Alzheimer's Time Line -- New Page

Please note the new page added to my blog - Alzheimer's Time Line. This info is from Fedelta Care Solutions. Hold many facts and figures. I hope you find it useful. While there check out their other resources.


God Bless & Keep You & This Country of Ours!
joe

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Getting SStuck In time.

I am becomming more confused eac day. I sit here to write and just draw a complete blank. I feel that thi journey is getting rather rocky and bumpy now. When i started this blog, which seems like centuries to me, i was filled with a fire and a passion that was overwhelming me. You all know how i feel that we who suffer from Alzheimer's, Lewy Bodies, Parkinsons, Frontal Temproal Dementia, Vascular, etc. do no have a voice for us, i still feel that way, i do not want some so called expert, caregiver, reasearcher, etc. speaking for me and telling how terrrible this is and the problems and heartbreat they feel caring for us. Hell that does not put a voice or a face to us, to u yes, us no. Like it or not, WE hold the key to this disease. We have the answer, not you, we live it, why are we not asked, why are we not the experts, why is it not us that talks to the media and the big stars to tell the story? You do not know this side at all.  When it started for me it was small slices of my life taken each day, those slices have grown steadily until they are now steak size. The passion is still there to tell the story, but the fire is just a glow now. I feel like i am talking to me on my left side, i am deaf in my left ear, i feel like my blog has lost it's thunder and no longer reaches out and is heard. Yes i hear from folks once and awhile but not much anymore, I cannot begin to tell you how lonely it is inside my mind what is left now. I cannot realy even talk about things much anymore. Hell the fire and fuck the world attitude  has tempered down, I am understanding how the others that were in the hbo documentaroy felt and relate lmore to the world they became to know.
My niece died thursday, she was in her forties, i feel for her husband and three sons, but more for her mother and father, see we are to die before our children not out live them.
This is becomming way to much, there are things i want to do, but i forget them or just plain have no motivation to do them. I rarely sit by my ponds any more, my interests seem to becoming less daily about anything.
Well until i remember you are out there again take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

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Hello to all as we near the end of this year. I am still in February I have no idea where the rest of this time has gone or what has happended. As some of you know I attend a 12 step group and have for centuries to fight my disease of alcohol and am still sober some 37 years. I was at a ongoing meeting on Christmas Eve, we have what they call marathon meetings around certain holidays to add extra support, what made this special to me and has caused me to wonder if we have the stages of AD right, yes we have it starts and you die correct, but the inbetween seeems to be not so straight forward. I know I have written on my blog the stages, others have, Alz Org has, but you folks, my experience and what happended Christmas Eve tell me in my mind at least that there is no set inbetween stages actually, that we experience similiar things to a greater or lesser degree as suffers. I man shared at the meeting that his father had passed in the last week from AD and he was happy for him and said how he felt. I fortunately had the oppportunity to talk with the gentleman after the meeting, hugged him and told him I was glad his dad had been set free. We looked at each other and I know he was confused, hell I know that feeling, so I gave him my card that has my book info on it. We talked about how his dad was diagnosed about 3 years ago with it, for most of the time he was level had some problems then came the LINE CROSSING, 4 months ago when we knew no one and went downhill and died in the 4 month period from AD. He and I feel the same if we can prevent ourselves (he does not have it yet) from getting to that line to end it before. He saw the suffering of his father and the destruction on the family and does not want to go through that or put the family through it. Unfortunately his mother is at some point in the disease, where?????? Another lady joined us and told about her parents dying from AD a number of years ago and as I listened I could hear that her parents did not follow the so called stages either. Yes they had portions of them but kind of out of order. I see that in myself and think what master mind is comming up with this stuff. Maybe we need to revist how the disease really progresses, the middle part, we know that it starts and then we die. I know for me this is long, but I was very much touched and moved by these folks, I could see their suffering, but they were able to understand to a point my side. Especially when we talked of how they could get away from it and here I was at this meeting still getting support to help me not drink and I brought along old Mr. AD, i cannot get away from it not even a second.

Well I need to shut up, take care of yourselves and if I forget, Have A Very Happy New Year one and all.

God Bless & Keep You & This Country of Ours!!!
joe

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Happy Monday To You.

I have added a link to my book for those who are interested. At present it is only available is soft & hard cover. Within the next 2-4 weeks so i am told it will be available in electronic format for you Kindle folks. At That time the bugger will be available at Amazon.com & BarnesandNoble.com, as well as my website and other locations.

Now that, that is out of the way, today sucks, I am having trouble getting things from my brain cell to my mouth or fingers and once it gets there they don't know what to do with it. I feel like i am starting to reepet my self more and more.  My family bless them say its ok dad we know. I sure would like to know what it is that they know because I do not. Doing this blog is getting difficult. I have these grand things, I think to say and my brain farts them away. I have problems with titles that have antynig to do with the post. I think, that is a joke that their maybe no more titles.

How does one tell you how uttterlly difficult it is living in this World that I am now in. Cann't drive, cann't balance check book anymore, forget my pills, forget the bills and now I get up from the table leaving my dinner because I forgot I was eating.However my bowels and I still are on the same page, way to often, but still together.

You take care now.

God Bless & Keep You & This Country of Ours!
joe

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You Know My Love for Studies

Here is a link about possible preventive things against Alzheimer's:

http://www.newsmaxhealth.com/headline_health/breakthroughs_Alzheimers/2010/09/17/350866.html?s=al&promo_code=AC7C-1

You be the judge of this. I think you will know my demented thoughts on this. The gene one only covers to my understanding maybe 5% of people who get AD. I would really like to know how they determine that the one's that did not get AD, would not have gotten it anyway. Stats can mean what you want them to.

God Bless & Keep You & This Country of Ours!
joe

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As The Present Fades

I am still amazed at this point that I can still converse with you and tell you how things are going in my journey or battle if you will. In the beginning and still now i am prepared for the mental walkings and goings but I was never prepaired for the physical problems.  Walking with a swagger, actually kind of a stumble and hunched, feeling icky most of the time, getting exttermely upset around people and sweaty like a pig, shaking like i do, not able to hold things all the time, just not ready for this crap.

I find my world in fading in and out now. I recognize family and people and suddenly they start to become someone else. Same person standing there but my brain seems to switch off and step back and say who the fuck is that. I am finding this to be happening more and more, I feel like i am fading away from Joe and going somewhere and I cannot stop it anylonger. I really wish I would hear from others in this world of mine and what they are going through and how they feel. It is really a lonely place, yes I have people around me that care and help, not the same, they are not here with me, in my reality such as it is.

I must go now my mind is confused and i am getting very angry.

God Bless You & This Country of Ours!
joe

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Par Boiled Fanny

Yes yours truly master of home repairs and as dense as a tree was at it again today. One needs to know that me and ladders do not belong in the same universe, I get on one and by the time I reach the second step on it I am 30 pounds lighter. Today we started on clean the outside of the house, redoing the pation and th driveway. Well do to my immense brain power I got on the roof to wash down the roof and upstairs portion of the house.  Well sitting on the roof was a bit on the hot side. Did you know that when you spray down a roof that the sun has been beating down on the water turns to steam, well I do now. As this small river came rushing down the roof towards my secure spot, it reached my butt, yess my backside, and it cooked it. I felt like I was sitting ing boiling water, guess what DAH i was. I am fighting this disease the best I can, but the longer we go down the road, the more I find out what I do not know that I thought I knew, before I found out that I did not have the first idea about it.

Lately when I get up I am not able to finish crossing that bridge from sleep to being fully awake. I was talking with my ologist this week and he asked if I felt like I was is a fog.  Well the answer is yes, the above is proof of that.Things are just not clear to me any more and I stop more in the middle of things then I did before and wind up doing something else. Each day I decide to write on here and say I should write things down before I post so I remeber what it is that I want to say. GREAT IDEA, problem is I sit down to do it and forget what it was I was going to do, welcome to dreamland.

Well I need to stand right now so you all be good to yourselves and THANK You for helping me win the new award posted on our blog. This is your victory as well.

God Bless & Keep You & This Country of Ours!!!!
joe

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Asking for Help & New Link Added.

I have added a new link, Nursing Home Abuse, for those of you that may have problems with a nursing home or need help in finding and how to look for one.  Do hope that this will be of help.

I am glad to see the comments of help going back and forth, this will help you I think and hope. This is what this blog has been waiting for.  Out of the avg of 179 people that visit each day, I think some of you have great wisdom to offer each other. For me, getting better is not taking place, getting worse is and will till it kills me.

You all know I just love the medical profession and researchers with great and profound moranity. I got a mailer the other day, Alhzeimers cured and the cause, medical book supposedly. AD caused by lack of insulin in other words diabetes of the brain. The gist is that extra insulin can halt or even reverse the damage. A lot of quacks out there, amazing that this one dr. has found this out and has not shared it with the medical community but is with the world.  I think I will go have to cokes so the caffine stops my AD.

I need some help or at least to know if any one with AD out there or caregivers have noticed this happening:
For a cpl of months now I have been experienncing pain in the brain, this is not a headache or migrane as one knows them to be.  It is like someone with really big hands is reachin inside my skull and just squeezing the hell out of my one brain cell, trying to make it smaller. This can last for hours to days, even longer once it is gone I notice that more of me is gone.  I guess the details I follow because of my employment was in the field of computers and data gathering and details, still with me to a degree. Have talke to my shrink and pyhsycologist about this and get a dumb look. So you folks my family if you have any info on this I sure would like to know about it, I feel alone enough now without being the only one with this bull shit.

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