Showing posts with label practioners. Show all posts
Showing posts with label practioners. Show all posts

Tuesday, August 31, 2010

This Comment Deserves Posting Status

The following comment deserves to be used as a post. This is what I have tried to get others that were invited as posters to do. I share my side, you share yours.

Anonymous has left a new comment on your post "About the parboiling":

Good morning Lynn and Joe. I can certainly relate to this situation. Unfortunately, memory is not the only effect of this disease but also logic,reasoning, and EGO are noticably effected. We have one and a half acres of lawn which we have a good sized tractor for mowing. My husband refuses to allow me to mow with the tractor and always says that I wouldn't be able to handle it. The truth is I used to do the mowing with the tractor but he claims that he doesn't remember that I ever did. The truth has come out that he really feels it is the one thing he still does and doesn't want me taking over it. We have fought and fought over this over recent years now and I can't seem to win. His abilities to maneuver and control the tractor are noticably impared but I still cannot get him to concede to allow me to do the mowing. He is aware that he has problems with doing the mowing and procrastinates just as long as he possibly can. The best plan that I have come up with is to use the hand mower to cut the two areas that are potentially dangerous with the tractor. When I first started doing this he even continued to take the tractor over the same areas that I had already mowed just because he resented the idea that I felt it was something he could no longer do. I just can't seem to get across to him that just having him safe and uninjured by my side day after day is so much more important to me than him proving to himself that he can still do certain things. I think we could all benefit from hearing from others who have faced these challenges and how they were able to successfully navigate through these types of situations. Thank God Joe's experience was his parboiled fanny and not a fall from the roof! I pray that my husband's experience will only be damage to his tractor and not to his body.
May God bless us and guide us through our journey of life, whatever it brings our way!



Posted by Anonymous to Living with Alzhiemers' at 6:50 AM



God Bless & Keep You & This Country of Ours!!!
joe

Tuesday, June 1, 2010

Expectations

I have been doing this blog for a number of years now. Trying to tel you what it is like on this sid of the fence. I am begining to wonder if what I am saying is getting old and has no meaning. See I belong to a group study and we have a saying, "EXPECTATIONS ARE PREMEDITATED RESENTMENTS"! I feel those resentments because I seem to get far less comments or emails. That is my proble because I am expecting something in return for my posts, really I am not entitled to any replies. This is my story with the disease and only my point of vew, such as it maybe.

I met with my shrink today and we kind of got into it and I told him you do not know what is in this world in which I live now, you are on the other side, you are one of them. I know that my progresion has been seemingly slow and I have been well contained for lack of another word. But that is only because of the brain power that I possed when this all started, I could control a lot of what was happending and hide it, I am no longer able to do that, it (AD & FTD) are doing their jobs very well now and the fox can no longer out run or manuver them. Thank goodness my friends and family are around to guide me or I would be totally lost. I do not even want to leave my house anylonger or really take part in life, I am retreating into myself where I feel safe. Whether this is part of the proscess or not I do not know, all I know is that it is happening.

Take care of yourselves.

God Bless & Keep You & This Country of Ours!
joe

Thursday, May 6, 2010

Last Night

Last night I found myself in very difficult and not likeable sitution.  It was a rough day for me as it was. We sat down for dinner and I put my food on my plate and completely froze. I had no idea what I was doing or what to do, my wife tired to help put I just told her leave me, she put my fork in my hand and it just fel from it, I was in a state of, in betweenness, between here and there. I finally started eating but with my fingers and slowly got back to where I should be. I am about 4 or so years into this and it is taking hold now as it seems to do about this time.

Now I am a beginning to become really concerned and not so humorous, but life will go on and so will I. I guess that line of no return is getting closer and sneakier about things.

Well that is it for now from: us here in Oceanside, CA.

God Bless & Keep You & This Country of Ours!
joe

Friday, April 9, 2010

Frustration Reigns!

This week has been a difficult week for me. Just toooooo much family and kids. Good thing I have additional meds to take or I woud not have kept things to gether. I love my family, but I am becoming less tolerant, more mouthy, angry and pissed mor easily. I have a grate deal of trouble controlling my mouth and emotions lately.

I want to thank the two who have taken the opportunity to guest blog here. I have invited several that I thought could add to the thought processes found here on both sides of the fence as it awere.  But it seems that some old "friends" choose not to. Everyone has something to offer. Even if it does not agree with what is felt here. That is what this blog is about. Expressing feelings about having dementia and those careing for us. Neither side is neat and tydie, they both suck. I miss the days when I could think more clearly and express myself and do it (ego here) with little room for argument. Now I am lucky to blog at all. But no this you are all welcome even those who feel I am just an angry old fart, angry yess, old yess and I guess a fart as well.

I try to not talk about everyday things, but how this disease affects me overall. Yess some days I am on top of it others I cann't even find the stairs. I do find the walls I walk into them and excuse myself. Yes I have taken additional meds today, and am still shaking inside and my temper is border line, but the impression of my teeth in my tongue helps me keep quiet. I will be posting some emails that I have been give permis to, I ask because not everyone leaves comments.

Dr. Joe I guess the 10.00 bucks I paid you for your post paid off. Doc I really cannot walk on water, trust me, I can barely walk on the ground without it moving. But I thank you, my friend.

Well you all take care and be good to each other.

God Bless You & Keep You and This Country of Ours!
Joe

Wednesday, March 31, 2010

Before The Lynchers Come After Me!

Sorry I forgot they have discovered a GENE in some families that makes them more prone to AD. What a mystery, we knew it ran in some families, great rocket scientist work that there was a gene. So I ask, what does that do for these folks? Did you discover how the gene causes AD? (Yes or probably NO) Just how will this help those to follow me and others? I know I sound skeptic, but 100+ years and nothing. Imagine HIV in 1980's, we are now working and testing a vaccine for it. I am sorry for thoses who got the disease through no fault of there own, but sharing needles, unprotected sex, etc. your choice. I and those before me and with me have not had any choice in this. I could take on cancers and heart disease, but I think most of you know how I feel and why.

#7 Reported Killer - AD.  No cure, No Survivors. Only you can really help come out of the shadows and join others and beat down the doors of stigma, we are not lepoards which now can be stopped.

God Bless You & Keep You & This Country of Ours!
joe

Sunday, August 9, 2009

For You Caregivers

How I got this is beyond me but it may help some of you. You wil nk I did not write thsi spellings is to good. Hope it helps.



Welcome to the Combination Care for Alzheimer's program

As a caregiver for someone who is living with Alzheimer's disease, your role is to make sure your loved one is getting the most effective treatment possible. This means using a combination of approaches—medication combined with other activities can help expand what you're already doing. By enrolling in this program you'll have access to information and resources that can help you learn more about the disease and treatments you may not have considered, such as combination therapy. (Combination therapy is when two Alzheimer's disease medications are used together to increase the benefits of treatment).

Based on what you told us when you enrolled, we have created a personalized Doctor Discussion Guide just for you. This guide offers important tips that can help you work with the doctor and talk openly about your loved one's condition and treatment plan. It also offers a series of questions that may help you have an informed conversation about how you can continue to enhance your loved one's care. As time
with the doctor can be limited, the personalized Doctor Discussion Guide can help you maximize your office visits.

Please PRINT this Doctor Discussion Guide now, review it, and make note of any topics you'd like to discuss at your next doctor's appointment. Beyond this, you will also receive a series of personalized emails over the next two months, providing you with educational and supportive information on how you can enhance your loved one's care. They will also help you learn about ways you can look after yourself as you continue managing your loved one's disease.

Doctor Discussion Guide:

Your Role as a Caregiver Is Essential. As you continue to care for someone living with Alzheimer's disease, it's important that you work as a partner with the doctor. Your doctor relies on you to communicate openly about how your loved one is doing and how treatment is working. The more information you can provide the more you'll be able to help your loved one get treatment that will make life more manageable for both of you.

One treatment option that you and your doctor may want to consider is combination therapy. In the treatment of moderate to severe Alzheimer's disease, doctors may prescribe a combination of medications, Namenda® (memantine HCl)* and Aricept® (donepezil)**, when they believe it will be more effective than a single Alzheimer's medicine alone. Use the following tips and questions to have an informed
discussion about whether combination therapy may be the right option for the person you care about.

Questions to Ask the Doctor:
When it comes to treatment:

1. What additional treatment options are available for Alzheimer's disease?
2. Based on the treatments we've tried before, is there anything more we can be doing?
3. I understand there is an option called "combination therapy." Can you tell me about it?
4. What are the benefits of combination therapy?

When it comes to daily living:

1. In addition to medication, are there any lifestyle changes that you would recommend?
2. What type of mental activities will help my loved one?
3. What type of physical activities will help my loved one?
4. Can you tell me what types of support services in my area are available to us, such as in-home assistance, adult day care, assisted living
facilities, etc.?
5. Can you recommend a support group in my area for caregivers like me?
Tips for Partnering with Your Doctor􀁺

Keep track of changes in your loved one's behavior—It may seem obvious and you may have been doing it for a while, but it's very useful for you to track and tell your doctor about any changes in your loved one's behavior and symptoms such as increased difficulty in performing everyday tasks, agitation, or even increased deficits in intellect and reasoning. Ask family members or friends if they notice any changes that you may miss. And, if you aren't already, consider keeping a journal or diary to note any changes in behavior, so you can share this information with the doctor. You can also write notes on this Doctor Discussion Guide and take it with you to your next appointment.

Prepare for doctor visits ahead of time—Taking the time to write down any questions or concerns you have can help make your office visits more productive. You may also want to bring articles or online resources that you have found with you to the appointments. This way the doctor is aware of what you're learning and where you are finding additional information.

Listen carefully to the doctor and take notes—To be sure that you clearly understand everything the doctor tells you and that you remember it once you leave the appointment, it's helpful to take notes. You can take notes on this Doctor Discussion Guide. You may alsowant to consider using a tape recorder or bringing a friend or family member with you.

Think about yourself too—It may be difficult to consider yourself when so much of your energy is spent caring for someone else, but by staying healthy you're better able to provide the care your loved one needs. Don't hesitate to ask your doctor what you can be doing to take care of yourself so you stay strong too.

Notes:
*Namenda is indicated for the treatment of moderate to severe Alzheimer's disease.
Namenda® (memantine HCl) is a registered trademark of Forest Laboratories, Inc.
**Aricept® (donepezil HCl tablets) is a registered trademark of Eisai Co., Ltd. and Pfizer Inc.
© 2008 Forest Laboratories, Inc.Welcome to the Combination Care for Alzheimer's program

God Bless You & This Country of Ours!
Joe

Tuesday, July 28, 2009

GOOD MORNING WORLD!

hope you are all fine. Chat seems to be working out ok. Have gotten to talk with some nice people. One in particular a 21 yr old woman in Boston, who at her age has taken on the daunting task of working in an Assisted Living Facility and going to host an Alhziemer's Proget meeting. I know what it takes to work in such a facility, you see that is where my mind was made up at an early age, while I handle the computer systems for 3 facilities, never would I live the way I saw. My heart broke working there.

I have gotten a few that well shall we say have not been really forward, challenge them and they disappear, oh well.

I have been told to write a bok about this journey and I hae tried but you know I thought about it and said yes good ideaa. But then I started to think, something ya thnik. I am writing a book here, completely unedited. Certainly not proof read and things but neatly. But this is a living book ever changing, always wanted to write one andnow my brain realizes after how many years at this, that I am.

A little slower on the uptake these days. Well now, I lost my train and my thoughts, fuck I hate this shit. Catch Ya Latter.

God Bless You & This Country of Ours!
Joe

Tuesday, July 21, 2009

How Chat Works

When you come to site you can click on the blue Live Chat and we can talk. Aslo if you do not the system notifies me that someone is on my blog and I can invite you. What happens is this beautiful young lady in a box (my alter ego) comes across the screen says her name is Jane and Hello and asks if you need help. Actually that is me inviting you to talk. Just click start chat or no thanks. Sorry if the hi tech scares you, but I am having fun with it, of course the folks in Israel you created this program meant it for companies and they have spent hours explaining things to me. This am I am ok, will see what the rest of the day holds. Be Good. You never know when you may here my voice when you come to the site.

God Bless You & This Country of Ours!
Joe

Sunday, June 28, 2009

From The Clouds Comes The Darkness.

Some or many of you know I quit drivnig a long time ago, by my choice because of the danger I was, then my drs. told me not too, they were a litttle behind the curve. Well now the check book has a problem, ME. so the wife has to take that ove now. See they call this MCI (mild cognetive impairment), up my ass. Come live in my brain and tell me how mild this bull is. See how you like it when you stand up turn around and do not know where the hell you are or the wall hits your face or your world spins. Get lost in the talk you are havngi. Set and stare at the computer and not know why you are looking at it. MCI explains it all. The Dr. who first coined this phrase had brain cell farts in my book and sure didn't know mild from a hole in the ground. But of course he knows it to be so, he is smart, right.

Well let me go I need to practice for Moderat Cognitive Impairment, so I don't know what the fuck or what the hell I am doing. That should be fun.

All you caregivers remember MCI and see how you think of it. Your thoughts much welcomed. By the way you Drs. and Holistic nits that send me your causes and cures go away, I have checked out studies and they do not work. Some provide a year or so of added time, then the person is right where they should have been, big service you do. Yes, I was told how herpes causes AD and then had an advertisement at the end of the email for vits and herbs to help cure and slow down. I guess I must really come across as a moron and totaly stupid. But this posts are getting harder and I am getting more, well less friendly and tired.

God Bless,
Joe

Thursday, April 2, 2009

A Change, I Am A Crook

I OPENED WHAT IS CALLLED A GOOGLE ADSENSE ACCOUNT, SO THAT YOU WOULD HAVE MORE RESCOURES AT YOUR DISPOSAL THROUGH SIDE ADDS. WELL GOOGLE AND OUR PRESIDENT THINK THEY CAN JUST FIRE ANYONE IN THE PRIVATE SECTOR. THE ADDS ARE GONE, SOMEONE WAS CLICKING ON THEM, GOD FORBID, WHAT THE FUCK WERE THEY THEIR FOR. ANGRY YES I AM, I DO NOT LIKE BEING CALLED A THIEF OR IT BEING IMPLIED. THAT IS EXACTLY WHAT GOOGLE HAAS DONE. SO, IN MY INFINITE WISDOM I CHOOSE TO SAY SCREW THEM AND USE YAHOO FROM NOW ON. I REALISE THAAT MEANS CLOSING THIS BLOG DOWN AND STARTING OVER. BUT I TRIED TO GIVE YOU THE STORY ON THIS SIDE OF DEMENTIA AND OTHER RESOURCES, BUT GOOGLE DOES NOT THINK YOU ARE WORTHY. SO IF THIS GOES AWAY, I WILL TRY AND LET YOU KNOW WHERE I WENT, IF I REMEMBER EITHER ONE.

GOD BLESS YOU & THIS COUNTRY OF OURS!!!
joe

PS THEY PAID ME AN UNBELIEVABLE AMOUNT FOR WHOEVER CLICKED TO GET THE INFO THEY WANTED YES I AM A REAL FUCKIN CROOK $0.81, LOCK ME UP NOW!

Sunday, August 31, 2008

Why I Do This Blog!

Message = Joe,
First I would like to say that I am sorry for the crappy deck of carded dealt to you. It seems as if we are looking forward to working ourselves to death to enjoy our older years. And then this. It is not very fair at all.

I came across your blog while researching Dementia. My mother-in-law was diagnosed 3 years ago at the age of 51. She progressed quickly and has now lost the ability to talk and lost her ability to control her bowel movements. She is trapped in a world all alone.
Do you have any advice on ways to comfort her? I would like for her to know that no matter if she knows us or not that we still love and care about her.

Thank you for your time and I hope for the best for you.
(we will call her)
Pam

Subject: Your Mom

Dear Pamela,

Sorry it has taken me so long to get back to you. I keep trying and keep forgetting or start and go off and start something else. The nature of this Disease. Being that your mother and I live in the same World which is different from yours. I can just imagine your feelings as a caregiver, that is why I started my Blog, so the outside world could get at least to know how it is for one person and help some to understand those they are caring for.

The best you can do for your mom is what you are doing. Being there for her, talking to her, telling you love her, sitting with her and not speaking, hold her hand, smile at her, keep your tears to yourself, she has too many in her heart to bear yours. Trust me she know deep inside you are there and helping. This disease just stops us from responding well and takes our lives away from us. I know my family gets nuts over me, because I cannot always hold a conversation with them or follow theirs and I forget who the hell they are. I am pretty outspoken and direct if you really read my blog. I am offensive at times and I do not care, because I am discussing My World the hell of it. Be glad on this email I used spell checker, because generally do not I want folks to know how this crap really is. Any further emails I will not use it, so I hope you are good a picking something apart to understand it.

Being there for your Mom is the single best thing you can do for her. I have told my family and it is in my blog, when I get to close to crossing the line of this disease as your mom has, I will say good bye to all and be gone. I will not put myself or family or friends through the last stages. See I worked for a number of nursing homes that had those that could manage on their own and those that needed assisted living care and those who needed accute care, as I was developing this disease. I still remember going through the lunch room at one of the homes (I took care of three homes computer systems) and watched the attended lift this ladies face out of her food and clean her, never I said at that point would I allow my life to become such a burden and worthless being. My heart broke that day and I finally noticed the real death of these folks that were around me. They were gone and someone else was living in them and I cried and said never would I put anyone through that. But remember that is me and my feelings.

I may post this reply on my blog, if you do not mind. I sometimes use the email people send me and my answers back to them.

God Bless and Hold You Tight in His Arms!
Joe

Joe,

Thank you for your response. You are more than welcome to post this on your blog. Reading through your eyes has given me perspective. I hope a lot of other people, especially caregivers, can see this too. Maybe it will take some of the frustration away. Maybe it will help people be a little more compassionate and forgiving and a little less annoyed and frustrated.
Thank you for your insight.

Pamela

God Bless You and God Bless This Country of Ours!

Friday, May 9, 2008

Crossing The Line

Some of you may have read in other entries of mine of that line that those thaat live is this World of Mine cross. Itt is that point where you cease to be who and what you are and become another entity, if you do not physicallly pass on. Yes they say this is gradual and can take many years, true but sure, it can happen in a day. Here today gone tomorrow. I have over the years since joining this ever growing community of those with dementia have seen it take place just that way. One instance my wife told me of a fellow at one of the sites she works at who has been reading my blog and hopefully gainnned some insight and comfort that he was faultless. HIs mother was fine the one day and the very next (24 hours later), knew crap, nota and required suddenly 24 hour care. So many I have communicated with that suffer have had this take place with them, because I speak (this form) with their loved ones and caregiverss and they tell me of this suddeness. What say you perverers of great wisdom and knowledge, what is that "Duh". MY own life is growing shadowier, forgetting we said grace at dinner, turning on this beast, conversations in the middle of them, physically becoming a poster child for damage of the year or how to screw up your body in one simple lesson. My time is coming when ?????? but it is on its' way. I have told my family the day will come as long as I have any ability to think as who I am, that I will kiss them all and say goodbye and be gone. I believe I have the right to passon with some of me in tact and with some dignity. I refuse to have my family see me lying with my face in my food, as I have seen from working in Assisted living homes when doing computers. Looking into the trap souls of those folks through their eyes made my decision along time ago shoulod I ever be blessed with this disease. There is no cure and most likely will not be one, until they whoever they are talk to US and really learn. For their knowledge of the brain fits in the head of a pin. Bye for now until next time be good to yourselves.

God Bless You and This Country!
Joe

Friday, May 2, 2008

New Technology for The Eye

Do you suffer from myopia (near-sightedness), hyperopia (long-sightedness), presbyopia, astigmatism, computer vision syndrome or cataracts? Well now that is quite a question isn't it? I am using spell checker (as you know it is something I do not do). I was approached by a site http://www.pinhole-glasess-direct.com/ to view their site and give my opinion of the site and I would presume the product. They think I have a unique writting style, poor souls. Well what follows is my view only and not an endorsement of the product, remember that.

Pinhole-glasses are glasses that have laser (precised) cut holes in them on what appears to be a non clear plastic. Could be wrong there. You need to know that these glasses are for stationary use only. Bull riding, cow punching, climbing Mt. Everest or driving the Indy 500 are out. They are made for those folks who suffer from the question I started with, which is directly from their web site. The site makes a valiant attempt at describing the conditions and how their product works. It is pretty simple and straight forward. Even I understood most of it, of course it took me a number of hours reading it to get through it. But that was so I could write this and be fair to them. On awhole I think the product sounds good and probably, if the claims are accurate, benefit people like me who have 2000 pairs of classes because their eyes are worth not a heck of alot. See I am far, near, close and every which way sighted. Blind in one eye and cannot see out of the other. So how can I type this if I cannot see, blessed with powers beyond your belief, I look at the keys while I type.

The site is easy to manuever through and not trying to sell SNAKE OIL for 19.95 + if you order right now you get twice the amount, but wait I am not through, you order in the next 10 minutes we will add these special 10 scrubbing pads, breathing mask and Dr. Watchmacall its' famous toe remedy. I would preferr the site to be more colorfull, but you see I live in a world of color, no white walls in my house buddy (they would blend in and I would walk into them).

Check the site out let them know what you think. In fact let me know. You can leave comments right on this post (the best way) or use the email form on the side, which I never publish what is said in it. I have not bought a pair, not sure I will, and if I should, I would tell you exactly what I think of them. Good, bad or otherwise.

Well my brain hurts and I have had a few bad days so I will say goodbye for the day and when I remember I will return.

God Bless You and Our Country!
Joe

Tuesday, April 22, 2008

Early Signs Differ

I have been asked whaat did I notice in the beginning that made me think something was wrong. On the side of my blog are places to go for the medical signs. However no two persons are alike. My Physciatrist and I talked ablut this he his opion, which to me makes sense, it takes so long to determine because it depends where you start. In other words how much grey matter do you have to statr with and have deminish. I noticed around 50, that multi tasking for me was starting to be confusing. I was able, to handle 10 projects at a time without notes and jump from one to the other and back again and never miss a beat. I was in the computer field (the beast of humanity). I started to have to pause to remember and even take notes, something I did not do, I would forget my pen, my glasses, what day it was, peoples names, stand up to do sommething and sit down again because I forgot. Eeach of these things in and of themselves is no big deal. But once I started to connect the dots, you know that old kids game where you go from one dot to another and a pickure forms, these things were happening daily and more and more often, I still functioned and got my job done, but I knew something was happening. Doctors or you are depressed, absent minded, forgetful, to much anxiety, all of a Sudden, no trauma had taken place. Things progressed slowly, but I could feel that my once active mind was slowing down and not because I was growing older. Talking to the text book guys was not helping. Finally after several years of pushing and refusing the bs answers my physcologist started to believe as I did that some form of dementia was occuring, because of my memory losses, inability to do things in minutes that now took me hours to days to do, because I forgot how. His dad had Alhziemers and he started and was the first to believe this was taking place with me. My Physc was not sure but felt that some form of dementia was occuring. My physician just plain ass was not sure, because I could still hold a conversation. Finally one day talking to him with my wife, the lights went on in his head there was something wrong because he was finally paying attention to the trouble I was having talking with him. We had done MRIs and EECs and Cat Scans, with no result, so he ordered a Pet Scan. Low and behold, his words get to a neurologist I can not help you, well none of them had been able to either. Armed with history at the PS, the new neurologist confirmed that I had Frontal Temporal Lobe Dementia along with inconsistent consistencies of Alzheimers (good one). so here I site be inconsistent and whatever else I am. All I know is that you need to look at the whole picture and stand firm and make your physicians or whatever explain why not and why something else and if their treatmenst do not work move on and kick down as many doors as needed until someone listens and starts to did. NOtes help and having someone with you that has known you for a time that can see the differences and help explaim them will help. Thankfully I have a wife that is stuborn as I am and keeps going until the truth is found. You may not like what you find but you have the right to know. I am not only having greater trouble with the grey matter but the physical affects are starting to settle in. Well you all behave and God watch over you.
God Bless
Joe

Monday, April 14, 2008

From a Fellow Suffer to YOU Who Care For Us

Alzheimer's Prayer

Dear Lord,
Please grant my visitors tolerance for my confusion,
Forgiveness for my irrationality and the strength
To walk with me into the mist of memory
My world has become.

Please let them take my hand and stay awhile,
Even though I seem unaware of their presence.
Help them to know how their strength
And loving care will drift slowly
Into the days to come just when I need it most.

Let them know when I don't recognize them
That I will. . . I will.
Keep their hearts free from sorrow for me,
For my sorrow, when it comes,
Only lasts a moment, when it's gone.

And finally Lord, please let them know,
How very much their visits mean,
How even through this relentless mystery,
I can still feel their love.
Amen!

-Unknown Author-

God Bless,
Joe

Tuesday, April 1, 2008

A Toast to Beckey Bright

Ms. Bright appparently writes a coloum called Blog Watch for the Wall Street Journal. How and why she featured mine escapes me. I say thank you to Beckey. I am overwhelmed by the number of people that contacted me since yesterday. In fact it humbles me and that takes a great deaaal to do. Hopefully I made some new friends as I walk the road. There are so many out there that suffer as I do and evven worse, that I write this blog so that our side gets tolkd at least ass how it affects me and those around me. The last several weeks have been tough for me. I think my wife is getting use to me standing in the issles in the store kind of looking at her and pointing and saying I know you, then things register. My kids even ask me on the phone if I know who iam taking with. Sometimes I know right away others it takes a few minutes of talking, but I still have a ½ brain cell left so I function. To all of you that write me and tell me that you have gotten even a little comfort from this blog or undersstanding, my heart goes out to you with my own tears as I sit here and write, this has taken meee most of the morning til now to get this together. Thank You.

God Bless you all.
Joe

Wednesday, March 26, 2008

Humor Comes In Many Forms

The following is an email sent to me by a friend, who undersstandds my sense of humor and since I suffer from both thing in this, I find it funny. Enjoy or don't your chouice




In Pharmacology, all drugs have two names, a trade name and generic name. For example, the trade name of Tylenol also has a generic name of Acetaminophen. Aleve is also called Naproxen. Amoxil is also called Amoxicillin and Advil is also called Ibuprofen.
The FDA has been looking for a generic name for Viagra. After careful consideration by a team of
government experts, it recently announced that it has settled on the generic name of Mycoxafloppin. Also considered were Mycoxafailin, Mydixadrupin, Mydixarizin, Dixafix, and of course, Ibepokin.
Pfizer Corp announced today that Viagra will soon be available in liquid form, and will be marketed by Pepsi Cola as a power beverage suitable for use as a mixer. It will now be possible for a man to literally pour himself a stiff one. Obviously we can no longer call this a soft drink, and it gives new meaning to the names of "cocktails", "highballs" and just a good old-fashioned "stiff drink". Pepsi will market the new concoction by the name of:
MOUNT & DO.
Thought for the day: There is more money being spent on breast implants and Viagra today than on Alzheimer's research. This means that by 2040, there should be a large elderly population with perky boobs and huge erections and absolutely no recollection of what to do with them.

Welcome to my World.
God Bless
Joe

Monday, February 25, 2008

A Couple Of Days To Remember

Well the last coupleki days have ben interestingl have been working with some very peststy people from HBO in the process of making a documentary on folks like us with dementia. I imagine that they willl call ita show on Alszheimers, I hope the y call a documentery on dementia, since there are two many forms and they are different and people think AD is transmittable.It hwas been a strain to say the least, buth they are actually very nice folks, but we cannot let themmm no that. It is hard to tell folks what it is like, little easier to write it, because you cannot seem me or me se you. I do not know what will happen with it if anything but it has been an experiencer, they could have at least left their one crew member here. We hared some real tense moments and some very enjoyable ones. They honored our table by having a turkey dinnner with us, which makes us feel good inside. But they did not eat any of the fat raid we wnt on. Theat means goodies.. WEllso mouch for now may be back soon.

God Bless You and the Country of Ours
Joe

Tuesday, August 14, 2007

Well Another Day

Had annual physical two weeeks ago, funny thing they say my lungs are ok, but two years ago x-rays said had emphazema, I questioned how that could be, I am not the brightest light bulb in the pack, but I do know that shit does not go away it works till it kills you. So it appears after I had the doc (himself) look at the xrays and not take the radiologists word for things, the original x-rays were so bad he could not make any kind of a diagnosis, but the current ones are good. Two years on meds that I did not need because some idiot cannot do their job right. So to help with the old brain, we had a PET Scan and it shows that half of my frontal lobes are, well in Peru. That means the rest will follow. Have read some recent studies that AD is thought to start as other dementias in the frontal lobes. WEll we are off to see one of the two best neurologists in the state on 9/4, that ought to be fun. Can hardly wait for this diagnosis. All I know for sure is my life is slowly disapating and I get lost in a world I do not know where and my youngest now tells me I am mixing of the sexes when I talk hes are shes and so on. Life is still ok I am breathing, I can still do that right at least.
God Bless You and this Country of Ours!
Joe

Monday, July 23, 2007

Well Today Is Monday

The staart of another week at home with most everyone gone. My brain must be cleuless at 62 and a half I am digging out juniper bushes and leveling the ground to build a wall. Most I can handle is an hour or so. Body stops and brains quits. Not to smart theses days. I get a PET scan sometime this week I think. Had lungs and coratic ateries checked, called me today and said everything is ok there. Sounds other then normal aging aches and pains, physically I am ok. Upstaitts is a difereent story.It is peaceful and quite in the house right now and I am alone and really like it. My brain isn't really doing anything either. Been closing up my on line businesses, one left to go, in fight with credit chard companies and FTC over all of this but what the heck. It helps my my mind hold on to somethinging rather then going off to whereeever it goes. Half my doctors believe it is Alzheimers especially the one who lost his father to it, the others say maybe but you do not fit in theis fricken box. Askw what the heck is wrong and well you might as well look a a wall for nothing comes back nor is ist said. Well heaven doesn't want me, the devil could care less and death turns a cold shoulder, what is a guy to do. so much for the pitty me side to day. May your life be filled with love, happiness, health and peace.

God Bless,
Joe