My 300th Post - Mercenary This Time

As you may or may not be aware I have self published my blog through Xlibris Publishing and it was released in 10/2011. On the right hand side of my blog, yes I am promoting, hell I have to pay for this some how, you will find a new spot to buy my book, directly from me and I will even sign it for you. I got a limited supply from Xlibris at special pricing. The price includes any taxes and shipping costs for the price. If need be I will send Uncle Louie after you.
Some Humor Today:

EXERCISE  FOR PEOPLE  OVER 50

Begin by standing on a comfortable surface, where you have plenty of room at each side.

With a 5-lb potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute, and then relax.

Each day you'll find that you can hold this position for just a bit longer. After a couple of weeks, move up to 10-lb potato bags.

Then try 50-lb potato bags and then eventually try to get to where you can lift a 100-lb potato bag in each hand and hold your arms straight for more than a full minute. 

(I'm  at this level.)

 

 After you feel confident at that level,  put a potato in each bag. 

God Bless & Keep You & This Country of Ours!!!!

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Some GrandParent Humor Today

I received the following email from my mother-in-law. So I thought rather than being a pain in the ass today, that comes later, we would have a little humor, at least i found it so.

Have you ever  wondered what the difference is between Grandmothers  and
Grandfathers? 

Well, here it is: There was this loving  grandfather who always made a special
effort to spend time with his son's  family on weekends. Every Saturday morning
he would take his 7-year-old granddaughter out for a drive in the car for some
quality time -- just  him and his granddaughter. 

One particular Saturday, however, he had a  bad cold and really didn't feel like
being up at all. He knew his  granddaughter always looked forward to their
drives and would be  disappointed.  Luckily, his wife came to the rescue and
said that she  would take their granddaughter for the drive. When they returned,
the  little girl anxiously ran upstairs to see her grandfather who was still in
bed. "Well, did you enjoy your ride with grandma?" he asked. "Oh, yes,  PapPap,
it was really wonderful.  We didn't see a single  asshole, blind bastard,
dipshit or son of a bitch anywhere we  went!" 



Almost brings a tear to your eye, doesn't  it?


God Bless & Keep You & This Country of Ours!!!!!
joe
PS> God love grandpa's to.

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I Applaud The Younger

So I am late getting to this, what the hell my fingers needed to be dusted off. What follows are a couple of emails that I want to post, one with full permission, the other not so identity will be with held from that one.

My name is Jordyn and I am twenty years old studying occupational therapy.  My professor had us watch the HBO Living with Alzheimer's documentary for my class, functioning of the older adult.  I just wanted to let you know that I really respect you for opening up your life to the world and writing so freely in your blogs.  How great is it that people of all ages follow your blog!  People from 15 years old to 100 years old are reading your story and I think that is truly amazing.  Hearing you say that your life didn't matter in the great scheme of things broke my heart...I just wanted to let you know that your life does mean something and I hope to follow your blogs from now into the future.  It's a wonderful thing you're doing.  Have a great day!  

Sincerely,

Jordyn

Hi Joe,

I am so excited that you e-mailed me back!  I would be honored if you posted my comment.  I actually just found out today that I was accepted into my Occupational Therapy program at Western Michigan University and I plan to work with older adults in my future career.  I hope you are your family are doing well.  I will keep you in my prayers.  Thank you so much for e-mailing me back.

Sincerely,
Jordyn Bell
Hey Joe! 

I saw you on the Swedish Channel 2 today! I heard
you talking about your illness and I feel for you thou I am only 18
years old. I hope that you can have a wonderful life and be happy all
your waken time with your loved ones. God knows you deserve it!

Greetings from Sweden!
Dear Joe
I continue to be thankful for your help in understanding
what my dad went through as we lost him to AD. Although he no longer
knows me when he sees me, he often talks about his daughter and has
wonderful memories of our time together. Although I miss my dad
terribly it is some comfort that I was able to give him memories of
being loved and appreciated. I pray those memories of time with your
wife and family will remain. And that you will continue to find days
when you are with us all. Take care
These are emails from younger people, those that are coming up the line to care for those that will follow me and are caring. This is what keeps me posting knowing that just maybe, just maybe, we are reaching people and someday maybe just by complete accident one of these and the others in Brazil, Sweden, Chile, Argentina, Australia and other places that have writen by accident just may find out why this disease is. I am not talking a cure or a medicine that MAY SLOW things down, but what really causes this.  Then and only then will the real breakthroughs come and not before. I applaud you young folks, just for your interest not to mention the course you are setting for yourselves. I WELCOME YOU TO MY WORLD.
God Bless & Keep You and This Country of Ours!
joe
PS. To my friend Dr. Joe, I am a dumb SOB, ask those who really know me, God Bless and Keep You my Friend.

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Hope You Enjoy

First let me apologize for what may apppear on the slideshow, it comes directly from Amazon.com, their book section. You can click on any picture and go there and then if you are an amazon customer you can go shop till your heart is content. One warning once you leave amazon, you get me again.

I have added my favorite song to the site which starts attomatically, if you do not want to list to it, just click the button on the audiopal gagett.  But I do hope you enjoy it as I do.

Thanks for being there for me.

God Bless & Keep You & And This Country of Ours!
joe

PS. Hey you contributors how about it, some words please?

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New Link Added

First let me say that if you have not tried Google Chrome, you might want to, much faster.

I have added a link to the Beijing Tiantun Puhua Hospital today. This may seem strange to you, but I figure if they can use this blog as a source for them in China, least I could do was add them to my links. They contacted me, let me say that kind of took my socks off.

I needed their contact, the last couple of days have been very uncomfortable and less then memorable and they made my day. It has been difficult to know where I have been, but I know I have not been with my family or my own brain, but that is life with AD and any dementia.

God Bless & Keep You & This Country of Ours!
joe

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HE/SHE - HIS/HERS

Confusing title, well maybe.  See my wife told me the other day that one of the earliest problems I had after the diagnose was made, was keeping genders straight. Apparrently then and now when I talk about her I am talking about him and so on. Maybe this is why I never had much luck dating in my early years.

The last few days I have felt kind of lost in space and not sure of what I am exactly up to or doing. But I have not met any green people lately.

Will be attempting on working on changing my blog, the look and such, hopefully I can test it somewhere to fix the mess ups. Hope to make it so that those who read it can also blog on it. Maybe open some discussions or give some of you a place to say what you need to. Will see what happens.

Time to put my brain to rest again before it attacks me.

God Bless You & Keep You & This Country of Ours!
Joe

P.S. Do not feel like I do not appreciate your emails, I have been very bad lately at answering. Starting not to even turn this beast on anymore.

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Hello All!

My ggrandson Lucas is now home from hospital and out of the NICU and mom is fine, so they do not have that stress anylonger.

We built a cover over the pond and have started to plant the area, should be done soon, then will post pictures. We have a new femaile Koi that is pregnant. She is black with a white belly and white nose so we call her Orca. Have to get a male for her, since I lost mine.

I have been trying to read a book from a friend who has been published and it comes out in June, so I cannot tell you the name yet. I am having problems with it, very slow reader I am. But what I see in it that for you care givers it probably will be good. I cannot relate to the person's feelings from this side of the fence, except to let them know that many of their feelings we have on this side. Of course we don't have the family BS of what to do with us to tend with, we just keep going on and forgetting. But I can see how it could get tacky, since we are still locked away and forgotten about. Not alot has changed over the decades.

I am starting to become disconnectd from life in general and my past and who I once was. Things seem to be of little importance anymore. Ask me this afternoon what I did this morning and I will have problems telling you and so goes the day and my life. Trying to keep a sense of humor is becoming hard, I do not like this world of mine but I cannot change it, it is what it is, shit.

Posting is getting harder. The note on my computer to do so does not help much, I just start and forget and walk away. telling of the misery of this does not even fill worhwihile anymore. There is a lonelyness that is setting in a feeling of being apart from everything, and trying to hang on I feel like I am drowning in a vast void in my mind.

So much babbling.

God Bless You & This Country of Ours!
joe

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What is a Friend?

I have become very confused oevr this. It seems that what I think (have to be easy there) and others is different. Maybe because it is more difficult to talkto me and keep things on track and the fact that I get angry easier has changed things betweeen me and others. I always thought and still do that you are honest totally with a friend and not afraid to be calllled on your BS and not afraid to call them on it. That seems to be a problem in theis world today. It is costing me friends. Even trying to explain things to them doe snot work. I guess this is going to be a new part of my life that I am going to have as this keeps getting harder.

I am still waiting for pics and info to start the memorial post for those that have proceeded me and are now at rest. I think they are the faces of this disease. Their fight was bvaliant and brave, they fought and tried against a foe that is not beatable at this time. They are my heroes for hanging in ass long as they could. They helpeed to pave the road I have to travel and I thank them for making it a little easier for me. The millions that suffer now and to come are my family now.

This is my story on this blog, but I want it to be a home for you as well. That is why things haveeeve ben changing and will continue to do so. Those of you that take care of us extreemely unpredictable persons, need an outlet and I am going to try and succeed with you help making this blog one outlet for you. It maybe moving to more of a website and changing the address, so that it can be more interactive for you who take the time to read my ramblings and need to converse with otherers in your position.

I have to stop now, my brain is not holding thoughts rifht now.

God Bless You and This Country of Ours!
Joe

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Time Marches On

My wife and I were discusing what cognaitve and occupational skills meant. Because they confuse me. Of course cognaitve is thinking, record keeping, more complex problem solving, well forget hat one. Occupational are those things such as typing, cooking, walking and general doing things. Well we looose on that score to. At least I still can brush my teeeth without putting the brush up my nose. That is it for today, whatelse is there.

God Bless You and This Country of Ours!
Joe

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For You Caregivers

How I got this is beyond me but it may help some of you. You wil nk I did not write thsi spellings is to good. Hope it helps.



Welcome to the Combination Care for Alzheimer's program

As a caregiver for someone who is living with Alzheimer's disease, your role is to make sure your loved one is getting the most effective treatment possible. This means using a combination of approaches—medication combined with other activities can help expand what you're already doing. By enrolling in this program you'll have access to information and resources that can help you learn more about the disease and treatments you may not have considered, such as combination therapy. (Combination therapy is when two Alzheimer's disease medications are used together to increase the benefits of treatment).

Based on what you told us when you enrolled, we have created a personalized Doctor Discussion Guide just for you. This guide offers important tips that can help you work with the doctor and talk openly about your loved one's condition and treatment plan. It also offers a series of questions that may help you have an informed conversation about how you can continue to enhance your loved one's care. As time
with the doctor can be limited, the personalized Doctor Discussion Guide can help you maximize your office visits.

Please PRINT this Doctor Discussion Guide now, review it, and make note of any topics you'd like to discuss at your next doctor's appointment. Beyond this, you will also receive a series of personalized emails over the next two months, providing you with educational and supportive information on how you can enhance your loved one's care. They will also help you learn about ways you can look after yourself as you continue managing your loved one's disease.

Doctor Discussion Guide:

Your Role as a Caregiver Is Essential. As you continue to care for someone living with Alzheimer's disease, it's important that you work as a partner with the doctor. Your doctor relies on you to communicate openly about how your loved one is doing and how treatment is working. The more information you can provide the more you'll be able to help your loved one get treatment that will make life more manageable for both of you.

One treatment option that you and your doctor may want to consider is combination therapy. In the treatment of moderate to severe Alzheimer's disease, doctors may prescribe a combination of medications, Namenda® (memantine HCl)* and Aricept® (donepezil)**, when they believe it will be more effective than a single Alzheimer's medicine alone. Use the following tips and questions to have an informed
discussion about whether combination therapy may be the right option for the person you care about.

Questions to Ask the Doctor:
When it comes to treatment:

1. What additional treatment options are available for Alzheimer's disease?
2. Based on the treatments we've tried before, is there anything more we can be doing?
3. I understand there is an option called "combination therapy." Can you tell me about it?
4. What are the benefits of combination therapy?

When it comes to daily living:

1. In addition to medication, are there any lifestyle changes that you would recommend?
2. What type of mental activities will help my loved one?
3. What type of physical activities will help my loved one?
4. Can you tell me what types of support services in my area are available to us, such as in-home assistance, adult day care, assisted living
facilities, etc.?
5. Can you recommend a support group in my area for caregivers like me?
Tips for Partnering with Your Doctor􀁺

Keep track of changes in your loved one's behavior—It may seem obvious and you may have been doing it for a while, but it's very useful for you to track and tell your doctor about any changes in your loved one's behavior and symptoms such as increased difficulty in performing everyday tasks, agitation, or even increased deficits in intellect and reasoning. Ask family members or friends if they notice any changes that you may miss. And, if you aren't already, consider keeping a journal or diary to note any changes in behavior, so you can share this information with the doctor. You can also write notes on this Doctor Discussion Guide and take it with you to your next appointment.

Prepare for doctor visits ahead of time—Taking the time to write down any questions or concerns you have can help make your office visits more productive. You may also want to bring articles or online resources that you have found with you to the appointments. This way the doctor is aware of what you're learning and where you are finding additional information.

Listen carefully to the doctor and take notes—To be sure that you clearly understand everything the doctor tells you and that you remember it once you leave the appointment, it's helpful to take notes. You can take notes on this Doctor Discussion Guide. You may alsowant to consider using a tape recorder or bringing a friend or family member with you.

Think about yourself too—It may be difficult to consider yourself when so much of your energy is spent caring for someone else, but by staying healthy you're better able to provide the care your loved one needs. Don't hesitate to ask your doctor what you can be doing to take care of yourself so you stay strong too.

Notes:
*Namenda is indicated for the treatment of moderate to severe Alzheimer's disease.
Namenda® (memantine HCl) is a registered trademark of Forest Laboratories, Inc.
**Aricept® (donepezil HCl tablets) is a registered trademark of Eisai Co., Ltd. and Pfizer Inc.
© 2008 Forest Laboratories, Inc.Welcome to the Combination Care for Alzheimer's program

God Bless You & This Country of Ours!
Joe

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New Chat Room

Hopefully you will note the new chatroom feature. You click wait for the chat request to appear, you put in your name or alias short discription and click chat. The room has room for more that one person. So I may or not may enter the chat. Please feel free to be open about why you are there. GIVE PEOPLE A CHANCE TO ANSWER. Try hard as it may or will be not to talk oevr one anotehr. I can it is my chat room. The LIVE CHAT will probably leave as this only alllowed one to talk to me at a time. I hope caregivers that are on at the same time as us looney tunes will enter and share. I am trying to make this site yours as well as mine, hopefullly we can all learn from each other.

God Bless You & This Country of Ours!
joe

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OK Let's See If You Use This.

After slaving for 1000's of hours and bangnig my head on the wall to clear my ½ brain cell, and much swet, tears and blood and of course countlsse 10000000's of dollars, sound like I am going to make you rich scheme? WRONG!!!!!!!! This is more torturing than that. There is a small blue statement with a red under line on the upper right hand side of the blog it says live chat. Yes click on it and if my beast of humanity is on it will ring and we can chat to one another if you want. If not fine. I will take my milk and oreo's ago elsewhere.

God Bless,
Joe

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To All True American's - Happy July 4th.

TO ALL WHO HAVE FOUGHT AND DIED FOR OUR FREEDOM. THIS IS OUR TRIBUTE TO YOU! THEY WILL CARRY ON FOR YOU AND CONTINUE THE FIGHT REGARDLESS OF THOSE IN WASHINGTON THAT WANT TO SELL US TO ILLEGALS AND CHINA.

Our Country is based on the Christian and Judeo principals, no matter what the "I'm Just A Boy From Kenya" has to say. I am not normally this political on my site, but this man and the present congress are not worthy of the support of REAL AMERICANS.

So let me have it back. Just remember I will forget it and go on with what is left of my life and brain, you will be living in yours. Little AD sarcasim.

I hope YOU ALL have a geart 4th of July and remember why we have our freedoms that others even here what to take away from us.

God Bless You and This Country of Ours!
Joe

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The Grewsome Foursome!

Well I thought you should seem some of the folks respoonsilge for the HBO Special.

Starting on the right: Sherry the Nick they along with Elisa (not in the picture) produced Memory The Lost Tapes. Give them a bid hand for a job very well done. Next is Annie daughter of Josephine that were in the special. Picture was taken in LA at a priemer showing. The old fart, well he is not going to beat out robert Redford. He is the mystery person.

God Bless You & This Country of Ours!!
joe

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I Do Not Go Away - Google.

I sure many thougt I would not follow up on my distain with Google, but I have a very angry side to me, especially when being called a thief. Years ago maybe, now no way. So here is to google, using spell & grammar checker so they could understand. Also, no answer from them yet. No balls I guess.



April 28, 2009

Mr. Eric Schmidt
Chairman of the Board & Chief Executive Officer
Google
1600 Amphitheatre Pkwy.
Mountain View, CA 94043

Dear Mr. Schmidt:

I am sure that you maybe wondering why there is a check for $0.81 attached to this letter.

Well there is a good reason for that, I do not appreciate being basically called a thief and a purveyor of illegal intent of taking funds from anyone. This blood money is repayment for what I was paid by Google Ad sense, because someone unknown to me was clicking on the ads on my blog. I presume from the insulting email I received from your outfit, they were not justified. I appealed, since I did not even know that I was to get paid, and basically as far as I am concerned was called a liar and complicter by your staff.

You see I suffer from Alzheimer’s and Frontal Temporal Lobe Dementia. I have a blog located at http://living-with-alzheimers.blogspot.com/. On this site I tell of how the disease affects me and how I cope with it. I started it to help caregivers, physicians and those whose loved ones suffer from the disease, what it is like in Our World. Maybe in a small way giving them some comfort as to how it is not their fault and that they could do very little.

I thought Adsense would be good, because it listed sites and places for people to go on my blog as well as in the posting. The ads were pertinent to the blog and entries. This was my whole thrust. But YOUR PEOPLE, I guess felt I was just trying to steal from you. So hence I return the $0.81 to you, I would not want your firm to suffer any financial hardship over this, or your dog not be able to eat because of it.

As a point of interest, The Wall Street Journal thought enough of me and my integrity to feature my blog in the paper. HBO Media also has honored me by including me in their The Alzheimer’s Project, which airs in May 2009. By the way you can find the information on Google.

I remain,
Joseph Potocny

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Who Am I?

For some reason many of you have called me hero, courgeous, generous spirt, wonderful person and all type of kind things. Truly I am none of these, just another one among millions with this fricken disease. No cure, no real meds, no real scientific finds, just one end. At firstm many thought I was bitter orver it, I never have been. Pissed at a medical profession that would not get its head out of its ass and listen yes. You see it is just my turn, I was called and well I answered, oh well. Often wanted to write my life story, maybe that is teh real reason behind this blog, I do not know. Now I have difficulty putting it into a time frame since time does not exist for me the same as it does for you. I was going to callthe booke THROUGH THE LAUGHTER, HE HEARD MY TEARS! So much for that.

If you want to know who and what I really am, there is a post 08/0/2008 called A Warrior's Lament, an attempt at a poem by me saying where I have been and am and a post 09/29/2007 Farwell To My Old Friend Pain, to post is self explaining I thing.

Well Lakes to HBO this blog has been buzing. They are the Heroes for doing the series that needed to be done. Five hours cannot cover it all, but they did a one heck of a knock up job. Shit the brought back long lost friends to me because of it, I sure benefited by it. Well tooo much rambling.

God Bless You & This Country of Ours!
joe

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Thank God For Friends - They Make Me Laugh!

This came from a frien, who rote it I do not know, but you will find me in this.


I was gonna write something here _ _ _ _ _ _ _ _ _ _ _ _ _




Forgetter Be Forgotten

My forgetter's getting better,
But my rememberer is broke
To you that may seem funny
But, to me, that is no joke

For when I'm 'here' I'm wondering
If I really should be 'there'
And, when I try to think it through,
I haven't got a prayer!

Oft times I walk into a room,
Say 'what am I here for?'
I wrack my brain, but all in vain!
A zero, is my score.

At times I put something away
Where it is safe, but, Gee!
The person it is safest from
Is, generally, me!

When shopping I may see someone,
Say 'Hi' and have a chat,
Then, when the person walks away
I ask myself, 'who the heck was that?'

Yes, my forgetter's getting better
While my rememberer is broke,
And it's driving me plumb crazy
And that isn't any joke.

CAN YOU RELATE???
I DON'T REMEMBER WHO I SENT THIS TO !
LIVE, LOVE & LAUGH A LOT

God Bless You & This Country of Ours!!!!!!
joe

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Mark Your Calendars - 5/10/2009

On this date HBO will start the firsst in a 4 part series on Alzhiemers. As you know I prefer to call it dementia. As the council on aging testified in March to Congress, THEY DO NOT KNOW WHAT EVEN CAUSES IT. Yet they feel thaat with the right structure and funds there could be the possibility of delaying its onset. It is finnally being recognized and called a disease and not just of the aged. Maria Schiver gave a moving talk, but the gentleman from Florida much more touch me with the story of his wife diagnosed at 55, about 65 now I am guessing no longer remembers him and the pain of it. He also talked about those who are not wealthy like Maria, face challenges of care that she can afford. I am not taking things from her, the devestation of her father is real and painful for the family. But I still do not believe the caregivers truly understand the pain and frustration and anger of it in this World. You go along ok for awhile. Then you fall down a part of the stairs. You go to get back up the stairs, but no way, they are gone lost forever and so has part of yourlife and who you are disappeared. Epedemic they call it, try PANDEMIC, with more than 10 million in this country alone suffering. These people did state a real truth, when you have seen one case of AD, you have seen just one case. We all progress differently. And as they said 'YOU WILL NOT SEE ANY SURVIVORS OF AD WALKING AROUND". THERE ARE NONE!!!!!!! Welcom eo My World

I have got nasty lately on my blog and truly do not care, it is part of wo and what I amm becoming. BUT I AM PROUD TO SAY THAT I AM PART OF THE DOCUMENTARY THAT WILL BE SHOWN ON HBO IN MAY. I thank them for having the balls to truly attack this head on. KUDOS HBO.

If science has or ever gets the courage to take live brain cels so they can truly start to find out how this plague works, I AM READY AND WILLING TO LET THEM GO AT MY BRAIN, it is becoming of smaller and smaller value to me.

God Bless You & This Country of Ours!
joe

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A Change, I Am A Crook

I OPENED WHAT IS CALLLED A GOOGLE ADSENSE ACCOUNT, SO THAT YOU WOULD HAVE MORE RESCOURES AT YOUR DISPOSAL THROUGH SIDE ADDS. WELL GOOGLE AND OUR PRESIDENT THINK THEY CAN JUST FIRE ANYONE IN THE PRIVATE SECTOR. THE ADDS ARE GONE, SOMEONE WAS CLICKING ON THEM, GOD FORBID, WHAT THE FUCK WERE THEY THEIR FOR. ANGRY YES I AM, I DO NOT LIKE BEING CALLED A THIEF OR IT BEING IMPLIED. THAT IS EXACTLY WHAT GOOGLE HAAS DONE. SO, IN MY INFINITE WISDOM I CHOOSE TO SAY SCREW THEM AND USE YAHOO FROM NOW ON. I REALISE THAAT MEANS CLOSING THIS BLOG DOWN AND STARTING OVER. BUT I TRIED TO GIVE YOU THE STORY ON THIS SIDE OF DEMENTIA AND OTHER RESOURCES, BUT GOOGLE DOES NOT THINK YOU ARE WORTHY. SO IF THIS GOES AWAY, I WILL TRY AND LET YOU KNOW WHERE I WENT, IF I REMEMBER EITHER ONE.

GOD BLESS YOU & THIS COUNTRY OF OURS!!!
joe

PS THEY PAID ME AN UNBELIEVABLE AMOUNT FOR WHOEVER CLICKED TO GET THE INFO THEY WANTED YES I AM A REAL FUCKIN CROOK $0.81, LOCK ME UP NOW!

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Tomorrow is My Day.

Yes, yesterdaaay was the werin of the green to be sure. AAAAH but Friday is St. Joseph's Day, the werin of the red, so be carefull. Good thing I have a calendar on my desk by this beast or I would not know the day. Once I leave this point alll bets are off.

Since it is my day here is to the world:

Wish you al well.

God Bless You & This Country of Ours!
joe

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