Showing posts with label compliment. Show all posts
Showing posts with label compliment. Show all posts

Thursday, October 7, 2010

AD Still Hard At Work!

I have good and bad days and some are jus plain roten. Believe it or not days I post generaly are not good. Because I start with what I want to post and it just runs out of the brain. It feels like a TV getting good picture and suddleny fuzz, static funny voices, it is realy frustrating.

Well a copuple of days ago we got a new evaluation on where I am, like it really helps me because I never know anyway. We have moved right along to Early Stages of Severe Alzheimer's. Bastard moves fast, but that is the way it is.

New links will be coming and a site added to help you caregivers speak out to each other more to come, I just need to re read emails and get my butt in gear.

Thanks for being there for me and part of the family.

God Bless & Keep You & This Country of Ours!!!
joe

Thursday, July 23, 2009

Good Morning

Wanted to say thanks to those of you taht have used the chat link, it has been fun for me. I think when i request it and the icon goes acros the screeen it scares people out, because they leave. I must admit it has woren me out. I am talking with some folks I hope to put a full time live chat room on. My hope is that it will give those who come to might site a chance to exchange ideas of this disease. Mabee it will help some of you caregivers to have others to talk to and help release some of your frustrations. Hell I know we with the disease are a handful. I find as it is progressing that I am less talkative to others, cut them off or just go to my own world and leave them out.

Physically it is getting more demanding as well, was not prepared for this part and it pisses the hell out of me. I get to ill easily, to faint and way to exhausted. Shopping is not something I tolerate well at all anymore. But there are those that are worse off than I, but I am sure I will goin them soon, the way things are progressing. Even these entries tire me out, takes to much concentration that is getting harder to hold onto.

Well enough pitty potty. You all have a great and wonderful day.

God Bless You & This Country of Ours (we need it now)!
Joe

Monday, February 25, 2008

A Couple Of Days To Remember

Well the last coupleki days have ben interestingl have been working with some very peststy people from HBO in the process of making a documentary on folks like us with dementia. I imagine that they willl call ita show on Alszheimers, I hope the y call a documentery on dementia, since there are two many forms and they are different and people think AD is transmittable.It hwas been a strain to say the least, buth they are actually very nice folks, but we cannot let themmm no that. It is hard to tell folks what it is like, little easier to write it, because you cannot seem me or me se you. I do not know what will happen with it if anything but it has been an experiencer, they could have at least left their one crew member here. We hared some real tense moments and some very enjoyable ones. They honored our table by having a turkey dinnner with us, which makes us feel good inside. But they did not eat any of the fat raid we wnt on. Theat means goodies.. WEllso mouch for now may be back soon.

God Bless You and the Country of Ours
Joe

Saturday, September 29, 2007

Farwell To My Old Friend Pain

The letter that follows has never been sent this is all done in spell check so that it makes some sense. At long last I need to close what is the next to final chapter of my life. I know the individual will never see this but it serves to finish my part and clean my side of the street. It has been awhile since I have posted or written anything, that is because things are well taking their toll or scheckles if you will.

August 24, 2007

Dear Phyllis,

I am not quiet sure how to start this letter or if it will even be sent to you. See I have never broken my word or lied to you. When we last talked, I promised you I would not bother you again and that was truly my intent. But I cannot get over the way you talked to me, when I called as a friend nor the way you ran from me claiming you loved me so much it hurt that August night in 1978. Should I send this, due me at least one final courtesy read it before you rip it up and throw it in the trash.

Yes when I called it was done in friendship and with the hope you would tell me the truth as to why you left me standing like a piece of trash in the middle of the street. I did not deserve that. I did nothing but love you, stand by your side and support you in what you wanted to do. I never lied to you nor even bothered with any other females, you were everything to me and I thought I was to you.

I can only believe that one of two things had happened, age was not one and we both know that, I do not believe you were seeing anyone else either; I think either your parents finally gave you an ultimatum regarding me or you were pregnant and going to get an abortion. I found the second more likely, and would have stood by your side and decision and still cared and loved you, because we were together too long knowing your parents hated me and wished I would vanish into thin air. I tried to show them I would not hurt you, nor was I going to let their dislike for me push me away from you. Kids were something you did not want and if you remember correctly I told you we would marry when you decided and if we were to have children it would be your call. All I really wanted were for us to be together in life forever.

You see I feel my Lord gave me a gift the night you kissed me on the cheek and began our relationship. To that point in my life I had never felt that anyone loved or cared for me. Not even my parents, my father used to beat me till I bled and my mother always told me I should not make him so mad. My friends were non existent, I learned to cheat, lie and steal at my parent's side and how to take and not give back. Of being loved or loving I knew nothing at all. Then you were put in my life and I learned to trust another person, except their caring and their love and I learned to give back without asking or expecting anything for the first time in my life. You were a true gift from God, because of you I have been able to love, give and care for someone other than myself. You taught me that and I am forever grateful, for that gift, which will never be taken away from me.

This is my way of bringing closure to us and saying goodbye finally. You see I never morn a loss, I always have rejoiced in having known the person, and I did not do that with you. I have never allowed the kindness, love, caring and giving you showed me to overshadow the way you left my life as if there was some big dark secret. You see I cannot perceive running from someone you love so much without telling them why they cannot be a part of your life any more unless something so bad in you mind existed that you thought I would do something crazy over. I tell you this in all honesty I would never have hurt you, I would have rather died then cause you any pain, which apparently existed.

So to you my Love and friend, I bid you a found farewell. I hope the Lord continues to bless your life and bring you the happiness that you deserve. Remember we lose loved ones, but rejoicing and celebrating their lives is the greatest compliment that we can pay them. I rejoice in knowing you and am happy for the time you were part of my life.

With Gods' Love,
Joe

God Bless You All and This Country of Ours!