Showing posts with label wordpress. Show all posts
Showing posts with label wordpress. Show all posts

Thursday, March 3, 2011

Who Am I Now?

I no lonegr know wo Joe is. It is like i have become two different people. Actually the same but in two different worlds.  I feel like the Joe I was is sitting up in the balcony at a play. And i see the actors on the stage and they are me and those I know, but I am no longer part of their world or they mine.The world they are in, i am all screwed up in and walkand talk in circles. But the Joe in the Balcony is who he once was, this is getty scarey now. I knew things would happen but not this. I am starting to progress faster each day and it is harder to get here to write and tell you.  I have a new computer, an all in one, so only a screen sits on my desk. all is wireless, mouse, keybaord, internet and i have a remote. built in webcam and mic, touch screen, boy can i scrtew things up with this. The voice recogn. prog. andme are having a battle, it spells worse then me. Once I get it down if I do.My posts will be written by it, so you will get all he what the f***ks and things as I forget where I am and doing.

Will be making book available soon in digital format for everyone around the world to get. have to addd to my buy button.and stuff.

God Bless & Keep You & This Country of Ours!
joe

Wednesday, February 23, 2011

Brain Decay

Over the last few days both Lynn and i have ntice a dectease in my attention and ability to relate. am developing new language, but poor Lynn she understansd what I am trying to say, what does that tell you.

Also I referred to Alan Rogers,  well good memory joe his name is Alan Arnette, sorry big guy and he is.

Have a new guy Ken with us he has Lewy Body Dementia, maybe we can get him to blog here as well as his own, to help learn about his dementia. After all that is what this site is about.

God Bless & Keep You & This Country of Ours!!!!
joe

Sunday, February 13, 2011

Because of You!

Yes because of you my every growing famliy out there we have made progress>
As you may or may not know their are something close to approaching 100 million sites on the Internet world wide. When I started the story of mine and asked you to join in this blog was number 57,xxx,xxx million something in standing. Well we are making an impact somehow, because it is as of today 927,085 in standing, Good JOb you guys. Out of the 10's of million in the US, we are now listed as 190,851, I am so humbled by what you have done.

Also thanks to those who have purchased my book.  I truly hope you enjoy and pass on the info to others. Now on the other hand me being a very tiny little bit mercenary - tell your friends to buy it and have them help spread the word as well.

I am going to invite more to post here soon. My haze is starting to get heavy and is keeping me from my job to let all know, how really crappy I feel. but yesterday I was a ball of fire, was so busy donig things, were it came from is beyond me.  Today different story.

God Bless & Keep You & This Country of Ours!
joe

Friday, February 11, 2011

As you may know I have ben trynig to kep track of those who were in the HBO Documentary. Last time I had to notify of 4 of the 7 of us had passed. I still have no information on Fannie Davis, but I spoke to the care facility today that Yolanda Sanmartino was at and she is still with us physically and doing ok.

http://www.hbo.com/alzheimers/memory-loss-tapes.html

The above link will take you to all parts of the documentary. You can watch them on line if you have not seen them. Link will also become a permanent link on my blog.

I am will continue while I can to keeep you updated. Take care and be good to yourselves.

Friday, February 4, 2011

For Those Who Can Still Walk!!!!!

Yes this disease even takes that away from you. I know I have griped abouut the brain going away, but it seems my feet and legs are developing a mind of their own now. Several times I have falleen and trip and got hurt, but never thought of how AD is affecting me in that way.  Well the other day I had some sense knoccked into me. I was putting away the garbage cans, tuff duty right? We let me tell you it can be, putting the last can away I was practicing walking backwards, front ways not that good, try something new: Well I check where I was going turneed back around, steppped out of my sliper, apparently steped on my foot, you got it I went on a trip. My rather robust bottom slammed on the walk way, my back hit the pavers and this empty head of mine proceeded to put a rather nice looking dent in the one metal storage shed we have.  I have to admit the shed looks good it now has character. Me I have character to, back hurts like hell, my head hurts, the crack in my bottom has widened and I have been advised by my keepers, that maybe I should not do that anymore. You loose one freedom after another with this crap.

Until we meet again, take care of yourselves. I hold walking classes every Tuesday at 1pm PST.

God Bless & Keep You & This Country of Ours!!!
joe (the marathon walker)

Thursday, February 3, 2011

From The Mountain Tops - WE WILL BE HEARD!!!

From: Alana Rogers <ARogers@Biosector2.com>
To: JosephPotocny@yahoo.com
Sent: Thu, February 3, 2011 7:57:16 AM
Subject: National Family Caregivers Association Joins 7 Summits Climb for Alzheimer's 

Dear Joseph,

Knowing your interest in Alzheimer’s disease and family caregivers, I wanted to share with you a recent update on The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign. 

To kick off 2011 – The Year of the Family Caregiver – the Alzheimer’s Immunotherapy Program of Pfizer Inc. and Janssen Alzheimer Immunotherapy today announced the addition of the National Family Caregivers Association (NFCA), an organization that empowers family caregivers to act on behalf of themselves and their loved ones, as a supporter of The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign. 

NFCA joins the campaign just as alpine mountaineer and Alzheimer’s disease advocate Alan Arnette successfully summitted Aconcagua in Argentina, his second climb of the 7 Summits.  From the top of the summit, Alan dedicated his Aconcagua climb to family caregivers of loved ones with Alzheimer’s (you can listen to his audio dispatch here:http://www.alanarnette.com/blog/2011/01/29/audio-dispatch-from-aconcagua-5/). 

As you may already know, Alan is seeking to climb the 7 Summits, the highest peak on each continent, in order to help raise awareness of the enormous financial and personal burden Alzheimer’s places on people with the disease, their family caregivers and society.  With two summits completed in just a few months, Alan is well on his way to achieving his ambitious goal. 

Alan was his mother’s caregiver during the time she lived with the disease and knows only too well that the burden of caring for these people often falls to family members and friends:
·         In the U.S., an estimated 10.9 million unpaid caregivers see to the daily needs of people struck by Alzheimer’s
·         In 2009, these caregivers provided about 12.5 billion hours of care 
·         Caring for a person with Alzheimer’s can be overwhelming, and research shows that caregivers themselves are often at an increased risk for depression and illness
·         In the U.S. the indirect and direct costs of caring for people with Alzheimer’s are estimated to be more than $ 100 billion a year

Alzheimer’s disease, the nation’s 6th most deadly disease, gradually destroys a person’s memory and ability to learn, reason, make judgments, communicate and carry out daily activities like bathing and eating.  Alan hopes to raise $1 million to go directly to the Cure Alzheimer’s Fund™, and now NFCA to advance Alzheimer’s research and provide support for family caregivers, respectively. 

You can follow Alan’s journey and encourage people to donate to his cause by visiting www.Climb4AD.com orwww.Facebook.com/Climb4AD.  Additional information is included in the press statement below.  Please let me know if you have any questions or would like to speak with Suzanne Mintz, president and CEO of NFCA, or with Alan.

Best,
Alana

Alana Rogers
Biosector 2
450 West 15th Street, 6th Floor
New York, NY 10011

P 212.845.5627
F 212.845.5650

*****************************************************

Below please find press statements issued on February 3, 2011 by Janssen Alzheimer Immunotherapy and Pfizer Inc. of the Alzheimer's Immunotherapy Program about The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign.

National Family Caregivers Association Supports Advocate in His Mission to Raise Awareness of the Burden of Alzheimer’s Disease

SOUTH SAN FRANCISCO (February 3, 2011) – Janssen Alzheimer Immunotherapy, together with its collaborator on the Alzheimer’s Immunotherapy Program, Pfizer Inc., is pleased to announce the addition of the National Family Caregivers Association (NFCA), an organization that empowers family caregivers to act on behalf of themselves and their loved ones, as a supporter of The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign.  NFCA joins the campaign just as alpine mountaineer and Alzheimer’s disease advocate Alan Arnette successfully summitted Aconcagua in Argentina, his second climb of the 7 Summits.  Through this campaign, Alan is seeking to climb the 7 Summits, the highest peak on each continent, in order to help raise awareness of the enormous financial and personal burden Alzheimer’s places on people with the disease, their family caregivers and society.  In addition, he hopes to raise $1 million.  The funds he raises will go directly to the Cure Alzheimer’s Fund™, and now NFCA to advance Alzheimer’s research and support for family caregivers, respectively.  It is estimated that more than 5 million Americans have Alzheimer’s and approximately 10.9 million unpaid caregivers see to their daily needs.

“The NFCA’s participation in this campaign spotlights the vital and expanding role of the Alzheimer’s caregiver, which is why we are so glad they have joined this effort,” said Stef Heylen, MD, Chief Medical Officer and Head of Research and Development for Janssen Alzheimer Immunotherapy, on behalf of the Alzheimer’s Immunotherapy Program.  “Through their participation in the 7 Summits campaign, NFCA will be able to reach even more family caregivers, providing education, support and a public voice.”

Prior to Aconcagua, Alan summitted the first of the 7 Summits -- Mt. Vinson Massif, the highest peak in Antarctica -- in December.  Coming up in April, Alan is planning to summit Mount Everest, the highest peak in the world.  The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is funding Alan’s climbs so that all money he raises from donations will go directly to the organizations he has selected.  You can track Alan’s progress or make a donation to one of his chosen charities by visiting www.Climb4AD.com or www.Facebook.com/Climb4AD.

“2011 marks the Year of the Caregiver, and as such, we are thrilled to join Alan in his efforts to raise awareness about Alzheimer’s and the burden it places on family caregivers,” said Suzanne Mintz, president and CEO of NFCA.  “We applaud Alan for his commitment, perseverance and tireless advocating for the AD community.”

Alzheimer’s disease is the sixth leading cause of death in the United States, with another person newly diagnosed every 70 seconds.  The burden of caring for these patients often falls to family members.  Last year, these family caregivers provided about 12.5 billion hours of unpaid care.

Alzheimer's Immunotherapy Program
The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is an equal collaboration committed to researching and developing selective products for the treatment and/or prevention of neurodegenerative conditions, including Alzheimer’s disease.

The Alzheimer's Immunotherapy Program believes that it is possible to reduce the burden of disease through early intervention in the illness.  It is dedicated to delivering comprehensive and integrated solutions that help address the needs of people impacted by Alzheimer’s disease.

Its research focuses on the beta amyloid hypothesis.  Scientific evidence supports the idea that preventing the accumulation and/or promoting the removal of beta-amyloid may have the potential to slow the progression of Alzheimer’s disease and help preserve function in people with the disease.  This theory is being tested inclinical trials.
                                                                                                         
Janssen Alzheimer Immunotherapy
Janssen Alzheimer Immunotherapy is researching, developing and commercializing selective products for the treatment and/or prevention of Alzheimer’s disease.  Janssen Alzheimer Immunotherapy is based in Dublin and has R&D facilities in South San Francisco.

National Family Caregivers Association
National Family Caregivers Association (NFCA) envisions an America in which family caregivers lead full and productive lives, free from depression, pain, isolation, and financial distress.  NFCA provides family caregivers support, education, and a public voice.

Cure Alzheimer's Fund
The Cure Alzheimer's Fund is a non-profit public charity established to provide funding for targeted research into the causes of Alzheimer’s disease.  The Cure Alzheimer’s Fund exists exclusively to fund targeted research to hasten the slowing, stopping or reversing of Alzheimer’s disease.

MEDIA CONTACT:
Ellen Rose                                                                                                           
Office: 650-794-2546
Mobile: 650-491-4901
erose@janimm.com                      
____________________________

National Family Caregivers Association Supports Advocate in His Mission to Raise Awareness of the Burden of Alzheimer’s Disease

NEW YORK (February 3, 2011) – Pfizer Inc., together with its collaborator on the Alzheimer’s Immunotherapy Program, Janssen Alzheimer Immunotherapy, is pleased to announce the addition of the National Family Caregivers Association (NFCA), an organization that empowers family caregivers to act on behalf of themselves and their loved ones, as a supporter of The 7 Summits Climb for Alzheimer’s: Memories are Everything campaign.  NFCA joins the campaign just as alpine mountaineer and Alzheimer’s disease advocate Alan Arnette successfully summitted Aconcagua in Argentina, his second climb of the 7 Summits.  Through this campaign, Alan is seeking to climb the 7 Summits, the highest peak on each continent, in order to help raise awareness of the enormous financial and personal burden Alzheimer’s places on people with the disease, their family caregivers and society.  In addition, he hopes to raise $1 million.  The funds he raises will go directly to the Cure Alzheimer’s Fund™, and now NFCA to advance Alzheimer’s research and support for family caregivers, respectively.  It is estimated that more than 5 million Americans have Alzheimer’s and approximately 10.9 million unpaid caregivers see to their daily needs.

“As the number of people diagnosed with Alzheimer’s increases over the next few decades, so too will the burden of this devastating disease on family caregivers, which is why continued resources and support are essential,” said Gregory Rippon, MD, MS, Senior Director, Specialty Neuroscience, Clinical Development & Medical Affairs, Pfizer, on behalf of the Alzheimer’s Immunotherapy Program.  “We are excited that NFCA has joined this effort, as their participation expands the reach of the 7 Summits campaign to focus on this critical audience.” 

Prior to Aconcagua, Alan summitted the first of the 7 Summits -- Mt. Vinson Massif, the highest peak in Antarctica -- in December.  Coming up in April, Alan is planning to summit Mount Everest, the highest peak in the world.  The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is funding Alan’s climbs so that all money he raises from donations will go directly to the organizations he has selected.  You can track Alan’s progress or make a donation to one of his chosen charities by visiting www.Climb4AD.com or www.Facebook.com/Climb4AD.

“2011 marks the Year of the Caregiver, and as such, we are thrilled to join Alan in his efforts to raise awareness about Alzheimer’s and the burden it places on family caregivers,” said Suzanne Mintz, president and CEO of NFCA.  “We applaud Alan for his commitment, perseverance and tireless advocating for the AD community.”

Alzheimer’s disease is the sixth leading cause of death in the United States, with another person newly diagnosed every 70 seconds.  The burden of caring for these patients often falls to family members.  Last year, these family caregivers provided about 12.5 billion hours of unpaid care.

Alzheimer's Immunotherapy Program
The Alzheimer's Immunotherapy Program of Janssen Alzheimer Immunotherapy and Pfizer Inc. is an equal collaboration committed to researching and developing selective products for the treatment and/or prevention of neurodegenerative conditions, including Alzheimer’s disease.

The Alzheimer's Immunotherapy Program believes that it is possible to reduce the burden of disease through early intervention in the illness.  It is dedicated to delivering comprehensive and integrated solutions that help address the needs of people impacted by Alzheimer’s disease.

Its research focuses on the beta amyloid hypothesis.  Scientific evidence supports the idea that preventing the accumulation and/or promoting the removal of beta-amyloid may have the potential to slow the progression of Alzheimer’s disease and help preserve function in people with the disease.  This theory is being tested in clinical trials.

Pfizer Inc.: Working together for a healthier world™
At Pfizer, we apply science and our global resources to improve health and well-being at every stage of life.  We strive to set the standard for quality, safety and value in the discovery, development and manufacturing of medicines for people and animals.  Our diversified global health care portfolio includes human and animal biologic and small molecule medicines and vaccines, as well as nutritional products and many of the world’s best-known consumer products.  Every day, Pfizer colleagues work across developed and emerging markets to advance wellness, prevention, treatments and cures that challenge the most feared diseases of our time.  Consistent with our responsibility as the world’s leading biopharmaceutical company, we also collaborate with health care providers, governments and local communities to support and expand access to reliable, affordable health care around the world. For more than 150 years, Pfizer has worked to make a difference for all who rely on us.  To learn more about our commitments, please visit us at www.pfizer.com.

National Family Caregivers Association
National Family Caregivers Association (NFCA) envisions an America in which family caregivers lead full and productive lives, free from depression, pain, isolation, and financial distress.  NFCA provides family caregivers support, education, and a public voice.

Cure Alzheimer's Fund
The Cure Alzheimer's Fund is a non-profit public charity established to provide funding for targeted research into the causes of Alzheimer’s disease.  The Cure Alzheimer’s Fund exists exclusively to fund targeted research to hasten the slowing, stopping or reversing of Alzheimer’s disease.

MEDIA CONTACT:
Victoria Davis
Global Media Relations         
Office: 212-733-3227
Mobile: 347-558-3455

# # #


Thursday, January 20, 2011

Some GrandParent Humor Today

I received the following email from my mother-in-law. So I thought rather than being a pain in the ass today, that comes later, we would have a little humor, at least i found it so.

Have you ever  wondered what the difference is between Grandmothers  and
Grandfathers? 

Well, here it is: There was this loving  grandfather who always made a special
effort to spend time with his son's  family on weekends. Every Saturday morning
he would take his 7-year-old granddaughter out for a drive in the car for some
quality time -- just  him and his granddaughter. 

One particular Saturday, however, he had a  bad cold and really didn't feel like
being up at all. He knew his  granddaughter always looked forward to their
drives and would be  disappointed.  Luckily, his wife came to the rescue and
said that she  would take their granddaughter for the drive. When they returned,
the  little girl anxiously ran upstairs to see her grandfather who was still in
bed. "Well, did you enjoy your ride with grandma?" he asked. "Oh, yes,  PapPap,
it was really wonderful.  We didn't see a single  asshole, blind bastard,
dipshit or son of a bitch anywhere we  went!" 



Almost brings a tear to your eye, doesn't  it?



God Bless & Keep You & This Country of Ours!!!!!
joe
PS> God love grandpa's to.

Friday, December 31, 2010

A Victory!


Thank You!

Dear Joe,

Soon, we expect President Obama to sign the National Alzheimer's Project Act into law. This is the largest legislative victory in many years for the Alzheimer cause, and you made it happen. We look forward to working with all of the various agencies to ensure this law is enacted in the spirit in which it was drafted.

With a new Congress convening in January, we're eager to build on the momentum from this victory and hope that you'll join us. As we prepare to launch our 2011 legislative priorities we are asking you to please consider making a donation so we can continue the fight against Alzheimer's disease. A donor has graciously stepped forward and offered to match all gifts made to the Alzheimer's Association by December 31, 2010, up to $10,000. So we need your support now to allow us to continue our efforts to advance research, as well as vital care and support programs in the upcoming year.
Please Donate!
As leaders in the fight against Alzheimer's disease, you already know the stark realities:
  • 5.3 million.  Americans who are currently living with this disease, with that number expected to skyrocket to as many as 16 million by mid-century.
  • January 1, 2011. That's when the first baby boomer hits the age of 65, entering into an age of increased risk for developing Alzheimer's.
  • 0.  The number of people today with access to a means to prevent, cure or even slow the disease.
Yet our nation has lacked a national strategy to address this crisis. Thanks to your help, that stops now.  Throughout this year you have called on Congress, written the President, and signed the Alzheimer's Breakthrough Ride Petition to ask that our nation address this crisis. You made a difference and soon our nation will make a commitment to fighting this disease.

Thank you for all that you do and Happy Holidays.

Sincerely,

Robert Egge
Vice President of Public Policy
Alzheimer's Association
 
 
The Alzheimer's Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
 
  © 2010 Alzheimer's Association. All rights reserved.
Alzheimer's Association National Office, 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601
www.alz.org | 800.272.3900

As you read you will see why I received this email.  Yes a victory to a point, I am not sure what. But I want you to pay particular attention to the part I highlighted in RED. How many times have I said the same. When do you folks raise your voices, This is a Call To Arms. We the Walking Dead need your voice to be heard loud and clear and without stopping.

God Bless & Keep You & This Country of Ours!
joe
http://LivingWithAlzhiemers.wordpress.com

Thursday, December 16, 2010

My Book

If you wish to see sites it can be purchased at both written and electronic go to:

http://LivingWithAlzhiemers.wordpress.com

You can also leave a review of the book should you have purchased it.

God Bless,
Joe