For Those Who Can Still Walk!!!!!

Yes this disease even takes that away from you. I know I have griped abouut the brain going away, but it seems my feet and legs are developing a mind of their own now. Several times I have falleen and trip and got hurt, but never thought of how AD is affecting me in that way.  Well the other day I had some sense knoccked into me. I was putting away the garbage cans, tuff duty right? We let me tell you it can be, putting the last can away I was practicing walking backwards, front ways not that good, try something new: Well I check where I was going turneed back around, steppped out of my sliper, apparently steped on my foot, you got it I went on a trip. My rather robust bottom slammed on the walk way, my back hit the pavers and this empty head of mine proceeded to put a rather nice looking dent in the one metal storage shed we have.  I have to admit the shed looks good it now has character. Me I have character to, back hurts like hell, my head hurts, the crack in my bottom has widened and I have been advised by my keepers, that maybe I should not do that anymore. You loose one freedom after another with this crap.

Until we meet again, take care of yourselves. I hold walking classes every Tuesday at 1pm PST.

God Bless & Keep You & This Country of Ours!!!
joe (the marathon walker)

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Locked In Time.

While this is still in my brain cell, the wife and I were talking last night, we are strange we do that. We were discusing yesterday and tomorrow.  To me there is no longer a tomorrow, it does not exsit and she asked me if I wanted it to come and I said not really or something like that. It just seems that tomorrow does not matter anylogner to me. Yesterday, well that is not 24 hours ago to me, but it seems like centuries and having no meaning. Lynn says I am in a time warp, who knows. All I know or thik I know is that time for me is right now, not 10 minutes from now or past just right now. It is a strange feeling, I guess my ½ brain cell is on overload.

I got a comment from a young lady in Romania and she was worried about her English. Well is was perfect and really young one, this is not the place to worry about it. As you read you will see what I mean. I welcome you and the other new folks I have heard from to this World of Mine. You never know waht will come out of my brain, and neither do I.

God Bless & Keep You & This Country of Ours!!!!
joe

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I greet you this day not really knowing why. It seems that the days are starting to have little meaning anymore. I try to keep a sense of humor about things, but there is nothing humorous about what is happening to me or those around me. I find myself staring off into space or just at nothign these days nore amd more. Things seem to mean little anymore to me and I just do not know how to handle these feeelings and moods. Things keep slipping farther and farther away from me.

I have tried to make this blog as time has gone by a place for meeting and exchangin thoughts and felings on dementia in general. I gave the site a chat room for a year that I paaid for open 24/7 for whoever wanted to talk not just to me but to others a failure. I opened a direct chat line to communicate whichcost me over$80 a month so we could talk, 5 people, a failure. I invited over 25 people to blog here because of their involvement with dementia, that has been a failure, I even set up Yahoo Messenger for instant chatting that too went down the tubes, I even have tried skype without any success. Comments I have gotten, emails I have gotten, but I guess my expectations (premeditated resentments) should not have been. I have removed all of the about except comments and email.

I am trying to give u articles as I find them that maybe of interest. I have a feeling that will be of no avail. Bitter yes I am, angry and pissed, yes, at those who come and cannot even take time to comment yes, but most of all at ME, for especting and planning and most of all trying to plan the outcome.This fricken disease plays a lot of games with your head and sometimes I am not even sure of what I am writting, minutes from now I will forget and I guess for me that is ok. Keeping my angry under anytype of control is getting difficult, increase in meds is not helping, well so much for my bitching, like most things it will get me nowhere fast.

God Bless & Keep You & This Country of Ours!!!!
joe

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A Prior Post if You Will. With Added Comment.

A Warrior's Lament:    (by j.v. potocny)

                                                                   

I kneel before thee

Upon bended knee

My battle axe rusts upon a tree

The Steed that served me well

Now runs free and frail

He served us both with grace and might

Let him rest well each night

There is no deadly mace

That you can see before my face

Gone is my shield which I cannot hold

All that is before you is my sword and face

I have stood tall in all battles

With You I have won and battles song sung

Many with scars some with none

Since a child I have fought the fight

Now I wish for it to end this night

My strength is dried up and gone

No longer does exist that fierce warrior in me

I long to face only Thee

This battle I am in is lost and so am I

So before You I am on bended knee

Prostrate would I lay

But this body is to broken and brittle this day

So I lay before you all I have left

Worn, beaten, yearning, to you I give my soul

No longer in the dust of battle let me roam

I await You and Your Hand to take me in your time

I pray Thee take ME HOME

In Your Name Amen.

This more reflects my wishs of today and my feelings. I no longer like it here. I no longer communicate with those around me well. Most of the time I am in my own little world and do not want to be bothered by anyone. My wife has noticed more and more that I am not with those around me. This is not a friendly world it rather sucks. Things I once enjoyed are a chore, getting things done takes it seems like years to me. It feels at times like my brain is being crushed or squeezed down. It is not a headache but a sensation of being pushed out and away.

God Bless & Keep You & This Country of Ours!

Joe

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For You Caregivers

How I got this is beyond me but it may help some of you. You wil nk I did not write thsi spellings is to good. Hope it helps.



Welcome to the Combination Care for Alzheimer's program

As a caregiver for someone who is living with Alzheimer's disease, your role is to make sure your loved one is getting the most effective treatment possible. This means using a combination of approaches—medication combined with other activities can help expand what you're already doing. By enrolling in this program you'll have access to information and resources that can help you learn more about the disease and treatments you may not have considered, such as combination therapy. (Combination therapy is when two Alzheimer's disease medications are used together to increase the benefits of treatment).

Based on what you told us when you enrolled, we have created a personalized Doctor Discussion Guide just for you. This guide offers important tips that can help you work with the doctor and talk openly about your loved one's condition and treatment plan. It also offers a series of questions that may help you have an informed conversation about how you can continue to enhance your loved one's care. As time
with the doctor can be limited, the personalized Doctor Discussion Guide can help you maximize your office visits.

Please PRINT this Doctor Discussion Guide now, review it, and make note of any topics you'd like to discuss at your next doctor's appointment. Beyond this, you will also receive a series of personalized emails over the next two months, providing you with educational and supportive information on how you can enhance your loved one's care. They will also help you learn about ways you can look after yourself as you continue managing your loved one's disease.

Doctor Discussion Guide:

Your Role as a Caregiver Is Essential. As you continue to care for someone living with Alzheimer's disease, it's important that you work as a partner with the doctor. Your doctor relies on you to communicate openly about how your loved one is doing and how treatment is working. The more information you can provide the more you'll be able to help your loved one get treatment that will make life more manageable for both of you.

One treatment option that you and your doctor may want to consider is combination therapy. In the treatment of moderate to severe Alzheimer's disease, doctors may prescribe a combination of medications, Namenda® (memantine HCl)* and Aricept® (donepezil)**, when they believe it will be more effective than a single Alzheimer's medicine alone. Use the following tips and questions to have an informed
discussion about whether combination therapy may be the right option for the person you care about.

Questions to Ask the Doctor:
When it comes to treatment:

1. What additional treatment options are available for Alzheimer's disease?
2. Based on the treatments we've tried before, is there anything more we can be doing?
3. I understand there is an option called "combination therapy." Can you tell me about it?
4. What are the benefits of combination therapy?

When it comes to daily living:

1. In addition to medication, are there any lifestyle changes that you would recommend?
2. What type of mental activities will help my loved one?
3. What type of physical activities will help my loved one?
4. Can you tell me what types of support services in my area are available to us, such as in-home assistance, adult day care, assisted living
facilities, etc.?
5. Can you recommend a support group in my area for caregivers like me?
Tips for Partnering with Your Doctor􀁺

Keep track of changes in your loved one's behavior—It may seem obvious and you may have been doing it for a while, but it's very useful for you to track and tell your doctor about any changes in your loved one's behavior and symptoms such as increased difficulty in performing everyday tasks, agitation, or even increased deficits in intellect and reasoning. Ask family members or friends if they notice any changes that you may miss. And, if you aren't already, consider keeping a journal or diary to note any changes in behavior, so you can share this information with the doctor. You can also write notes on this Doctor Discussion Guide and take it with you to your next appointment.

Prepare for doctor visits ahead of time—Taking the time to write down any questions or concerns you have can help make your office visits more productive. You may also want to bring articles or online resources that you have found with you to the appointments. This way the doctor is aware of what you're learning and where you are finding additional information.

Listen carefully to the doctor and take notes—To be sure that you clearly understand everything the doctor tells you and that you remember it once you leave the appointment, it's helpful to take notes. You can take notes on this Doctor Discussion Guide. You may alsowant to consider using a tape recorder or bringing a friend or family member with you.

Think about yourself too—It may be difficult to consider yourself when so much of your energy is spent caring for someone else, but by staying healthy you're better able to provide the care your loved one needs. Don't hesitate to ask your doctor what you can be doing to take care of yourself so you stay strong too.

Notes:
*Namenda is indicated for the treatment of moderate to severe Alzheimer's disease.
Namenda® (memantine HCl) is a registered trademark of Forest Laboratories, Inc.
**Aricept® (donepezil HCl tablets) is a registered trademark of Eisai Co., Ltd. and Pfizer Inc.
© 2008 Forest Laboratories, Inc.Welcome to the Combination Care for Alzheimer's program

God Bless You & This Country of Ours!
Joe

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OK Let's See If You Use This.

After slaving for 1000's of hours and bangnig my head on the wall to clear my ½ brain cell, and much swet, tears and blood and of course countlsse 10000000's of dollars, sound like I am going to make you rich scheme? WRONG!!!!!!!! This is more torturing than that. There is a small blue statement with a red under line on the upper right hand side of the blog it says live chat. Yes click on it and if my beast of humanity is on it will ring and we can chat to one another if you want. If not fine. I will take my milk and oreo's ago elsewhere.

God Bless,
Joe

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My View On The World Today.

Nothing Else Be Said!

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The Grewsome Foursome!

Well I thought you should seem some of the folks respoonsilge for the HBO Special.

Starting on the right: Sherry the Nick they along with Elisa (not in the picture) produced Memory The Lost Tapes. Give them a bid hand for a job very well done. Next is Annie daughter of Josephine that were in the special. Picture was taken in LA at a priemer showing. The old fart, well he is not going to beat out robert Redford. He is the mystery person.

God Bless You & This Country of Ours!!
joe

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I Do Not Go Away - Google.

I sure many thougt I would not follow up on my distain with Google, but I have a very angry side to me, especially when being called a thief. Years ago maybe, now no way. So here is to google, using spell & grammar checker so they could understand. Also, no answer from them yet. No balls I guess.



April 28, 2009

Mr. Eric Schmidt
Chairman of the Board & Chief Executive Officer
Google
1600 Amphitheatre Pkwy.
Mountain View, CA 94043

Dear Mr. Schmidt:

I am sure that you maybe wondering why there is a check for $0.81 attached to this letter.

Well there is a good reason for that, I do not appreciate being basically called a thief and a purveyor of illegal intent of taking funds from anyone. This blood money is repayment for what I was paid by Google Ad sense, because someone unknown to me was clicking on the ads on my blog. I presume from the insulting email I received from your outfit, they were not justified. I appealed, since I did not even know that I was to get paid, and basically as far as I am concerned was called a liar and complicter by your staff.

You see I suffer from Alzheimer’s and Frontal Temporal Lobe Dementia. I have a blog located at http://living-with-alzheimers.blogspot.com/. On this site I tell of how the disease affects me and how I cope with it. I started it to help caregivers, physicians and those whose loved ones suffer from the disease, what it is like in Our World. Maybe in a small way giving them some comfort as to how it is not their fault and that they could do very little.

I thought Adsense would be good, because it listed sites and places for people to go on my blog as well as in the posting. The ads were pertinent to the blog and entries. This was my whole thrust. But YOUR PEOPLE, I guess felt I was just trying to steal from you. So hence I return the $0.81 to you, I would not want your firm to suffer any financial hardship over this, or your dog not be able to eat because of it.

As a point of interest, The Wall Street Journal thought enough of me and my integrity to feature my blog in the paper. HBO Media also has honored me by including me in their The Alzheimer’s Project, which airs in May 2009. By the way you can find the information on Google.

I remain,
Joseph Potocny

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A Change, I Am A Crook

I OPENED WHAT IS CALLLED A GOOGLE ADSENSE ACCOUNT, SO THAT YOU WOULD HAVE MORE RESCOURES AT YOUR DISPOSAL THROUGH SIDE ADDS. WELL GOOGLE AND OUR PRESIDENT THINK THEY CAN JUST FIRE ANYONE IN THE PRIVATE SECTOR. THE ADDS ARE GONE, SOMEONE WAS CLICKING ON THEM, GOD FORBID, WHAT THE FUCK WERE THEY THEIR FOR. ANGRY YES I AM, I DO NOT LIKE BEING CALLED A THIEF OR IT BEING IMPLIED. THAT IS EXACTLY WHAT GOOGLE HAAS DONE. SO, IN MY INFINITE WISDOM I CHOOSE TO SAY SCREW THEM AND USE YAHOO FROM NOW ON. I REALISE THAAT MEANS CLOSING THIS BLOG DOWN AND STARTING OVER. BUT I TRIED TO GIVE YOU THE STORY ON THIS SIDE OF DEMENTIA AND OTHER RESOURCES, BUT GOOGLE DOES NOT THINK YOU ARE WORTHY. SO IF THIS GOES AWAY, I WILL TRY AND LET YOU KNOW WHERE I WENT, IF I REMEMBER EITHER ONE.

GOD BLESS YOU & THIS COUNTRY OF OURS!!!
joe

PS THEY PAID ME AN UNBELIEVABLE AMOUNT FOR WHOEVER CLICKED TO GET THE INFO THEY WANTED YES I AM A REAL FUCKIN CROOK $0.81, LOCK ME UP NOW!

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Lack of Feed Back!

I use to get many more emails and comments on my postings, with over 12,000 visitors I brain thinks I would hear more. I guess maybe of late I have tried to show too much humor and people want the gore. Well the humor is howw I keepp my self together. Without it thiss life would be darn near unbearabel. I is no fun trust me sitting here tryiing to write to you and tell you that the wolrd really sucks.I does not get out of my head to the keyboard when I want it to. Tihngs do not get better here, they just slowly go down hill. I read all the new studiies and new stuff to try and I really laugh at this so calllled professionals. They all contradict each other, I wonder if they are not suffers as well. March to stamp out Alhzeimers, RIGHT! Asses don't even know what really causes it to start wity, great progress in over 100 years. I am not thrilled with having AD & FTD, but that is the way it is period. You should try it some day, look at people you have been with for 30+ years and not even know who they are, let alone what the hell they are talking about. Damn most of the time I am not sure what I am saying or trying to say. Well old ½ of brain cell here will say good bye for now. Be good to yourselves.

God Bless You and This Country of Ours!
Joe

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December Already!!!!

Yes it is that time of year again. For me Thanksgiving seems years ago. Time no longer has a start and finish for me. Well it will be here soon, probably sooner than I think and be gone before I know it was here. This year has been fillled with manny things for me. Or I think it was, I am no longger sure of it. But I still awake each day and breathe, I might looose most of the day but I am still there somewhere for it. Funny somedays I feel in total control and then for days I have no idea what is going on. I try to get to this each day, but at last it does not work that way. Early or not at all for the most part. Catch Ya All Later.

God Bless You & This Country of Ours!
Joe

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Lost in Time!

Wow here it is amlost the midlddle of September, where have I been. It seems like as each day passes I become less and less aware of the day, date, week, month or the time. It is all seemilgy running together. It is like today is almost a repeat of yesterday. I now have problems with some of my conversations, my tongue seems to get in the way and I get all screwed up in what I am saying, so I gust wave my hands and say latter. Which of course latter does not come because I for get what I was saying in the first place. It seems to be this whole time affect first forward then backwards, drives me nuts (that is a short drive). I find that i get more irritable as time goes on, I try to handle it but well sometimes that is just the way things happen. I did not even realise that we were this far into this mont. Halloween will be here and I will not know it, except for the candy and the tricker treators. Well I guess I will go do something, probably something of no importance, but it will be something I think.

God Bless You and This Country of Ours!
Joe

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