, THEY have trained the fricken bird and cat to do their dirty work. I am surprised they have not given the fish feet and artificial living tanks so that they can come and spy as well. It has gotten so that I have no privacy under constant surveliance like a member of the KGB, well they won't catch me, my brain cell is working out a plan. As soon as it lets me know what the hell it is then I can do something about this invasion.

Seriously they need to watch me, I do some of the dumbest things, besides not letting the wall get out of my way before I walk into it. There are times I really do not know what the hell I am doiing or what I am talking about.  This is geetting more difficult as time goes on and it is suppose to, but it sure plays hell with what i want to do, which I do not know what that is to start with. Yes there has been joy this year two new grandchildren, my new koi pond, which I rarely sit by anymore, actually two ponds. all have mosiquto fish in them, cute little devils they are and do they populate.

Well I guess I have bitched enough, well maybe not, but at least I remembered most of what I wanted to say in this post, which in and of itself is something.  My physcologist would say that I am still in there somewhere, but the question is where.  He has been seeing me and been my friend for a number of years now, his father died from this damned disease, so he knows from where my anger and confusion and thoughts come from.

God Bless & Keep You & This Country of Ours!!
joe

PS: I can go anywhere I want, that is what I am told, but here is the kicker I have to be taken there, real freedom, right!

Thursday, June 24, 2010

What do I see in the future?

My shrink has sent me back to my pshycologist, for help especially since his dad died from AD and he was the first to garee with me on what was taking place in my so called mind. We have been meeting for a couple of weeks again. Known each other close to 6 years.  As we sat and looked at each other, he asked why I was back and I told him.  We talked to kind of catch up to current things. He asked me, "When I look to the future, what do I see?"  My reply after starring for a few moments maybe longer was, "Darkness". I told him for me I see no future, for when you slice it all up and smooth it all out there is nothing there for me.  Just to keep loosing what abilities I have left and then crossing over the line. What is on the other side of the line, I told him I do not know for I have no idea who or what I will be, except that it will not be me. Maybe I will be lucky and pass on before that time comes. See I look at us in this world of Dementia, as throw aways, really, how many families are able to withstand the constant care they need to give us as we move forward with this disease. It definitely has got tear at them to a point of not being able to handle things. Then they have there families and their lives and all that stuff.  So put Mom or Dad or Gramps or Grams in home that can clean them up and do the things they cannot handle. Throw aways that is what we are. Never mind the years that we put into raising them and helping and nuturing and getting their asses out of trouble, that does not matter that was our job not theirs. Will I get shit for this post, YES, do I care NO, because the truth is what it is. I am becoming more distant to family and friends. My "friends" no longer email me except for those stupid forwards, some are funny. I am not part of their world and I guess they do not know how to talk to me anymore. Even those that I know that have a parent with AD and work for Alz. Org.  Bitter I guess, you see I now see my world closing in and not as broad as it once was. I have my moments, but more and more they are lessening, shopping is nearly unbearable for me now. I fear leaving home because I might get lost even though I have to be taken everywhere. Take care and be good to yourselves.

God Bless & Keep You & This Country of Ours!
joe

Tuesday, May 25, 2010

When Happiness Leaves & Shadows Come

As I walk on this journey of mine, although not alone, it does not seem that way anymore.

The wife and I have tried to have discussion about what is going on with me, but that veil of secrecy that has always been around me seem to be even thicker now. It is becoming more difficult for me to express what is happening and what is inside, because frankly I am not sure what the hell is taking place. I get more lost in my own head then I do elsewhere. Out and about with people is close to being a no no.

Lynn has asked me several times what would make me happy. Each time she has asked I come up with only one answer and that is to die or cross over the line. I no longer like this on the edge shit, it is to confusing, frustrating and just gets in the way of everything. I spend to much time crying inside and I have come to dislike me a great deal. But there really is nothing I can do about that, the disease is doing its job and the meds, even increasing them is not helping. Knew this time would come, just did not want to be here for it. But since I am not the ruler of the universe, be thankful, it is not in my time but his (I wish he would hurry).

God Bless & Keep You & This Country of Ours!!!!
joe

Thursday, April 22, 2010

Reading Blogs

I spent sometine today reading some friends blogs and leaving my ever uplifting comments. But you folks that change your links, dam tell me so I can keep my list correct. I list you so others can read as well. Hopefully the remaining 6 people I have invited will have the balls to post and the others will continue.

  • I would post daily if I could remember, but I start processing an entry and it starts one way, goes another, then turns left and winds up in the back forty, lost and me with it. Hope the changes are to you liking if not to bad, deal with it.
  • Like a legal pleading now.
  • Find days are slipping by quicker.
  • The brain is getting bluer. Always wanted to be a blue blood, but I have obtained higher standards I am a blue brain, Ok a dumbshit.
  • I was at my mens support group the other night, one of the guys there mothers has AD and wwe talk about it and he told me once that you could hardly tell, but his family insisted. He sees her every couple of months or so. Just got back and said he spent 4 hours with her and he was her brother and did not know what town they were in. He was a bit taken back. I asked is she about 4 years or so out from being labeled, he said yes and that she was on Aricipet (wonder drug, not). He asked me why and I told him the truth, she is on schedule. Also the A drug was for well toilet bowl cleaning in my opinion and many others. We hugged I cried for him and prayed for her to be set free soon. These are the real stories of AD not the commercials on TV or the movies, this is what it really does to us. Like a thief in the nite it suddenly takes what it wants when it wants.
  • God Bless & Keep You & This Country of Ours! (The Rest of The World Needs Help Also)
  • Joe

Saturday, April 3, 2010

Guest Blogger Joe Sivak MD

I would like to thank my friend Joe for the privilege of being asked to be a guest writer on his blog. In the big scheme of things I have known Joe for only a short time through the wonderful technology of the Internet. I started blogging about eight months ago and soon found Joe's blog. I immediately resonated with so much of the feeling and emotion and spirit with which Joe writes. I felt sort of a strange kind of kindred spirit.
It is sort of that weird feeling, where you never met someone but when you connect with them, you feel that connection was always there and it is sort of timeless.
You see Alzheimer's was the thing that connected us. Joe has the disease, my mother was diagnosed with the disease in 1979, when most people had not heard of it. I started a book about my journey many years ago and finally finished it this year. It is titled When Can I Go Home? I asked Joe to read the book and tell me what he thought. I knew it would be hard, and I debated a long time. I didn't want to make Joe feel sad or mad, but his review in a way was the most important one I wanted. It was more important than if I could get Publisher's Weekly or New York Times or any high profile review. Why was that?
I wanted to show that people with AD are people who count, with thoughts feelings, and a spirit. No matter how far the disease gets, there is a person. The point of Joe's blog and the point of my book is that we should never, ever cast aside any human being just because they have AD. The truth of that matter is: is that now matter how far we think we have come as a progressive, altruistic, advanced and humane society, we have a very long way to go when it comes to people living with Alzheimer's.
Alzheimer's initially brought us together, but immediately after that the connection was fundamentally not about the disease, but just about two guys, Joe and me who actually share a lot of the same fundamental views and insights. And Yes, Joe has tremendous insights that we can all learn a lot from.
I am a psychiatrist, but Joe didn't not hold that against me. Neither of us particularly like psychiatrists. Joe instinctively knew and knows that is just what I do professionally, sometimes in that realm I can help people and sometimes I can't, sometimes all I can do is be there as a human being yet in that pretense of a professional realm.
Joe said he only read a couple books in his life, mine and Bill Cosby's Fatherhood. So I was indeed in good company!
Joe knew and talked about the disease, he knows first hand better than anyone, how Alzheimer's is two deaths. The disease taking the person's mind and the physical death. Joe and I know the disease tries to take the person's spirit. some days it feels like it does, but it never really can or will. You see Joe's spirit is there and always will be. You see it in those faces in those pictures he posts, it is in those grand kids. Those faces, those smiles, when you see it in his family and grandchildren you see Joe's spirit and his goodness, and the disease never ever can or will take that away. That lives on forever, that spirit is eternal. Take a look at his pictures, it is there. You see Joe's essence.
Joe asked for a picture of my mother. He posted it on his blog. Her name was Madeline. She is physically gone from the earth, but Joe knows that we never forget, and her essence lives on through her kids and grand kids, and the disease does not get to take that. People like Joe are a gift to the human race, he reminds us to never forget.
In a way Joe knew the pain I still feel from my mother's disease, he sort of offered me a kind of spiritual absolution, a setting free if you will. I never really considered or expected that, but Joe knew. I hope in some way although I know it was hard fir him to get through, that in reading the book, somehow our connection set him free just a little. He knows I will never cast him or anyone with the disease aside. Joe is not an Alzheimer's victim, Joe is just a guy, a human being who happens to be living with the disease. We can all learn a lot from his writing, it should be required reading in schools. He is tough and smart, he is human. We all have a little bit of Joe in us. He will keep blogging and writing, it is not about the words it is about his essence and his spirit. He will keep loving life and hating the disease, just like me. He will love his family and his love will go on generation after generation.
Thank you Joe for this honor to post on your blog. Your courage and dignity and humanness is there for everyone.
Joseph J. Sivak MD