A week gone & Happy 4th to All.

I am glad that last week has past, the crashing out of bed, 8.5 hours at the hospital on sunday. Monday got to relax, the tuesday spent  2 hours iat the dentist, proded and poked and xrayed and open and shut measure this and that, looking into a apnea device for my mouht the mask and i do not get along at all. Then wednesday, good old phychiatrist, they are so non commital and say keep doing what you doing, well i do not want to. Dieing sucks, not knowing what day it is anymore sucks, forgetting where the day went sucks, life sucks so there. Then spent hour and a half at the eye doctors, how wonderful, pull this lid then that one blind me with this light agnd then the next put drops is to measure pressure i guess, that process was met with a bit of resistence, you do not touch my eyes. Then we put all types of drops in them so I can no longer see shit and they take pictures of them. Finally the Doctor arrives and he fuckin blinds me with lights. We discuss a cataract that is in the left eye, he suggested to leave it for now and not operate, smartest thing i heard all week.  But need new glasses.

This week comes and somehow some way a sctrewed up my back and need my brace to move and my scooter to get atround. I know it ends sometime, but when is that time. i forgot what i was going to say.
Oh well take care.

God Bless & Keep You & This Country of Ours - Especially OUR TROOPS.
joe

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It Is May

Just in case you wer not aware it is May. I know the calendar and my computer tell me so and they would not lie to me. Well maybe they would cannot trust them buggers.  At least my brain doesn't, it really does not anylonger link days weeks or months together, let alone years.

According to the wife I have developed my own language, not heard on this Earth is billions of years. It seems that when I cannot get out what I want to say, let alone remembber what it is, I express myself in sort of a babble type lanugaggge. She seems to understand me, I sure the hell don't, I wonder who has the problem. Her or me?  Since she can remember days, what to do and what she is talking about, she has the problem, those type of people do not live in my World. What the title has to do with this is beyond my mind. Sounded good.

Well we got some new young koi, will see how they do. I have to do water changes on the ponds, and I do not want to, it is such a pain in the ass. I guess the fishes like it, but not one has given me a fin to shake and say thank you.  They remind me of gov. officials take it, shove it up my butt and not even a kiss. Yes I am in a mood today, have been for awhile, never kno when they will come or go, seem to stay alot longer these days.

Take care, who knows i MAY see you soon.  There that is why the title. If you believe that your brain is as blue as mine is.

God Bless & Keep You & This Country of Ours!!
joe

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Better Late Than Never.

I know I am a day late and a dollar short but; HAPPY NEW YEARS TO YOU ALL. I want to thank all of you that have followed my blog, sent me coments, emails, good and thos not so. Even the ones I had to have interpreted for me or replying with , WHAT? See you need to keep it simple and clear for me, my one time brain cell hsa shrunk to about ¼ of its size this past year.

My family and I hope and wish all the best for you and yours in the coming New Year and years to come.

For me 2006 was not as good as 2005, 2007 got a little worse, 2008 things got on the move, and last year 2009 this disease reallly started to make itself known. So things being what they are I would imagine 2010 is going to be interesting as I trudge this happy road of Alhzeimer's and FTD.

For now take care catch you on the other side.

God Bless You & This Country of Ours!
Joe

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New Studies - These People Are Idiots!

Yes that is my take on this. They do not have a clue to what they are doing.

NEW STUDY: Gist of the study is that those who have 5 cups or more of coffee each day can slow the onset and progression of Alhzeimer's. Now is what few cells I have left are working, I believe studies in not to distant past showed that this type of coffee consumption put you at a higher risk of Bladder Cancer. Well I guess drink the coffee, get the cancer, stop drinking the coffee and forget the cancer. Maybe I am wrong but seems to me, that spirits were part of this one.

Next & I Love This One: proves a point made in one of my listing.

Salk Institute scientists in La Jolla, CA: major incredible fantanstic break through. Of course we used GENETICALLY MODIFIED MICE:so normal humans won't work in this one. The GM mice "not only lived longer, but the onset of mental decline was also delayed". Reports Andrew Dillion of the university as reported in the North County Times by Bradley J. Fikes. This gets more interesting, I love amoloyids, they do not know what they are to do. According to Dillin (A Professor at Salk), their research shows that th plaques of these toxin protiens in those of us with AD and the like: ready for this: ARE NOT THE CAUSE OF THE DISEASE. Guess allyou PHDs outhere need a brain transplant. Instead and this is a quote from the article: "Instead, the clumps of beta amyloid proteins are how cells stow away the toxic proteins where they can't do damage, Dillin said."
Well now, rest of study is to be published in the 12/11 issue of Cell. Have not gotten to it yet.

I hate to rain on a parade but these folks are all over the place. This is why I am so harsh on them. They can not get their heads unstuck from their a****.

Cannot repair brain cells from what I know. So I see no cure, and all meds may slow down the progression no solid proof they do in at least 85% of AD patients, that I have found, more like maybe 20% if at all.

This is just interesting to me. You may or may not know that many NFL players over time have donated their brains for study, after they are dead to see the affects of all the concusions and blows to the heads they take do. In the group thus far checked of those in their 30,s to 50,s that have passed, it was noticed that, all though no signs at least know showed, but these guys had brains that looked like they had some form of Dementia for YEARS. just something interesting. So you folks know that I do try to keep up as much as possible on my disease and the tinker toy ways they are working on it.

Blast me, but these folks still do not get it.

God Bless You & This Country of Ours!
Joe

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CESTMOI

Yes,it is Tis I. Camelot humor. It seems to me that I just posted, by my wife reminneded me that it had been over a week. Time is becoming of little meaning to me and I no longer seem to have a grasp on it. Today is raining and windy, here in Sunny So. CA, love the rain. At one time it use to charge me up when it would get stormy, now nothing. I feel things moving faster now. I sit here and have to close my eyes to concentrate on what I want to say, and damned if I can figure it out.

Yes it is the Christmas time again. I hope you have a Jolly and Peaceful one. Maybe this time you and I can find away to keep this feeling always not just now.


This year let us not forget for they give us the freedom to live free and enjoy our lives. They sacrifice their lives for us and should be honored.

I know I am not staying very well on ssubject, byt my thoughts are getting in a bind you could say. I wish the old me was here, he could at least most of the time stay on topic.

I doubt that by next year this time, I will be writing here. Hopefully my wife will take over and let you know, where mindless has gone to.

A VERY MERRY CHRISTMAS TO YOU ALL!!!!!!!

God Bless You & This Country of Ours!
Joe

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Good Morning From Nutsville!

Yes it is your on the scene reporter coming to you from his favorite City. I have not the faintist idea what is going to come of this post. I had it thought out and as usual as I type it flutters away.

My wife, Lynn the crazy one that married me, and I were talking one day, when who knows. I told her that my feelings and emotions have real problems with themselves, half the time I do not even care or love my family, other times the opposite is just as strong. I guess this wonderful companion of mine the big Dementia, is doing its job on me as it should be. Time means nothing anymore, a good deal of the past is leaving along with the supposed friends. But I think maybe it is reallly me that is leaving and not them. As Sherlock Holmes once said, I think it was him, Come On Watson The Game is A Foot. That is how i feel.

The cursor is flashing at me, like I should know what the hell it wants. I am not even sure what I want. My head hurts, my thoughts wander and the damned things do not even take me with them, that's the shits.

Well till I remember to come back.

God Bless You & This Country of Ours!!!!!
Joe

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An Email Identity Secret

Message = Hello
I work at a local Alzheimer Society .......... My co-workers and I have been watching the HBO series over our lunch hour. I wanted to stop by and visit your blog.

Thank you for having the courage to share your story so publically. You have made such a huge difference for other people with ADRD because you have put a face behind this disease. Your story is particularly important because it shows that anyone can get Alzheimer's disease...even someone as accomplished as you.

Not everyone is interested in being the "poster child" for Alzheimer's disease (for lack of a better phrase). It is such a personal journey. Thank you for the courage and commitment to do this.

Our chapter is marking it's .... Anniversary this year. In fact we are having a ... on ....... with over 150 people attending it (i.e., to honour the occasion). There are so many people who have touched the chapter...be it person's with Dementia, their family, volunteers and staff.

There are so many people who are working towards improving the quality of life all of those affected by Alzheimer's disease. I know that each of them would send you and your family their well-wishes.

I have worked at the chapter for about half that time. During that time, there have been incredible strides in research and public awareness about Alzheimer's disease. It is encouraging to see this but we all know that there is so much more that needs to be done. Your story will bring much needed awareness to this disease and will help to move things one step further in search of a cure.

Anyway, I just wanted to say hello and THANK YOU!

Sending you and your family warm thoughts...

I have removeed info that would id this person to keep them anoynomous. I am using this email because I have received countless numebers that call me the face of alhzeimers and the voice. I am neither. Just a person with this fricken disease who wants to share our side of the story with you.

I have asked all of you for pics and dates of you loved ones that passted from this disease, as all of us with it do. I received one. So I will be posting it. You see those before me are the face and voice of this disease and should be remmembered and I want this blog to pay tribute to their fight for life. I get tired of hearing about all the big people who have survived this and that, big fuckin deal. We all die period. I am tired of all the crap about cures and how to stop this disease, well prove it to me with a survivor of it. No matter the advancements the real cause and any real treatment exscapes the med prof., maybe someday, I wonder.

I hope Bill's daughter does not take offense at the pic that I have because hers did not come through so I took one from his site. To me it shows the real heart of the man and how he felt about this disease and inate love of life.

God Bless You & This Country of Ours!!!!!!!
Joe

PS: I received a very sad email of the passing of one in my World, but it is sad for the daughter, for mom she is free now. The whole left of years of caregiving will be difficult I believe at best to deal with. To you my love and prayers.

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For You Caregivers

How I got this is beyond me but it may help some of you. You wil nk I did not write thsi spellings is to good. Hope it helps.



Welcome to the Combination Care for Alzheimer's program

As a caregiver for someone who is living with Alzheimer's disease, your role is to make sure your loved one is getting the most effective treatment possible. This means using a combination of approaches—medication combined with other activities can help expand what you're already doing. By enrolling in this program you'll have access to information and resources that can help you learn more about the disease and treatments you may not have considered, such as combination therapy. (Combination therapy is when two Alzheimer's disease medications are used together to increase the benefits of treatment).

Based on what you told us when you enrolled, we have created a personalized Doctor Discussion Guide just for you. This guide offers important tips that can help you work with the doctor and talk openly about your loved one's condition and treatment plan. It also offers a series of questions that may help you have an informed conversation about how you can continue to enhance your loved one's care. As time
with the doctor can be limited, the personalized Doctor Discussion Guide can help you maximize your office visits.

Please PRINT this Doctor Discussion Guide now, review it, and make note of any topics you'd like to discuss at your next doctor's appointment. Beyond this, you will also receive a series of personalized emails over the next two months, providing you with educational and supportive information on how you can enhance your loved one's care. They will also help you learn about ways you can look after yourself as you continue managing your loved one's disease.

Doctor Discussion Guide:

Your Role as a Caregiver Is Essential. As you continue to care for someone living with Alzheimer's disease, it's important that you work as a partner with the doctor. Your doctor relies on you to communicate openly about how your loved one is doing and how treatment is working. The more information you can provide the more you'll be able to help your loved one get treatment that will make life more manageable for both of you.

One treatment option that you and your doctor may want to consider is combination therapy. In the treatment of moderate to severe Alzheimer's disease, doctors may prescribe a combination of medications, Namenda® (memantine HCl)* and Aricept® (donepezil)**, when they believe it will be more effective than a single Alzheimer's medicine alone. Use the following tips and questions to have an informed
discussion about whether combination therapy may be the right option for the person you care about.

Questions to Ask the Doctor:
When it comes to treatment:

1. What additional treatment options are available for Alzheimer's disease?
2. Based on the treatments we've tried before, is there anything more we can be doing?
3. I understand there is an option called "combination therapy." Can you tell me about it?
4. What are the benefits of combination therapy?

When it comes to daily living:

1. In addition to medication, are there any lifestyle changes that you would recommend?
2. What type of mental activities will help my loved one?
3. What type of physical activities will help my loved one?
4. Can you tell me what types of support services in my area are available to us, such as in-home assistance, adult day care, assisted living
facilities, etc.?
5. Can you recommend a support group in my area for caregivers like me?
Tips for Partnering with Your Doctor􀁺

Keep track of changes in your loved one's behavior—It may seem obvious and you may have been doing it for a while, but it's very useful for you to track and tell your doctor about any changes in your loved one's behavior and symptoms such as increased difficulty in performing everyday tasks, agitation, or even increased deficits in intellect and reasoning. Ask family members or friends if they notice any changes that you may miss. And, if you aren't already, consider keeping a journal or diary to note any changes in behavior, so you can share this information with the doctor. You can also write notes on this Doctor Discussion Guide and take it with you to your next appointment.

Prepare for doctor visits ahead of time—Taking the time to write down any questions or concerns you have can help make your office visits more productive. You may also want to bring articles or online resources that you have found with you to the appointments. This way the doctor is aware of what you're learning and where you are finding additional information.

Listen carefully to the doctor and take notes—To be sure that you clearly understand everything the doctor tells you and that you remember it once you leave the appointment, it's helpful to take notes. You can take notes on this Doctor Discussion Guide. You may alsowant to consider using a tape recorder or bringing a friend or family member with you.

Think about yourself too—It may be difficult to consider yourself when so much of your energy is spent caring for someone else, but by staying healthy you're better able to provide the care your loved one needs. Don't hesitate to ask your doctor what you can be doing to take care of yourself so you stay strong too.

Notes:
*Namenda is indicated for the treatment of moderate to severe Alzheimer's disease.
Namenda® (memantine HCl) is a registered trademark of Forest Laboratories, Inc.
**Aricept® (donepezil HCl tablets) is a registered trademark of Eisai Co., Ltd. and Pfizer Inc.
© 2008 Forest Laboratories, Inc.Welcome to the Combination Care for Alzheimer's program

God Bless You & This Country of Ours!
Joe

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Good Morning

Wanted to say thanks to those of you taht have used the chat link, it has been fun for me. I think when i request it and the icon goes acros the screeen it scares people out, because they leave. I must admit it has woren me out. I am talking with some folks I hope to put a full time live chat room on. My hope is that it will give those who come to might site a chance to exchange ideas of this disease. Mabee it will help some of you caregivers to have others to talk to and help release some of your frustrations. Hell I know we with the disease are a handful. I find as it is progressing that I am less talkative to others, cut them off or just go to my own world and leave them out.

Physically it is getting more demanding as well, was not prepared for this part and it pisses the hell out of me. I get to ill easily, to faint and way to exhausted. Shopping is not something I tolerate well at all anymore. But there are those that are worse off than I, but I am sure I will goin them soon, the way things are progressing. Even these entries tire me out, takes to much concentration that is getting harder to hold onto.

Well enough pitty potty. You all have a great and wonderful day.

God Bless You & This Country of Ours (we need it now)!
Joe

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I Am Back, Ready or Not.

You know, no you don't, but this damn disease is a real bitch at times. I find myself having to seperate and kind of hide to keep from lashing out. We have had our one daughter and grand kids and son in law with us almost 3 weeks I think, am not handlin this well. I love them, but.

My wife and I are starting to lock horns more, she thought my last post was rather mean and spiteful, I think that is how she put it. My reply was, well you guessed it eat shit and bark at the moon. I write what I feel and how I see it. It may be clouded it maybe one sided, but it is all I know. I make no excuses for what and how I put it. Those that live in this World with me, they know, they understand and hopefully I say what they cannot at least for now, while I am able to . Yes I am angry as I write this today, better to put it here than where else I might.

Ino We that live with AD, really find ourselves fucked up alot of the time, understanding the real confusion and loss we feel is difficult I know for those on the outside looking in. See we can not get back to the outside to look in, we are stuck here and sinking deeper. Try to imagine the darkness starting to encase you slowly and you cannot stop it and you want out and NO not for you. What is that old saying when Casey at The Bat struck out, there is no joy in mudville.

Well enough from me. You all have a great day and wonderful life.
God know the idiots in Washington won't fix it, but only screw us more.
joe

God Bless You & This Country of Ours!

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Google Adds On My Blog!!!!

You proobably have notice that there are adds in my postings and on the upper right side of my blog. These are additional resources for you to click and go to. I do not select them, GOOGLE does, so that they fit the blogs content. It has been difficult for me of late. I am trying to make my blog more informtavie for all. The reason for the adds. Actually they are sites for you to visit and garner what info you can from them. It is my way of saying thank you for visiting me here.

The image is about Our Country. May she ever remain strong and free. Yes I bleed red, white and blue.

For awhile I had hit sort of a holding pattern and staid stable, but noe things are getting fuzzy and I forget more easily. I guess that is hust pare of this process. Well you have a good one.

God Bless You and This Country of Ours!
Joe

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Tomorrow is My Day.

Yes, yesterdaaay was the werin of the green to be sure. AAAAH but Friday is St. Joseph's Day, the werin of the red, so be carefull. Good thing I have a calendar on my desk by this beast or I would not know the day. Once I leave this point alll bets are off.

Since it is my day here is to the world:

Wish you al well.

God Bless You & This Country of Ours!
joe

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Yes I am Here, I Think!

Beeen somewhere for ahwile but not exactlly sure where. Have been attempting to build sume businesses on-line for the family for xtra income, once I cross that line. I feel it coming closer each day. I am really getting to be a pain. I have been arguing Politics whith a friend and have not been exactly kind in what I have said. He supports the Pres. and I do not trust him as far as I can throw an Elephant.OOh well so much for that. The Joe that started this blog cple of years ago is not here anymore. Infact the one that wrote her last year is gone. This is the part of the loss of me (dying) that bohters me, who will I become and what. Death of my body does not bother me, in fact it will be a blessing. I know my family is making memmories with me for when I am not here and that makes me happy. My youngest daughter, cut my hair. She called it a caldusec look, because we buzzzes the topand just trimed the sides. The name is because we live on a caldusac. When the sides stand up, because combing is not in my world, my wife calls me Albert, because I remind her of Albert Einstein, not bad company. Well you all have fun.

God Bless You & This Country of Ours! in case you forgot BHO this is the symbol of our Country.
Joe

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Lost In Time!

I have jsut relized that we are already at the 10th of January. A new president willl take office in ten days I think it is. When I first got the wonderful news of this new paradise that I am to lvie in, it did not bother me too much. I felt that as with ofther things it was just my turn, deal with it. It was not bad at first I had many good days with small moments in them and then days that just who the hell knows where I was. But they have seemed to merge together. Truly I have a proble with what day it is, even though I keep a calendar by my computer and mark the days off. I have gone back to sticky notes, but the real kick is remembering to use this stuff. I am not angry with the condition, but it really plays hell with you. I do not venture out alone, who knows where I will be. I find spending lengths of time with outrthers becoming quite uncomfortable and extremely distracting. My patients, which I never had, just does not handle it well. I am loosing my train here, so I guess I will go wait for a bus. Catch Ya later.

God Bless You & This Country of Ours!
Joe

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Welcome to 2009!

Well the New Year of 2009 is well upon us. New challenges, changes and I am afraid much of the same old bullshit. I hope your year is good to you, I know that mine will only get tougher, but that is alright. Just think if I didn't have this wonderful sickness, YOU MIGHT. So I am doing you a favor. May you find comfort in you life and giving to others.
My world and how I feel in it much of the time.

God Bless You & This Country of Ours!
Joe

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This Pretty Well Sums It Up!

The folowing is form some friends of mine, slightly more mature than I and walk in my World. Though I forget many of a friend until I get an email, it still amazesss me that you can grow to love and care about those you have never seen or shared a spoekn word with.

HOW TRUE IT IS

Another year has passed
And we're all a little older.
Last summer felt hotter
And winter seems much colder.

I rack my brain for happy thoughts,
To put down on my pad,
But lots of things, That come to mind
Just make me kind of sad.

There was a time not long ago
When life was quite a blast.
Now I fully understand
About 'Living in the Past'..

We used to go to friends homes,
Baseball games and lunches.
Now we go to therapy, to hospitals,
And after-funeral brunches.

We used to have hangovers,
From parties that were gay.
Now we suffer body aches
And sleep the night away.

We used to go out dining,
And couldn't get our fill.
Now we ask for doggie bags,
Come home and take a pill.

We used to travel often
To places near and far.
Now we get backaches
From riding in the car.

We used to go out shopping
For new clothing at the Mall
But, now we never bother...
All the sizes are too small.

That, my friend is how life is,
And now my tale is told.
So, enjoy each day and live it up...
Before you're too darn old!!

HAPPY NEW YEAR
& thanks for making my days enjoyable by your Blog and e-mails funny or sad .

Wally & Delores

God Bless You & This Country of Ours!
joe

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Lack of Feed Back!

I use to get many more emails and comments on my postings, with over 12,000 visitors I brain thinks I would hear more. I guess maybe of late I have tried to show too much humor and people want the gore. Well the humor is howw I keepp my self together. Without it thiss life would be darn near unbearabel. I is no fun trust me sitting here tryiing to write to you and tell you that the wolrd really sucks.I does not get out of my head to the keyboard when I want it to. Tihngs do not get better here, they just slowly go down hill. I read all the new studiies and new stuff to try and I really laugh at this so calllled professionals. They all contradict each other, I wonder if they are not suffers as well. March to stamp out Alhzeimers, RIGHT! Asses don't even know what really causes it to start wity, great progress in over 100 years. I am not thrilled with having AD & FTD, but that is the way it is period. You should try it some day, look at people you have been with for 30+ years and not even know who they are, let alone what the hell they are talking about. Damn most of the time I am not sure what I am saying or trying to say. Well old ½ of brain cell here will say good bye for now. Be good to yourselves.

God Bless You and This Country of Ours!
Joe

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As My World Turns!

You know I have to get going early and do what chores I have, because about this time my world starts to slow down and crash. This won't be long, but I do apprecaite hereing from you folks, the good, the bad, the ugly, etc. It makes me feel like I am not preaching to the trees or the walls. Well my you all have a good one.

God Bless You and This Country of Ours!
Joe

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